Lapho isifo sofuba sithinta ukuthuthukiswa kwengane noma indlela yokuphila
Uma ingane izalwa, abazali bavame ukuba nezinhlobonhlobo zamathemba namaphupho ngekusasa. Ukulungiswa kwezindaba zanoma yiluphi uhlobo lwe-disorder yezokwelapha kukhonsa inhliziyo, kodwa ikakhulukazi uma ingane ingacabangi noma ikhule ngendlela evamile. Ngenkathi ukukhathazeka okuningi kokuthungatha kungaba nomphumela omuhle ekugcineni, ezinye izifo zesifo sezingane zithinta kakhulu futhi zihambisana nokukhubazeka kokufunda noma ukufa ngokushesha.
Nanka amanye amaqiniso ayisisekelo mayelana nezinkinga ezimbalwa zokuhlukunyezwa okubonakalayo ezinganeni.
I-Encephalopathy yaseMyoclonic yasekuqaleni
Ukuxilongwa kwe-myoclonic yokuqala kuhlotshaniswa ne-myoclonus, isisindo esisheshayo se-muscle esifika ekuqaleni kwasebuntwaneni. I-electroencephalogram (i-EEG) ayijwayelekile kakhulu kulezi zimo. Ngokudabukisayo, izinsana zihlala zithembele ngokuphelele kwabanye, futhi ngaphezu kwengxenye kungenzeka ukuthi bafe ngonyaka wokuqala wokuphila.
I-Early Childhood Epileptic Encephalopathy
Ukuphelelwa yisifo esithathelana kakhulu nesifo sofuba, esaziwa nangokuthi i-Ohtahara syndrome, kuthinta izingane uma sekusele amasonto ambalwa noma izinyanga ezimbalwa. Ukuhlukumezeka kuvamile futhi kuvame ukuphazamiseka . I-ohtahara syndrome inephethini ejwayelekile ye-EEG esiza ekuxilongweni. Labo abasinda kulesi sifo bangase babe nokukhubazeka kakhulu.
I-West Syndrome
I-West Syndrome ibizwa ngokuthi udokotela waseNgilandi uWilliam James West, owachaza lesi sifo ngo-1841. I-West Syndrome ihlotshaniswa ne-classic triad ye-spasms spasms, iphethini elingavamile le-EEG elibizwa ngokuthi i-hypsarrhythmia, nokulawulwa kwentuthuko.
I-West syndrome iyenzeka cishe eyodwa ngonyaka ka-1900 kuya kwezingu-1 kwabantwana abangu-3900. Imithi iyatholakala engayiphatha lesi sifo, kuhlanganise i- vigabatrin noma i-corticotropin. Ngisho nalezi zidakamizwa ngokuvamile aziba nomthelela omkhulu, noma kunjalo, futhi ukuchazwa kwesibindi ngokuvamile kuhlala kuhlwempu ngaphandle uma kutholakala imbangela ethize futhi eguquguqukayo ye-syndrome.
Ukuhlukumezeka Okuhlukumezayo Kwengxenye Eyingane Encane
Lesi sifo se-seizure syndrome sitholakala ezinyangeni eziyisikhombisa zokuqala zokuphila. Ukugubha ngokuvamile kungavamile ukuqala, bese ukwandisa kuze kube yilapho kungase kube ngu-50 ngosuku. Ngokufanayo, ukugubha kuyokwanda esikhathini eside, ukusuka kumasekhondi ubude kuya emaminithi. I-EEG izobonakala ibonisa ukuhlukunyezwa okuqala ezindaweni ezahlukene zobuchopho, kunokuba njalo kuqale ngendlela efanayo. Ukugubha ngokuvamile kunzima kakhulu noma akunakwenzeka ukulawula, futhi ukuthuthukiswa kwengane kunzima.
I-Dravet Syndrome
I-Dravet Syndrome iqala ngomnyaka wokuqala wokuphila kosana olwaludlulile ngaphambili. Ukuthoma kokuqala kuvame ukubangelwa umkhuhlane. Njengoba isikhathi sidlula, ingane inezinhlobo eziningi zokuqothulwa, okubandakanya ukugubha okuvamile, ukuthunjwa okuyingxenye, kanye nama-myoclonic jerks. I-EEG yokuqala ijwayelekile kepha ihamba kancane. Phakathi kweminyaka eyi-1 no-4, ingane ilahlekelwa ngamakhono afunde ngaphambilini. Ukuhlukunyezwa kuyaba yinoma yiluphi uhlobo lwezokwelapha, kanti amaphesenti angama-16 kuya kwangu-18 ezingane afa, ngokuvamile ngenxa yesimo se-epilepticus , ukucwiliswa, noma ukufa okungazelelwe ngokucacile ekufeni kwesisu (SUDEP).
Ukubhekana Ne-Epilepsy Eyisifo Sengane Esincane
Uma ingane yakho inendlela ejulile yokuthunjwa njengalezi ezingenhla, ungase uzizwe ungenalutho.
Iningi labazali lingathanda ukubhekana nanoma yiliphi ngokwabo kunokuba libukele ingane yabo ibhekene nento efana nesithuthwane ngokulibaziseka kokuthuthukiswa. Kubalulekile ukukhumbula ukuthi, ngenxa yokuthi isifo singase singabi nomuthi, lokho akusho ukuthi akukho usizo olutholakala kuwe.
- Khuluma nodokotela wakho wezingane bese uzifundisa ngokugula kwengane yakho. Lokhu kungasiza ekunciphiseni ukwesaba ukungajwayelekile, futhi kukusize uhlele lokho okudingwa ngumntanakho.
- Fundisa abangani namalungu omndeni ukuze bazi ukuthi benzeni uma ingane yakho ishaywa.
- Zizinakekele, uphumule futhi ucabange kahle. Izingane zithatha izinkulumo zazo kubazali bazo. Uma ukhululekile, ingane yakho izothatha lokho futhi ingase ibe lula futhi ijabule futhi.
- Khuluma nabanye abantu abaye bahamba okuthile okufanayo. Cabanga ngokujoyina iqembu lokusekela. Ngaphandle kokukhuluma nje ngemizwa yakho, ungathola amathiphu kanye nezeluleko eziwusizo.
Ukuba nengane enokukhubazeka okukhulu okuthuthukako kuyinselela ngokukhethekile futhi kungaba nomzwelo kakhulu, kodwa kungenjalo ngaphandle kwemivuzo. Usenayo ingane yakho, eyingqayizivele ngokuphelele, okukudingayo kakhulu kunanoma yimuphi omunye umntwana angathanda - futhi mhlawumbe ngaphezulu. Akekho ongathanda ukuba ingane yakhe ibe nesifo esinjalo. Kodwa abazali abaningi engiwakhulume nabo banomuzwa wokuthi ukubonga kwabo ngenxa yokuma umntwana wabo kunzima kakhulu ngisho nemithwalo yokubambezeleka kokuthuthukiswa noma ukufa ngokushesha.
Imithombo:
U-Elaine Wirrell, uKatherine C. Nickels. I-Continuum: Isithuthwane, Umqulu 16, Inombolo 3, June 2010.
UGerald M Finichel. I-Neurology Yezokwelapha Zomtholampilo. I-6th Edition. Sanders-Elsevier, 2009.
QAPHELA: Ulwazi olukulesi sayithi lunguzinhloso zemfundo kuphela. Akufanele isetshenziswe njengengxenye yokunakekelwa ngumuntu udokotela olayisenisi. Sicela ubheke udokotela wakho ukuze ahlolwe futhi aphathwe noma yiziphi izimpawu noma isimo sezokwelapha .