Ingqungquthela ye-LBBC ka-2016: Ukwelashwa Kwamanye Amazwe, Okuhlangenwe Ngokwabelana

Imininingwane ongayethemba

Njengomunye wabangu-450 ababekhona kwiNgqungquthela ye-Living Beyond Breast Cancer (LBBC) ka-2016, esanda kuqhutshwa ePhiladelphia, ngangijabule ukuba yingxenye yomcimbi ocatshangelwe kahle owaziwa kusesimweni sokucwaninga, ukwelashwa, nemithombo kunoma ubani ngubani oye wabhekana nomdlavuza webele.

Umhlangano we-LBBC uqale ngoLwesihlanu kusihlwa ngo-23 kuNhlangulana ngemicimbi emibili eyenzelwe ukusiza abantu abahlangene bahlangane futhi bahlalisane ngaphambi kosuku olugcwele lokwaziswa ngoMgqibelo, okwakubanjelwe ePennsylvania Convention Centre eDowntown Philadelphia.

NgoMgqibelo waqala ngekusasa kwasekuseni kanye nethuba lokuqala losuku ukuhlangana nabanye abahambele futhi bahlanganyele.

Inkulumo eyinhloko, "Ukudla Okunempilo Kwansuku zonke Zokuphila," ilandelwe kwasekuseni futhi ifaka izinkulumo ezimbili:

• "Kungani Ukudla Okudlayo," nguPlalav K. Mehta, MD
• "Ungayenza: Ukususa Izindlela Zokudla Ukudla Okunempilo," nguDktRo, uMqeqeshi weMelika waseMelika

Ihholo elide, ngaphandle kwamakamelo omhlangano ngamunye, kwakuyi-setting ephelele yokubeka amatafula ombukiso ukuze abe khona. Kwakukhona izibukeli ezingu-40 + ezimele izinhlangano zeziguli zomdlavuza webele, izinkampani ezenza imithi ezenza imithi yomdlavuza wesifuba, nezinkampani ezinemikhiqizo enjengezimonyo, izibeletho zesifuba kanye nemikhono yokucindezela. Amatafula e-Exhibitor ayesebenza nsuku zonke ukuze achaze umsebenzi inhlangano yabo noma inkampani eyenzayo, ukuphendula imibuzo, nokusabalalisa ulwazi.

Ukuphumula ku-ajenda evunyelwe ukuvakashela izimbonisi, ukuphumula, nokuhlanganyela ngokuhlanganyela kokuhlangenwe nakho komdlavuza webele nabanye.

Ukudla kwakusinye ithuba lokuhlanganyela nabalingani betafula, nokuxoxa ngezikhathi zokusa.

Ukuhambela inkomfa yomdlavuza webele, njengenkomfa ye-LBBC, kubalulekile ngoba ingakunikeza ukufinyelela ulwazi olusesikhathini samanje ngomdlavuza webele olwethulwa ochwepheshe emasimini abo.

Imihlangano ivame ukuba nombuzo ovulekile kanye nesikhathi sokuphendula ngokulandela izinkulumo, lapho ungathola khona izimpendulo zemibuzo onayo futhi ufunde eminye imibuzo ebuzwe ngabanye.

Ukuhambela inkomfa yomdlavuza wesifuba kuyindlela enhle yokuhlangana kanye nezinamba ezinkulu zabasindile, wabelane ngokuhlangenwe nakho, futhi banikeze ukuqonda, ukusekelwa kanye nethemba ukuthi kuphela abasindayo abanganikeza. Abaningi abasindile bangakwazi ukubona okuhlangenwe nakho okutholakala ekuhloleni komdlavuza wesifuba, njengokwelashwa nemiphumela emibi. Ukuhlanganyela nabanye abangakwazi ukulandisa kusiza ukunciphisa imizwa yokuzihlukanisa abaningi abanomuzwa wokubhekana nomthelela wokuthi umdlavuza webele uqhubeka nawo ekuphileni kwabo. Lokhu kuyiqiniso ikakhulu kulabo abathintekayo abanezifo zomdlavuza ezingavamile, ezifana nomdlavuza wesifuba wokuvuvukala , nomdlavuza wesifuba kathathu ongeke uvame ukuhlangana nabanye ngohlobo lwabo lomdlavuza webele.

Njengoba umdlavuza wesikhumba awuyona nje isifo esingokomzimba, singathinta izici eziningi zokuphila, hhayi kuphela ngesikhathi ukwelashwa okusebenzayo, kodwa uma ukwelashwa sekuphelile futhi sekuyisikhathi sokuqhubeka nokuphila. Akekho ongaqonda ukuthi kungcono kunomunye osindile.

Umdlavuza wesibeletho akusona isifo esisodwa ; akukwazi ukuba nesayizi eyodwa kufaka yonke indlela yokunakekelwa.

Ingqungquthela ye-LBBC yanikezela abafinyeleleka ukuba bafinyelele ezifundweni eziholwa ochwepheshe ababa nengxenye yamuva yokuthola ucwaningo, izinketho zokwelashwa ngabanye, kanye nekhwalithi eqondisiwe yokukhathazeka kwempilo ngenkathi ukwelashwa futhi njengosindile. Akukona kuphela ukuthi izethulo zabo zithandeka, basebenzisa izibuko kanye nesigamazwi esasilalele.

Izihloko zeSession

Ukurekhoda komsindo nezethulo ezivela ezikhathini ezikhethiwe ezihlokweni, ezibalwe ngezansi, kuzotholakala maduze ku-LBBC.ORG.

1. "Ukubuyekezwa Kwezokwelapha Ngokuqondene Nakho: I-Hormone Receptor Positive & HER2 I-Cancer Positive Breast," ngoJennifer L. Armstrong, MD, Paoli Hematology / OncologyAssociates

1. "Ukubuyekezwa Kwezokwelapha Ngokuqondene Nakho: I-Cancer Negative-Negative Breast," ngo-Melinda Telli, MD, iStamford University School of Medicine
2. "Ukubuyekezwa Kwezokwelapha Ngokuqondene Nakho: I-Metastatic Breast Cancer," ngo-Elizabeth Comen, MD, i-Medical Oncologist, iSikhumbuzo seSikhumbuzo se-Kettering Cancer Centre
3. "Ukuvivinya I-Genetic Today: Yiziphi Izifo Eziphilayo Ongasitshela zona," nguKara N. Maxwell, MD, PhD, Umqeqeshi Wezokwelapha, iYunivesithi yasePennsylvania
4. "Ukwenza Izinqumo Ngokuphathelene Nezokwelapha Zama-hormone Njengomfana osemusha: Izimpendulo Zemizila, Izindleko Nezokwelashwa," nguMarisa Gefen, MD, uMqondisi wezokwelapha, iMitholampilo yaseCityLife Neighborhood, noLori B. Ranallo, MSN, ARNP, Umhlengikazi we-Breast Oncology, University of I-Kansas Cancer Center
5. "Ukunakekela: Ukuzinakekela Abanakekeli," ngoGregory D. Garber, MSW, uLCSW, Dir. Imisebenzi Yokusekela Nge-Oncology, Isikhungo Sengculazi saseSidney Kimmel kuT Thomas Jefferson University
6. "Ukuphikelela: Ukuphila Ukuphila Okuhle Kakhulu," ngoJacci Thompson-Dodd, MA, MSSS, LASW, OSW-C, uMsunguli & CEO WeSpeakLoudly, LLC
7. "I-Canast Metastatic Triple-Negative Breast Breast: I-Round Discussion," uMelinda Telli, MD, iStamford University School of Medicine
8. "Masikhulume: Ukuphila ne-Cancer Triple-Negative Breast Cancer," ngo-Allison Nilsen, MSW, i-LCSW, wezeMpilo wezeMpilo, i-Celtic Healthcare
9. "I-Panel Perspective: I-Breast Reconstruction," yi-R. Brannon Claytor, MD, FACS, odokotela bamaPlastiki, uClaytor / Noone Plastic Surgery Institute, uWilliam L. Scarlett, i-DO, i-ACS, i-ACOS, i-FAACS, i-Puregist and Reconstructive Surgeon, i-Bucks County Aesthetic Isikhungo, ama-Panelists: Charmaine Chan, DO, uHelen Cooke noJackie Roth
10. "Imali Yansuku zonke: Impumelelo Yomdlavuza Webele Ngomnotho Wakho," ngoJoanna L Fawzy Moralez, ESQ., I-CEO I-Triage Cancer
11. "Ukusinda: Ukuphatha Ukusebenza Kwesikhathi Esivamile," uLori B. Ranallo, MSN, ARNP, Umhlengikazi we-Breast Oncology, University of Kansas Cancer Center
12. "Ukuphatha Imizwelo Ngokuzindla Ngengqondo," ngoCaroline Peterson, i-ATR-BC, i-LCP, uMqondisi, iSprimgboard Studio, Ukunakekelwa Okunakekelayo, Ithimba, Isikhungo Se-Cancer Abramson ePennsylvania Hospital, Penn Medicine
13. "Kusukela kuLabhu eya eMtholampilo: Okudingeka Ukwazi Ngokuvumelana Nokugunyazwa kwe-FDA," uJoe Reynolds, PhD, Isayensi Yezokwelapha kanye Nokuthuthukiswa Kwezidakamizwa, i-Merrimack, iNicrolas K. Tonks, i-PhD, i-FRS, i-Cold Spring Harbor Laboratory

UMgqibelo uvaliwe ngombhalo omkhulu kanye nombuzo nombuzo wokuphendula, ngaphakathi ngaphakathi: Ukwakha Isithombe Sengculazi Engcono , esakhishwa nguSabitha Pillai-Friedman, PhD, LCSW, CST. Kwabe sekulandelwa ukuphela komhlangano wokwamukela usuku kanye nelinye ithuba lokukhuluma nabanye abasindile, abethuli nababukiso.

NgeSonto, usuku lwesithathu lwenkomfa, lwaqala ngekusasa lasekuseni elilandelwa yi-closing keynote, "Ukwakhiwa Nokubuyisa Ukuzivocavoca Ngokwemvelo Emva Kwesifo Sekhanda," ngoJoni Miller, PT, DPT, CLT noBrianna Obert, MSPT, CLT, RYT.

Kulabo abajabulela i-yoga, iklasi yeqembu elilodwa lilandela i-Keynote. Ukwamukelwa kokuvala kulandelwe. Abaningi ababekhona, ababehlangana ndawonye njengabafokazi, manje behlelwe ukuhlala bexhumana nomunye ngemva kokubuyela ekhaya.

I-Living Beyond Breast Cancer History and Mission

Izincwadi ze-LBBC zithi, "Ngo-1991, kwakunezinsiza ezilinganiselwe kwabesifazane abaqede ukwelashwa okuyinhloko ngomdlavuza webele. Ukubhekana nalokhu, inhlangano yadalwa. Ukuphila Ngaphandle Kwesifo Se-Breast Cancer (LBBC) yinhlangano kazwelonke, engenzi inzuzo e-Philadelphia, lapho abesifazane abathintekayo ngumdlavuza wesifuba, bangakwazi ukuxhuma omunye nomunye ukwabelana ngolwazi olunembile nolula kalula endaweni exhasa futhi enakekelayo. Kusukela ngaleso sikhathi, i-LBBC ikhule ibe inhlangano enokwethenjelwa kakhulu yenarha ehlangabezana nezidingo zabo bonke abantu abaye babonwa ukuthi banezinhlobo zesifo somdlavuza webele.

Injongo ye-LBBC ukuxhuma abantu abanolwazi lomdlavuza webele lomuthi kanye nomphakathi wokusekela. Unyaka ngamunye baxhuma nabantu abangu-500 000+ abasanda kutholakala, kulabo abalashwa, labo abaphila nomdlavuza webele we-metastatic kanye nabesifazane namadoda anomlando wesifo somdlavuza webele.

Ukuphila Ngaphandle Kwezifo Zesibindi kusebenza nabachwepheshe bezokwelapha eziphezulu emhlabeni ukuba baqhubeke behlola isimo sezwe sokushintsha ukwelashwa komdlavuza webele. Ulwazi olufundwa kulokhu kuxhumana lukwazisa izinsiza ezintsha nezinsiza ezikhona ukuze kusize abantu bahambe endleleni yesifo sabo. "

Izwi elivela

Le ngqungquthela yabamba abasindile emazweni aseduze nasekude njengaseWashington State. Kwaba kuhle ukuhlangana nokukhuluma nabasindile bomdlavuza wesilisa wamabele. Ngaphandle kokuqukethwe kweseshini okuyoba nesithakazelo kubafundi abaningi, kunezikhathi ezibhekene nokukhathazeka okukhethekile kwalabo abatholakala benomdlavuza wesifuba kathathu, nabesifazane namadoda abahlala nomdlavuza webele we-metastatic.

Ngakhuluma nabesifazane abaningi kanye namanye amadoda ngesikhathi somhlangano. Abaningi babesindile, abanye babekhathalela abasindile. Bonke babelane ukuthi bajabula ngoba beza ngalokho ababekufundayo kanye nethuba lokukhuluma nabanye abaningi abathintekile ngumdlavuza webele.

I-LBBC inamakhomferensi amabili ngonyaka:

• I-Cancer Breast Namuhla: Ukwelashwa Kwamanye Abantu, Ukuhlangenwe Ngokwabelana Kwazo zonke izinhlobo nezinyathelo zomdlavuza webele
• Ukubambisana Kanye: Ingqungquthela ye- Metastatic Breast Cancer

Amakhasi ewebhu e-LBBC athatha ulwazi ngezenzakalo zabo eziningi, izinhlelo zezemfundo, nezinsizakalo ezisekelwa unyaka wonke. Usizo luyatholakala kumuntu, ku-intanethi, ngocingo, nasezincwadini zabo ezinzulu ezihlanganisa zonke izici zomdlavuza webele kusukela ekuxilongweni kuya ekuphileni njengomuntu osinda.

Ngisho nangemva kweminyaka yonke kusukela engozini yami yokuqala yamabele neyesibili, ngangijabulile ukuba yingxenye yeqembu labantu ababezimisele ukuxoxa ngendlela abajwayele ukubhekana ngayo nokuphila, njengabagcini bomdlavuza webele, kanye nezinguquko eziza nokuphila kwabo okusha .

Omunye wabangane bami betafula lesidlo sakusihlwa wachaza ukuthi ingqungquthela yayisho ukuthini kuye, ethi, "Ngingumuthi wamakhemikhali futhi ngingazizwa ngijabule. Ngangibuza ngempela ukuthi ngiza namhlanje, kodwa ngiyajabula kakhulu ukuthi ngiyenzile. Izikhathi zinikeza ulwazi engiludinga ukuzizwa ngilondekile ngokuba ngumlingani ekunakekeleni kwami. Ukuhlangana nokukhuluma nabesifazane abaningi kakhulu abahamba phambili kunami kuyandisa ukuzethemba kwami ​​mayelana nokwenza ukwelashwa nokulungiswa kuzo zonke izinguquko umdlavuza wesifuba oqhubekayo ukuwenza ekuphileni kwami. "

Uma uthola ukuthi unesifo somdlavuza webele, vakashela i-http: //www.lbbc.org/. Uzothola izinhlelo ezihambisana nezidingo zakho, kungakhathaliseki uhlobo lwakho nesigaba somdlavuza webele. Ulwazi olutholakalayo kusayithi ngokwayo, ezincwadini zamahhala ze-LBBC, kanye namabhasi wewebhu kuzothuthukisa ukuqonda kwakho komdlavuza wakho webele futhi ukwandise izinga lakho lokududuza lapho ubuza imibuzo yeqembu lakho lokunakekelwa. Uzothola ukwesekwa okudingayo nge-helpline yocingo, kanye / noma amaqembu asekela i-intanethi namaqembu angaphakathi-umuntu.

> Umthombo:

> Ukuphila Ngaphandle Kwenkomfa Ye-Cancer Breast, ePennsylvania Convention Centre, ngo-24 kuNhlangulana 2016