Isifo samathumba esibhubhisayo (IBD) yisimiso esiyinkimbinkimbi semibandela, futhi ucwaningo lwekhwalithi lubalulekile ekuthuthukiseni ukwelashwa okungcono kweziguli. Nakuba singasazi ukuthi yini ebangela i-IBD noma indlela yokuphulukisa ngayo, ukucwaninga okuqhubekayo kuye kwaholela ekwelapheni okungcono, okuphumelelayo, futhi kunikeze ososayensi ezinye izinkomba lapho ufuna khona izimbangela. Ngisho noma umsebenzi omkhulu usuyenziwe, kusasele indlela ende yokuhamba, kanti ezinye izici zesifo sikaCrohn kanye nesifo sokulonda kwesilonda azifundi kahle noma ziqondwe kahle.
Iziguli ziyaba nesithakazelo ekukhuthazeni ukuqwashiswa kwe-IBD nasekufundeni ukuthi zingasiza kanjani ocwaningweni. Izindaba ezinhle ukuthi manje iziguli manje zingakwazi ukuhileleka ngokuqondile, zengeze ulwazi lwazo kulwazi olungasetshenziselwa ucwaningo ngisho nokuphakamisa izihloko zocwaningo.
Ucwaningo lwe-IBD luyinkimbinkimbi
Ukubeka iphrojekthi yocwaningo kwi-IBD kuyisimo esibucayi. Akukhona kuphela ukubunzima okubangelwa yiphrojekthi yocwaningo, kodwa kunzima ekuqatheni iziguli. Kuthatha isikhathi esiningi nokuzama ukuthola iziguli futhi uzibandakanye kulo msebenzi. Manje sinezorekhodi zezokwelapha zobuchwepheshe, kepha ulwazi luvame ukuba ngama-silos ahlukile - onke amarekhodi awafinyeleleki endaweni eyodwa. Amarekhodi adinga ukudonsa ngaphakathi futhi ahlelwe ngendlela ezosiza abacwaningi. Yingakho ucwaningo luvame ukuqhutshwa: ososayensi bangathatha izifundo eziningi ezenziwe ngendaba ethile, bese uqhathanisa nemiphumela.
Lokhu kuvame ukuveza imiphumela esezingeni eliphakeme kakhulu kunephepha elilodwa lokucwaninga, futhi izifundo ezinemiphumela ephikisanayo zingalungiswa ukuze zivumelane ngesihloko.
Indlela i-IBD Research Ishintsha ngayo
Esikhathini esidlule, iziguli zaziyizinhlelo zokucwaninga amaphrojekthi, kodwa kwakungavame ukubonisana mayelana nalokho okudingeka kwenziwe ucwaningo.
Kube khona ushintsho olwandle, futhi manje iziguli zithintana uma kuziwa ekuthuthukiseni amaphrojekthi ocwaningo. Kuthuthukiswa amathuluzi amasha azosiza abacwaningi ukuthi yiziphi iziguli ezifuna ukuba zifunde, futhi zisize iziguli ukuba zibandakanye ngokwengeziwe ocwaningweni.
I-IBD Plexus
I-IBD Plexus uhlelo olwakhiwa yiCrohn's And Colitis Foundation of America , ngezimali ezivela kuLe Leona M. noHarry B. Helmsley Charitable Trust. Lokho okuzokwenziwa yile database kudala imininingwane yolwazi oluvela kwiziguli ezine-IBD. Uma i-database isakhiwe, lonke ulwazi lwesiguli luzoba endaweni eyodwa ukuze ososayensi nabacwaningi bakwazi ukufinyelela. Lolu lwazi lungenziwa futhi lucwetshwe ngezindlela ezihlukahlukene, lunikeze ingcebo yedatha yamaphrojekthi ocwaningo.
Idatha ku-IBD Plexus izotholakala neziguli. Ngale ndlela, iziguli ziphinde zibuke idatha futhi ukuthi isipiliyoni sabo sisazisa kanjani inqubo yocwaningo. I-IBD Plexus ihlelwe ukuthi ivuke futhi isebenze ngo-2018.
Indlela Iziguli Ezingahlanganyela Ngayo
Umqondo wokwenza ucwaningo oluningi olwenzelwe iziguli ezine-IBD kuyinto ejabulisayo, futhi iziguli eziningi zifuna ukwazi ukuthi zingabandakanyeka kanjani futhi zengeze izwi labo. Indlela elula yeziguli okufanele zibandakanyeke ukubhalisa nabalingani beCCFA.
I-CCFA Partners yiyona "inethiwekhi yocwaningo olunikezwa isiguli" elizokondla ku-IBD Plexus. Ku-CCFA Partners, iziguli zingangena idatha yazo ukuze zisetshenziswe, ngokubanzi, nedatha yesiguli socwaningo. Akukhona lokho kuphela, kepha iziguli nazo zingathola imibiko ngokusekelwe kwedatha yazo, futhi ubone ukuthi zifanani nazo zonke ezinye iziguli ezibhalisile.
Ingxenye engcono kakhulu mayelana nabalingani beCCFA, noma kunjalo, ukuthi iziguli ziyakwazi ukuphakamisa amaphrojekthi abo okucwaninga. Ezinye iziguli ezibhalise ku-CCFA Partners zingavota ngemibono, futhi iziphakamiso zibuyekezwa ngabacwaningi. Abacwaningi bangabona ukuthi iziphi iziguli ze-IBD ezizikhathazekile ngempela, futhi zenzeke kuso.
Kuvele sekuvele amaphepha amaningana ashicilelwe kubalingani beCCFA, futhi okuningi kuqhubeka manje.