Izindaba Zethemba, Amandla, Nokusinda
Ngiyazi lapho ngithola ukuthi nginomdlavuza, kanti futhi uma amanye amalungu omndeni nabangane athola ukuthi unomdlavuza, yeka ukuthi kududuzeka kanjani ukuzwa izindaba zabanye ababebhekene nezinselele ezifanayo. Njalo uhambo oluhambisana nomdlavuza luhlukile, kodwa imibuzo eminingi, imizwa, ukwesaba, kanye nokuhle, "izinsimbi zesiliva," zihlanganyela ngentambo evamile.
Kungani Lezi Zindaba Zomdlavuza We-Lung Ziletha Induduzo?
Ukuzwa izindaba zabanye kungaduduza ngezindlela eziningana:
- Ungase uzizwe ungenasese. Ngokuvamile kuyangimangaza ukuthi bambalwa abantu abanomdlavuza wamaphaphu abaye bahlangana nomunye umuntu onomdlavuza wamaphaphu. Ngokungafani nomdlavuza webele okhonjiswe ngesigqoko se-pink nje-cishe-noma yini kusuka kumanqamu kuya kumhlanganisi, umdlavuza wamaphaphu awubonakali kangako. Kodwa ukuntuleka kombala kuyadukisa. Umdlavuza we-Lung iyimbangela ehamba phambili yokufa komdlavuza kokubili amadoda nabesifazane e-United States.
- Ungabhekana nenhlamba yomdlavuza wamaphaphu wazi ukuthi awodwa. Kungakhathaliseki ukuthi ubhema noma cha, amagama okuqala avela abaningi uma ufunda mayelana nokuthola ukuthi unomdlavuza wabuhlungu kanjani: " Wayekhathele isikhathi esingakanani? " Njengoba nje ukwazi ukuthi abanye baye baphathwa ngendlela ehlukile kunezo, njengesifo somdlavuza webele, kungaba induduzo.
- Ungafunda ukuthi abanye bathole kanjani ithemba ngisho nasezimo ezimbi kakhulu.
- Ungafunda ukuthi abanye bathole kanjani incazelo ekuhloleni kwabo, nokuthi ngezinye izikhathi lokhu kuvulwe iziteshi ezintsha zokudala, ukukhula, nokomoya.
- Kungaba isikhumbuzo sokuthi uhambo lomdlavuza wonke umuntu luhlukile. Kungani lokhu kusiza? Njengomdlavuza womdlavuza, ngivame ukuzwa abantu abanenhloso enhle beqhathanisa uhambo lwami nolunye nolunye. Akugcini nje lokho kungenza uzizwe ungaqondakali kangako, kodwa kuhlaziya imicabango yakho nemizwa yakho.
- Nakuba kungengenalo iseluleko seqembu lakho lokunakekelwa kwezempilo, ngezinye izikhathi abantu bafunda ngezindlela ezintsha zokwelashwa, noma izindlela ezingcono zokuphatha nokubhekana nezimpawu zomdlavuza.
Imithombo Yezindaba
Kunezinhlangano eziningana eziye zahlanganisa izindaba zabantu abaphila nomdlavuza wamaphaphu, abathandekayo babo, nabanakekeli. Kukhona nabantu ababelana ngezindaba zabo eziqhubekayo nge-blogs, ngokuvumela abanye ithuba lokuthi "yebo - omunye umuntu uzizwa kanjalo ngaleyo ndlela!" Ngifake ezinye izintandokazi zami lapha. (Uma ngiphuthelwe inhlangano yakho, ibhulogi, noma indaba yomuntu siqu ku-intanethi, ngicela ungithumelele i-imeyili ukuze ngikwazi ukuqinisekisa ukuthi abanye bakuthola futhi.) Kodwa ngaphambi kokuqala, ngifuna ukwabelana ngendaba yomdlavuza ebaluleke kakhulu kimi - kanti enye ngithwala nami lapho ngikhuluma nabantu ababhekana nomdlavuza. Ibhalwe ngumngani wami u-Alison Doyle, uMhlahlandlela wethu wokufuna uJobe:
Izindaba zeThemba
I-Lung Cancer Alliance inikeza "Izindaba zeThemba" - indawo lapho ungafunda khona izindaba zeqembu elihlukene labantu abaphila nomdlavuza wamaphaphu, futhi ulalele okubasizile ukuba basinde - baze baphumelele. Uma unesithakazelo, umenywa ukuba uthumele i-imeyili indaba yakho futhi ukhulume ngezifundo zokuphila nokuthi usho ukuthini ohambweni lwakho kuze kube manje nomdlavuza.
Ukufunda lezi zindaba kubuyele emuva izinkumbulo zami lapho ngitholwa kuqala. Ukwethuka kokuxilongwa. Ubunzima ekukwamukeleni lokhu kwenzeka empeleni kuwe, hhayi omunye umuntu.
Kukhona izindaba zalokho okufana nokubekwa kwesilingo somtholampilo ngomuthi omusha - futhi lapho ufunda indaba yendoda eyodwa mayelana nomdlavuza wamaphaphu we-ALK Ngiyaqiniseka ukuthi abaningi benu bayothola isikhuthazo ekuzwa ukuthi isibonelo sokuphila kwangempela ukunakekelwa kwezokwelapha kuyenzeka ngomdlavuza wamaphaphu. Kuyakhuthaza nokuzwa izindaba zabantu abanezifo zamaphaphu eziphambili (njengesigaba 3B nesigaba 4) abaphila nezinyanga ezikhulayo, iminyaka, ngisho nangaphezulu kweminyaka eyishumi ngaphezu kwalokho izibalo ezizobikezela.
Abanye abantu bakhuluma ngokushaqeka (kanye nokuhlambalaza) kokuthuthukisa umdlavuza wamaphaphu njengomuntu ongabhemi. Nakuba kuvamile - amaphesenti angu-20 abesifazane abanomdlavuza wamaphaphu abakaze babheme - kubonakala sengathi isithombe somphakathi sihlukile.
Okungenakuphikiswa ukuthi ukuthi umdlavuza wamaphaphu ushintsha abantu. Abanye abantu baba yizimvo zomdlavuza wamaphaphu. Abanye bakhula ngokujulile ngokomoya. Futhi abanye abantu bathatha imisebenzi emisha efana nomdwebo wamanzi ( umuthi wokwelashwa womdlavuza uye watholakala ukuthi unezinzuzo ezithile.) Kwabanye abantu, ukuhlala njengabazi ukuthi bazofa bavumela ukuba baphile impilo ngokugcwele. Ukufunda lezi zindaba ngokuqinisekile kwangenza ngazisa umzuzu ngamunye kancane kancane.
- Izindaba zeThemba
Izindaba Eziningi Nge-Cancer Lung
Kunezinye izindlela ongazwa ngazo izindaba bese wabelana ngomdlavuza wamaphaphu. Abanye abantu babhala amabhulogi mayelana nohambo lwabo. Bheka enye yalezi blogs zomdlavuza we-pulp lungumgogodla kanye nemiphakathi yokusekela kuyindlela enhle yokuxhuma nabanye.Kunezincwadi ezivula iwindi empilweni yabantu abanomdlavuza wamaphaphu nabanakekeli babo. Enye yezintandokazi zethu i-Cancer Journey: Umbono womnakekeli ovela esihlalweni somgibeli nguCynthia Siegfried otshela indaba yakhe ukuthi kunjani ukuthandwa ngumdlavuza wamaphaphu.
Imithombo:
I-Lung Cancer Alliance. Ifinyelele ngo-08/07/15. http://www.lungcanceralliance.org/
LUNGevity. Ifinyelele ngo-11/02/14. http://events.lungevity.org/site/PageServer