I-J-Pouch Ingahlinzeka Ngethuba Lomgomo Othuthukisiwe Wokuphila
Ngivame ukubuzwa mayelana nokuhlinzwa kwami kwe- j-poch , enganginayo ngo-1999 ngineminyaka engama-26. Ngaphambi kokuhlinzwa kwami kokuqala, ngangingesabi futhi ngikhulume nezinye iziguli ezazibe nokuhlinzwa kwe-j-poch. Abanye abantu bangase babe nokuzikhethela ukuthi bangaba yini ukuhlinzeka noma cha ukuhlinzwa: kimi okwakungokwesidingo sezokwelapha. Ukuhlinzwa kwe-J-pouch ngezinye izikhathi kwenziwa ngezinyathelo ezingu-1 noma izinyathelo ezingu-3, kodwa kanengi kuzinyathelo ezimbili, okuyinto ukuhlinzwa enganginakho. Ukuhlinzwa kwami kwaqhutshwa esibhedlela sendawo ngodokotela ohlinzayo wasekhaya, owayesebenze kuphela ama-pocket angu-5 ngaphambi kweyami. Ngezansi i-akhawunti ngokuqondene nesipiliyoni sami ngokuhlinzwa okwenziwa nge-j-pouch, nakuba ngingeze ezinye izakhi nolwazi ukuze ngibe yisisombululo esibanzi kulabo abacabangela noma ababhekene nokuhlinzwa ukuze baphathe isifo sabo sochungechunge lwe-ulcerative.
Izinsuku Okungeke Ziphenduke Emakamelo Okugeza
Ngivuka ekuseni ukuzwa ukucindezeleka nokugcwala e-j-poch yami. Iningi lekusasa liqala ngale ndlela, kodwa ngiyilisebenzisa. Kukhona ukungathandeki, kodwa akufani nokuphuthuma engangikuzwa nge-ulcerative colitis. Ngingazibheka kancane kancane umuzwa, uma ngakhetha, nakuba ngabe kungangakhululekile ngize ngiye endlini yokugezela.
Izinsuku ezine-ulcerative colitis zaqala ukuba imemori ngalesi sikhathi, njengoba ngingena emgumbini omusha womzimba wami. Ukuhlinzwa kokuqala (kokubili) kwakunzima: Ngangaphansi kwe-anesthesia amahora amaningana futhi ngiphakamiswa nge- ileostomy yesikhashana . Ukubuyiselwa okwakuyisikhathi eside, ngingekho emsebenzini amaviki ayisithupha, kodwa kwakungenasiphelo futhi ngathuthukisa usuku ngalunye.
Nginesibazi esikhulu esivela phezulu ngenhla yangasese yangasese, esingazange ngiphulukise njengokungathi ngangikuthanda, ikakhulukazi ngenxa ye- prednisone engangiyithatha ngaphambi kokuhlinzwa kwami.
Angikwazi ukususa i-prednisone ngaphambi kwesinyathelo sokuqala se-j-isikhwama njengoba udokotela wami ohlinzayo wayethemba: ngaso sonke isikhathi sazama ukwehla kakhulu ukuphuma kwegazi kusuka ku-ulcerative colitis yami kuzoqala futhi. Ngenxa yalokho, ekugcineni ngakwazi ukwehlisa phansi emva kokuhlinzwa kwami. Angijabuli ngesikhala ngoba ngisemncane, kodwa ngicabanga ukuthi ukuphela kwezinsuku zami zebhayisikili kuyinani elincane lokukhokha.
'Ostomy' Akuyona Izwi Elimangalisa
I-ileostomy yayingeyona neze engangiyilindele. Ngemuva kweminyaka eminingi ye-ulcerative colitis futhi ngizibuza ukuthi ngabe isifo sohudo sizohlasela nini futhi lapho ngidinga ukugezela ngokusheshisa, i-ileostomy yayinjengenkululeko yami futhi. Ngangihamba futhi ngakhumula isikhwama sami se- ostomy lapho sigcwele. Angizange ngishintshe ikhabethe lami nhlobo - ngangigqoke zonke izingubo ezifanayo engangizenza phambi kwe-ileostomy yami. Ngaqala ukwandisa ukudla kwami , nakuba ngangiqaphele ukulandela iziqondiso zami ohlinzayo futhi ngigweme ukuguqulwa njengamantongomane noma i-popcorn. Ngaze ngaqala ukubeka isisindo, okokuqala ngukuphila kwami omdala. Angikaze ngibe nokushaya izinyanga ezi-3 ngine-ileostomy yami. Angicabangi ukuthi nginekhono elikhulu ekuthinteni umshini wami we-ostomy, kodwa ngakho-ke angizange ngibe nezimpikiswano noma izigameko ezilulazayo.
Ukushintsha umshini wami we-ileostomy cishe kabili ngeviki waba yingxenye yesimiso sami. I- stoma yami yaba ingxenye nje yomzimba wami. Kwakubonakala sengathi kuyinqaba, uma ngicabanga ngakho kakhulu. Phela, i-stoma iyingxenye yamathumbu akho, futhi yayingaphandle komzimba wami! Kodwa, lokhu kwakungukuhlinzwa okwangivumela ukuthi ngiphile, ngithemba isikhathi eside kakhulu. Ngaphandle kwalo, i- dysplasia namakhulu ama-polyps atholakala ekoloni yami kungenzeka ukuthi ibangele umdlavuza wekoloni nomphumela omubi kimi.
Umhlengikazi wami we- enterostomal (ET) wayemangalisa. Ngahlangana naye ngaphambi kokuhlinzwa kwami kokuqala, futhi wangisiza ekunqumeni ukubekwa kwesimo sami. Esimweni esiphuthumayo, kungenzeka ukuthi i-stoma ibekwe lapho udokotela ohlinzayo ecabanga ukuthi kuyoba ngcono, kodwa nginelungelo lokuba nesikhathi sokulungiselela. Umhlengikazi wami we-ET wangicela mayelana nendlela yami yokuphila kanye nezinhlobo zezembatho engangizigqoke, futhi sanquma ndawonye ukuthi ngizobeka kuphi i-stoma yami. I-anatomy ibuye iyingxenye ekubekeni kwe-stoma - ngatshelwa ukuthi imizimba yabantu nemisipha yabanye behlukile futhi ukuthi ngesinye isikhathi i-stoma ayikwazanga ukufakwa endaweni isiguli esithandayo.
Endabeni yami, izinto zenzeke kahle, futhi umhlengikazi wami we-ET wasebenzisa u-Sharpie ukumaka indawo engcono kakhulu esiswini sami se-stoma yami.
Iya "Ngokuvamile" futhi
Ngesikhathi ngilungele isigaba sesibili sokuhlinzwa kwami kwe-j-poch (ukuthatha phansi, noma ukuguqulwa kwe-ileostomy), ngangikhathazeka kakhulu ngokungena ekuhlinzwa. Ngangizizwa nginomusa! I-ileostomy yayingeyona into enkulu! Ngabe ngifuna ngempela ukudlula enye inqubo yokuhlinzwa nokubuyiselwa? Kodwa eqinisweni, ukuhlinzwa kwesibili kwakungekho ndawo eseduze kakhulu njengeyokuqala, futhi isikhathi sokutakula sasifushane kakhulu. Ngangingasebenzi emasontweni amabili kuphela futhi nginesidingo esincane kakhulu semithi yobuhlungu. Into emangalisa kakhulu yayisetshenziselwa i-j-isikhwama esisha. Yebo, kwadingeka ukuba "ngiyidle" izikhathi eziningana ngosuku, kodwa lokho akuzange kungikhathaze nakancane. Ngiyazi abantu abaningi banenkinga mayelana nokuya endlini yokugezela izikhathi eziningana emva kokuhlinzwa kwabo kunokuba ngaphambi kokuhlinzwa kwabo, kodwa kimi okwakungeke kube yinkinga. I-ulcerative colitis yami yayibheke njengento eqinile, futhi ngesikhatsi ngiphinde ngithole ukuhlinzwa kwami kokuqala ngangizizwa kangcono kunalokho engakwenza ngenkathi i-colitis yami isesimweni esibi kakhulu.
Ekuqaleni ukuhamba kwami kwamathumba nge-j-poch yami kwakunamafutha futhi, iqiniso liyakutshelwe, libuhlungu . Bashisa. Kodwa ngifunde masinyane ukuthi yikuphi ukudla okukugwema: ukudla okuneziphuzo, ukudla okuthosiwe, amafutha amaningi, i-caffeine kakhulu. Ngangibuye nginezinye izindlela eziningi zokugcina ubuhlungu nokushisa okungenani: ukusebenzisa i-barrier cream engezansi, ngisebenzisa ama-wet wipes esikhundleni sephepha langasese, futhi ngidla ukudla okungase kwandise isitokisi sami, njengebhokisi le-peanut noma amazambane. Udokotela wami ohlinzayo wanginika iziqondiso ezimbalwa mayelana nalezi zinto, kodwa ezinye zazo ngazifundela ngephutha nangesiphambeko, ngoba wonke umuntu uhlukile uma kuziwa ekudleni. Kuthathe isikhathi sokuba isikhumba sami se-perianal siphenduke futhi ukuvutha ukume. Lapho ngithola ukudla kwami ngaphansi kokulawula, isitokisi sami saqala ukuqina, futhi ngangisendlini yokugezela kancane kancane. Eqinisweni, noma nini lapho ngibona udokotela wami ohlinzayo ebuza ukuthi zingaki izinambuzane zokuhamba nginezinsuku, futhi ngokuthembeka angizilandeli.
Ukunyakaza kwamathumbu kimi kugcina kunomsindo, kodwa ngiye ngazizwa nginamahloni ngabo. Ukuhlinzwa ngangiyilondolozile impilo yami, nakuba yashintsha isisu sami kuze kube phakade. Uma nginakekele kakhulu ekudleni kwami ngingaba nezihlalo eziseduze, kodwa ngokuvamile anginakekeli ngokudla kwami. Ngangine-ulcerative colitis iminyaka engu-10, ngezinye izikhathi ngiphila ngaphandle kwe-gelatin nomhluzi, (nangesikhathi esisodwa esibhedlele esibhedlela esingenakulibaleka, akukho lutho, ngisho namanzi) futhi manje ngikwazi ukudla, ukudla kwangempela, futhi, angifuni ukuzithoba ekudleni nasekudleni. Nginomkhawulo - Angisoze ngidla isaladi ngamantongomane okumele ilandelwe yi-popcorn chaser - kodwa ngiyakwazi ukujabulela ukudla okuningi namuhla ukuthi angikaze ngicabange ukudla ezilwaneni zami zesilonda.
Kodwa Ingabe Lokhu "Umuthi"?
Abantu bavame ukukhuluma nge-j-pouch ukuhlinzwa njengokuthi "ukwelashwa" kwe-ulcerative colitis. Angizizwa sengathi lena incazelo enembile. Ukukhishwa kwesigungu esikhulu kubhekwa kanjani ngokuthi "ukwelashwa"? Kuye, ukwelashwa kungaba ukuphulukiswa kwamathumbu nokuphela kwezimpawu. Ikusasa le-j-isikhwama sami asikaziwa kimi. Ngingaba omunye walabo abakha pouchitis : isimo esingaqondakali esibangela izimpawu ezifana nomkhuhlane kanye nesifo sohudo. I-Pouchitis ivame ukuphathwa nge- probiotics nemithi elwa namagciwane, kodwa futhi ibuye ibuye ibuye. Udokotela wami ohlinzayo naye akaqiniseki uma ngisazokwazi ukukhululeka ezinkingeni ezinjengezivimbela noma ngisho nezimo ezingaphezulu kwamathumbu ezingakwazi ukuhamba ngokuhambisana nesifo sofuba (IBD) esinjengesi- arthritis .
Epilogue
Ngiyazi ukuthi umgwaqo wami kusuka ku-ulcerative colitis kuya ku-j-isikhwama ube yinto elula kakhulu. Lokhu ngibonisa ikhono leqembu lami lokuhlinzeka, kodwa futhi nokuzimisela kwami ukulandela imiyalelo yami yokuhlinza encwadini. Ngiye ngahlangana nabanye abaningi abajabule ngamapayipi abo, kodwa nami ngihlangane nalabo abalahlekelwe ama-pocket abo ku-pouchitis ephindaphindiwe, noma ngoba lokho okutholwe ukuthi i-ulcerative colitis ekugcineni kwaqunywa ukuba yi-Crohn's disease ngempela. Ngisazi abanye abanobunzima bokubambisana njengama-infections. Abanye besifazane abane-j-poche bafumana ukuzala kwabo okuthintekile. Kulula ukukwazi ukuthi ukuhlinzwa kuzosithinta kanjani umuntu othize, kodwa kimi, konke kuye kwaba ngcono.