Isifo se-Parkinson (PD) yisifo esiyinkimbinkimbi sobuchopho esingabangela ukuthi kunciphise ikhono lokuthutha kodwa lihlobene nezinye izimpawu ezingezona izimoto ezifana nezinkinga zokulala, ukucindezeleka, ukuqothulwa nokulahlekelwa iphunga. Ukwengeza kwinkimbinkimbi yayo yiqiniso lokuthi eziningi zamanje zokwelapha ze-PD zinemiphumela emibi ekunciphiseni ukusetshenziswa kwazo.
Ngisho noma ososayensi sebezifundele kakhulu ekuqondeni i-biology ye-PD futhi basungula izindlela zokwelapha ezintsha ukuze baphathe izimpawu kangcono, kusekhona izinselele eziningi ezizungeze le nqubo-mgomo engathandeki futhi ekhubazayo ("ukufa kwamangqamuzana obuchopho").
Ekugcineni, sifuna ukwelashwa kweParkinson, futhi indlela yodwa yokuthola ukwelashwa kungukuthi kwenziwe ucwaningo nokuqwashisa okwengeziwe. Ngenkathi kunezinamba eziningi ezisekela ngokuqinile isifo sikaParkinson, kuvamile ukubuza ukuthi yikuphi okufanele ugxile kulo. Lokho kusho, nansi uhlu lwezizinda zikaParkinson ezibonakala zifanelekela ukusekelwa kwakho.
UMichael J. Fox Foundation
Umdlali okhuthazayo nommeli uMichael J. Fox wabelane ngendaba yakhe yokuphila ne-Parkinson kwiwebhusayithi yesisekelo. Futhi ngomdlandla ukhuthaza umgomo wakhe (kanye nesisekelo) oyinhloko yokuthola ukwelashwa kwe-PD.
Ucwaningo
Lesi sisekelo esiyimfihlo sisobala mayelana nomsebenzi wayo wokucwaninga futhi ngokuqondile ukuthi kuxhaswe kanjani imali-ngaphezu kwezingu-700 million zezigidi eziye zazinikela ekucwaningweni kwe-PD kuze kube yimanje, okwenza lesi sisekelo sibe semali enkulu kakhulu emhlabeni engeyona inzuzo yocwaningo lwe-PD.
Faka iqhaza
Enye indlela ongathola ngayo okuningi ukubandakanyeka noMichael J. Fox Foundation ngokuba yilungu leThimba Fox. Ithimba le-Fox luhlelo oluhle lokuxhaswa komphakathi lapho abantu behlela imicimbi ehlukahlukene yokuqoqa izimali, njengemiklamo yebhayisikili namakhonsathi, ukuphakamisa imali yokucwaninga kwe-PD.
Kukhona ngisho iqembu leqembu le-Team Fox Young Professional (YP) elisemadolobheni ayisithupha e-United States, naseToronto, eCanada. Leli qembu linabantwana abaneminyaka engu-20 kuya kwezingama-30 abanezizinda ezihlukahlukene zomsebenzi, iningi labo elithandekayo noPasinson . Lezi zisebenzi zithatha indima ebalulekile yobuholi futhi zihlale zibophezele ekukhuliseni imali yokucwaninga.
Izinsiza
UMichael J. Fox Foundation unikeza ulwazi oluningi nge-PD. Elinye ithuluzi lemfundo elisha eliyisebenzisayo liyividiyo ethi "I-Foxfeed Blog" efaka isazi sezinzwa zezinzwa kanye nesifo sezinkinga zokunyakaza esithinta izihloko ezihlobene ne-PD.
I-National Parkinson Foundation
Eyasungulwa ngawo-1950, iNational Parkinson Foundation, noma i-NPF, ihlose ukuthuthukisa izimpilo zalabo abaphila nesifo sikaParkinson.
Ucwaningo
Ucwaningo olunzulu oluqhubekayo yiProjekthi yePhrojekthi ye-NPF ka-Parkinson enabalinganiselwa abangaba ngu-10 000. Inhloso yalolu cwaningo ukuhlola izici eziningana ezithinta indlela umuntu ahlala ngayo nesifo. Ucwaningo lubandakanya lokhu okulandelayo:
- Ukuqonda izinzuzo zokuzivocavoca ku-PD
- Ukufunda indima yokucindezeleka nokukhathazeka empilweni yonke yomuntu ophethe i-PD
- Ukuhlaziya ukuthi kungani i-PD iphethwe ngokuhlukile kuncike lapho umuntu ethola ukunakekelwa khona
Faka iqhaza
Enye indlela yokusiza i-National Parkinson Foundation iphakamisa imali ngokuqala i-Team Hope fundraiser, okusho ukuthi uhlela umcimbi wakho noma uhlanganyele emncintiswaneni wokukhuthazela.
Wena nabathandekayo bakho nabo bangabamba iqhaza e-Day Moving, eqhutshwa emadolobheni ahlukahlukene e-United States. Lesi senzakalo sezimali sikhuthaza noma yiluphi uhlobo "lokunyakaza" njenge-yoga, tai, pilates, nokuhamba.
Izinsiza
Imithombo ebalulekile ehlinzekwa nge-NPF yizahluko zayo zendawo ze-NPF ezinikezela ukufinyelela kumaqembu asekela nokuzivocavoca kanye namakilasi empilo ngaphakathi komphakathi womuntu.
Ngaphezu kwalokho, ngokusebenzisa iwebhusayithi yabo, ungathola ama-NPF Centres of Excellence asezindaweni zonke. Lezi zikhungo ziyimitholampilo yezokwelapha ezisezingeni eliphezulu ezihlinzeka ukunakekelwa kwalabo abaneParkinson. Baphinde bahlanganyele nocwaningo oluhlobene noPasinson.
Eqinisweni, ezinye zalezi zikhungo zinikeza ukuvivinywa kokwelapha umuntu onesifo sikaParkinson angangena kuso, uma kufanelekile. Ngaphezu kwalokho, izikhungo ezithile zinikeza izindlela zokwelashwa ezikhethekile zikaParkinson, njengokwelashwa ngokomzimba, ukwelashwa komsebenzi, ukwelapha izinkulumo, nokweluleka. Ezinye izikhungo zihlinzeka ngemithi yokwelapha i-PD, njengokwakheka kobuchopho obujulile, kanye nenqubo efaka ukuletha i-carbidopa / levodopa (i-Duopa) nge-tube emathunjini amancane.
I-American Parkinson Disease Association
I-American Parkinson Disease Association, noma i-APDA, yasungulwa ngo-1961 futhi isetshenzisiwe ngaphezu kwezigidi eziyizigidi eziyizigidi ezingu-170 ekuhlinzekeni imfundo, ukugqugquzela ukuqwashisa, ukusekela ucwaningo nokunikeza izinsizakalo kubantu abahlala ne-PD.
Ucwaningo
I-APDA ixhaswe ngemali engu-R46 million ekucwaningweni kuze kube yimanje futhi igcina izikhungo eziyisishiyagalombili zokuPhenya okuPhezulu ezitholakala ezikhungweni ezinkulu zezokwelapha e-United States. Njalo ngonyaka, futhi banikezela izibonelelo zocwaningo ngabanye kanye nobudlelwane kubososayensi abacwaninga isifo sikaParkinson.
Faka iqhaza
I-ADPA inikeza i-Optimism Walk, i-fundraiser ekhuthaza ukuhamba (phakathi kwamamayela angaba ngu-3) ezindaweni ezihlukahlukene ezweni lonke.
Ungase futhi uvakashele iwebhusayithi yabo ukuze ufunde Izindaba zabantu zengqondo. Lezi zindaba yizindaba ezihamba phambili zabantu zokuthi bafunde kanjani ukuhlala kahle futhi baphile kahle nge-PD. Futhi wamukelekile ukwabelana ngendaba yakho siqu engaba usizo kwabanye abantu.
Izinsiza
Njengezinye izisekelo, imithombo yezemfundo iningi futhi ihlanganisa:
- Isistimu yesahluko lonke kanye nezikhungo zolwazi nokudluliselwa (I & R)
- Izincwajana ezingaphezu kuka-30 nezincwajana ezikhululekile futhi zingathunyelwa ekhaya lakho noma zifunde kukhompyutha
- Iphephandaba lonyaka
- I-hotline yamahhala (888-606-1688) ephethwe ngumhlinzeki wezempilo onelayisense ohlinzeka ngolwazi mayelana nokuzivocavoca e-PD
I-Parkinson's Disease Foundation
I-Parkinson's Disease Foundation, noma i-PDF, iveza umsebenzi wabo wokugcina njengenye yokuthola imbangela yokugula nesifo se-Parkinson.
Ucwaningo
I-PDF okwamanje isekela izinhlelo ezingaphezu kuka-40 zesayensi namaphrojekthi we-$ 5 million ngaphezulu. Ngokuqondile, bayeseka ukucwaninga kwezikhungo zemithi ezintathu ezithandekayo zemfundo:
- I-Columbia University Medical Center (eNew York, NY)
- I-Rush University Medical Centre (Chicago, IL)
- I-Weill Cornell Medical Center (eNew York, NY)
Banikezela ngemali yokucwaninga kanye nemiklomelo yokuthuthukiswa komsebenzi ukukhetha ososayensi nabalingani bezokwelapha abanesithakazelo ku-PD.
Faka iqhaza
Enye indlela yokuzibandakanya ne-Parkinson's Disease Foundation ukukhombisa izingxenye zeProjekthi ye-Quilt ye-Parkinson. Leli quilt ladalwa ngabantu abangaphezu kuka-600 abahlanganyela nakho kwabo nge-PD ngokusebenzisa imidwebo, izithombe, amagama, nezimpawu. Manje, ungaqasha amapoli we-quilt ukuqwashisa emphakathini wakho.
Enye indlela enengqondo yokuhileleka ukuhlanganyela indaba yakho uma une-PD noma ukhulisa izimali njenge-Champion PDF.
Izinsiza
I-PDF inikeza izinsiza eziningi ezicatshangelwe kulabo abane-PD namalungu omndeni wabo, abangani, kanye / noma abanakekeli. Ezinye zazo zihlanganisa:
- I-helpline kazwelonke eyenziwa ochwepheshe bakaParkinson abatholakala kulabo abahlala nesimo nabathandekayo babo
- A "ukuqeqesha umqeqeshi" Uhlelo lwabahlengikazi kanye nodokotela wezokwelapha ukuthuthukisa ukunakekelwa kwabantu abane-Parkinson
- Ukubandakanya amaminithi e-intanethi kunoma ubani ofuna ukufunda nge-Parkinson
Izwi elivela
Yiqiniso, kunezinsiza eziningi zokusiza, izinhlangano, amaqembu okukhuthaza, kanye nemiphakathi esekela isifo sikaParkinson kunelawo okushiwo lapha. Kodwa, usuvele wenza ngokuzikhandla kwakho ngokubheka isisekelo esithile esifanelana nokulindela kwakho. (Uma lokhu kungenjalo, sicela uqhubeke ucinga.)
Khumbula, ukukhetha ukusebenza ngesisekelo esithile kuyindlela embili. Nakuba unikeza isikhathi sakho esiyigugu, imali, namandla enhlanganweni, qiniseka ukuthi uzothola okuthile ngokubuyisela-mhlawumbe ulwazi, ubungane obusha, izinkumbulo ezithandekayo, noma nje umqondo wokuthula.
> Umthombo:
> Schrag A, Horsfall L, Walters K, Noyce A, Petersen I. Izethulo zesandulela-ngculazi zesifo sikaPasinson ekunakekelweni okuyinhloko: isifundo sokulawula icala. I-Lancet Neurol. 2015 Jan; 14 (1): 57-64.