Iqembu Elimemezela Abantu Abagula Ngezifo Ezibulalayo
E-United States, iqembu elikhulu kunazo zonke elingenzi inzuzo elihlinzeka ukwesekwa kanye nolwazi kubantu abanezifo zesifo sofuba (IBD) kanye nabanakekeli babo yiCrohn's and Colitis Foundation, ebizwa nangokuthi iSisekelo. Eyasungulwa ngo-1967, i-Crohn's & Colitis Foundation iqoqa izifundo, ihlela izinhlelo zemfundo, iphinde isekele iziguli ezine-IBD, imindeni yabo, kanye nodokotela abaphatha labo abahlala ne-IBD.
Abasunguli Be-Crohn's & Colitis Foundation
I-Foundation yaqala ukuba ngo-1967 njenge-National Foundation ye-Ileitis ne-Colitis. Ekuqaleni yasungulwa ngu-Irwin M. noSuzanne Rosenthal, uWilliam D. noShelby Modell, no-Henry D. Janowitz, MD. ("Isi-Ileitis," manje esicatshangelwa ukuthi yisikhathi esiphelelwe yisikhathi, sasetshenziswa ngoba ngaleso sikhathi, yilokho okwakusetshenziselwa ukuchaza isifo sikaCrohn.) USuzanne Rosenthal watholakala enesifo sikaCrohn ngo-1955. Yena, nomyeni wakhe u-Irwin, I-Modells, noDkt Janowitz, bakha inhlangano yokuqala engenzi inzuzo enikezelwe ekusizeni labo abahlala ne-IBD nemindeni yabo.
U-Suzanne wakhulisa i-template kumaqembu asekela abantu abahlala nabo kulabo abanesifo sikaCrohn kanye nesifo sofuba esiswini, ekugcineni basakaza umqondo kwizahluko zendawo yeCrohn's & Colitis Foundation ezweni lonke. I-Foundation yasungulwa njenge Crohn's kanye neColitis Foundation of America, eyabuyiselwa ku-Crohn's & Colitis Foundation ngo-2017, eyayihlanganisa ukusetshenziswa kwe logo entsha nokufaka isiqondiso esithile eqenjini.
Yeka ukuthi i-Dollar Fundraising Isetshenziswa kanjani
I-Crohn's & Colitis Foundation ayitholi imali evela kuhulumeni, kodwa isekelwe ngokuphelele ngamalungu ayo angu-50,000 ayingxenye yezahluko ezingu-40 kulo lonke elase-United States kanye nezibonelelo ezivela embonini. Izikhwama ziphakanyiswa ngezenzakalo ezehlukene zendawo nezesifundazwe, kufaka phakathi izithandwayo ezithandwayo zokuthatha izinyathelo nezintambo zokuhamba.
I-Foundation ibika ukuthi 82% yazo yonke iminikelo etholakele isetshenziselwa "ucwaningo, imfundo, nokusekelwa." Kusukela ngo-2011, iCrohn's & Colitis Foundation yachitha imali engu-43.5 million emisebenzini ebalulekile yokuthunywa kwemishini, isabelo semali kanje:
- Izinsiza zohlelo: 81.8%
- Ukuqoqa imali: 8.0%
- Ukuphatha: 10.2%
I-Crohn's & Colitis Foundation Publications
I-Crohn's & Colitis Foundation ikhiqiza izincwadi eziningana, kuhlanganise nomagazini wezokwelapha obuyekezwa ngontanga obizwa ngokuthi i- Inflammatory Bowel Diseases , ohambisa ama-2500 ochwepheshe bezempilo ababandakanyeka ekwelapheni abantu abahlala ne-IBD. Ezinye izincwadi ezimbili zihlanganisa i- Take Charge , enyatheliswa kabili ngonyaka ukusabalalisa kwama-50,000, naphansi kwe-Microscope , enyatheliswa kabili ngonyaka ukusabalalisa kwama-80,000.
Imikhiqizo ye-Crohn's & Colitis Foundation Digital
I-GI Buddy. Enye yeminikelo eyenziwe yiSisekelo yenza mahhala iziguli ozisebenzisayo uhlelo lokusebenza lwe- GI Buddy . I-GI Buddy iyindlela yokuba iziguli zilandele izindlela zokwelapha, izimpawu, nokudla, futhi zenze irekhodi neminye imibiko.
Abahlanganyeli be-CCFA. Leli thuluzi le-intanethi lisetshenziswe ngabasebenzisi abangaphezu kuka-14,000 abanesimo se-IBD. Abasebenzisi beCCFA Partners bangabhala ngolunye ulwazi oluyisisekelo mayelana nezimpawu zabo kanye nenhlalakahle futhi ngokuzothola bathole amashadi namagrafu ukubona ukuthi isimo sabo ngabanye siwaphi uma kuqhathaniswa nabanye abasebenzisi abathathe ucwaningo olufanele.
Ababambiqhaza bangaphakamisa izindawo zokucwaninga ezivotelwa ngabanye abasebenzisi abanesithakazelo ekuboneni leyo mibono ifakwe ocwaningweni locwaningo. Ososayensi abathintekayo ohlelweni bangasebenzisa iziphakamiso zokwakha izifundo zocwaningo.
Crohn's & Colitis Foundation By The Numbers
Ezinye zezibalo ezibaluleke kakhulu mayelana neCrohn's & Colitis Foundation yilezi:
- Inyanga ngayinye, iwebhusayithi ye-inhlangano, i-http: //www.crohnscolitisfoundation.org inezivakashi ezingama-80,000 futhi ikhonza ukubukwa kwekhasi le-400,000.
- Cishe ama-37% wezinkinga ze-gastroenterologists e-United States angamalungu eCrohn's & Colitis Foundation.
- Kubantu abayizigidi ezingu-1.6 e-United States abane-IBD, 1 kwabayishumi nanhlanu uyilungu le-Crohn's & Colitis Foundation.
- Ngo-2011, abantu abangaphezu kuka-10 000 babekhona kumaqembu angama-265 ahlukene aseCrohn's & Colitis Foundation asekela izwe lonke.
- Unyaka ngamunye, i-Crohn's & Colitis Foundation yenza kube lula isipiliyoni sekamu lezinsuku ezingu-1200 nge-IBD (kufaka phakathi labo abane-j-poches kanye nama-ostomi) ezindaweni zase-Camp Oasis kuwo wonke ama-United States.
Ukuxhumana ne-Crohn's & Colitis Foundation
- Umphakathi we-Crohn's & Colitis Online
- Yiba yilungu leCrohn's & Colitis Foundation
- Amavolontiya Nge-Crohn's & Colitis Foundation
- Bamba iqhaza kuCwaningo mayelana ne-IBD
- Xoxa Ne-IBD Information Specialist
- Yiya ku-Crohn's & Colitis FoundationEvent