Amathiphu Wokuhlanganyela Ngokuphepha Uhambo Lwakho Lomdlavuza Online

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Kungani Kufanele Uhlanganyele Uhambo Lwakho Lomdlavuza Emphakathini Wezokuxhumana?

Kunezizathu eziningi zokuba abantu abanomdlavuza bangathanda ukukwabelana ngolwazi lwabo lomuntu siqu ku-intanethi. Abanye abantu bahlanganyela ngolwazi mayelana nokuxilongwa kwabo ukuze abanye banikeze imibono mayelana nokwelapha futhi banikeze ulwazi oluthe xaxa. Kubantu abaningi, abezindaba bezenhlalakahle banikeza ukusekelwa ngokomzwelo phakathi nohambo lomdlavuza. Kodwa abanye abantu bathemba ukuthi ngokunikeza ulwazi lwabo, bangasiza abanye ababhekene nomdlavuza.

Abantu Bafuna Ukuhlanganyela Kodwa Ukukhathazeka Ngokufanayo

Ucwaningo lwamuva luthole ukuthi amaphesenti angu-94 abantu angathanda ukuhlanganyela ngolwazi lwabo lwezempilo ukuze basize abanye. Ngesikhathi esifanayo, abangamaphesenti angama-74 alaba bantu babesaba ukuthi ulwazi lwezempilo ababelana ngalo lungasetshenziswa ngezindlela ezilimazayo.

Ungabelana kanjani ngolwazi lwakho ukuze uthole ukwesekwa okungcono kakhulu nolwazi kuwe futhi usize abanye, ngenkathi uvikela ubumfihlo bakho ngesikhathi esifanayo? Funda ku-.

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Izinzuzo nezingozi zokukwabelana ngolwazi lwezempilo lomuntu siqu ku-intanethi

Ngaphambi kokunquma noma ukwabelana ngolwazi ku-intanethi, kungasiza ukubheka izinzuzo ezibhekene nezingozi.

Izinzuzo ezingenzeka

• Ukufinyelela kolwazi noma imibono engeke kwenzeke uma ungahlanganyeli ngolwazi lwakho. Isibonelo, uma unomdlavuza wamaphaphu we-ALK (uhlobo lwe-lung adenocarcinoma olutholakala cishe ngamaphesenti amathathu kuya ku-5 amaphesenti abantu abane nomdlavuza wamaphaphu) futhi wabelane ngalolo lwazi ku-intanethi, ungase ukwazi ukuxhuma nabanye abantu abanjalo ngalolu hlobo ukuguqulwa komzimba, futhi ufunde kabanzi mayelana nokwelashwa okuvunyiwe kanye nokuhlolwa kwemitholampilo.
• Enye inzuzo yokwabelana ngolwazi ku-inthanethi ukusekelwa ngokomzwelo . Isibonelo, ngizwe kubantu abaningi emphakathini womdlavuza wamaphaphu ukuthi omunye wemithombo yabo enkulu kakhulu yokusekela yizona "abangani" abaye bahlangana nabo ku-inthanethi abafanayo nokubhekana nomdlavuza wamaphaphu.

Izingozi ezingenzeka

• Ingozi yokuqashwa . Kunengozi ukuthi ulwazi owabelana ngalo ku-intanethi lungabonwa ngabasebenzi abangaba khona, futhi lisetshenziswe ekwenzeni "isinqumo" noma ngokumelene nokuqasha esikhathini esizayo. Ngenkathi ukuxilongwa kwakho yedwa kungasetshenziselwa ukubandlulula ngale ndlela, sonke siyazi ukuthi kunesici esizimele sokuqashwa, nokuqaphela ukuthi abaqashi esikhathini esizayo bangaba nokufinyelela kulolu lwazi kufanele kugcinwe engqondweni.
• Izingozi zomuntu siqu . Okokuqala, isithombe ongase afunde ulwazi lwakho. Uma ubhala ngokuhlala kwakho esibhedlela, kubalulekile ukukhangisa ukuthi awukho ekhaya lakho.
• Ingozi yomshuwalense . Khumbula ukuthi abanikezeli besikhwama esingaba khona esikhathini esizayo bangase bakwazi ukuthola ulwazi lwakho. Ngenkathi izimo ezikhona ngaphambili zinenkinga encane manje kunesikhathi esedlule, kunezinye izinkinga okufanele zicatshangelwe. Ngaphambi kokubhala ngezinye izindlela zokwelashwa ozisebenzisayo, futhi ikakhulukazi uma ukhetha ukuphikisa iseluleko sezokwelapha nganoma iyiphi indlela, cabanga ukuthi ubani omunye ongase afunde ulwazi olunikezayo.

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Sebenzisa Izilungiselelo zobumfihlo - Khetha Abalaleli Bakho

Ngaphambi kokwabelana ngolwazi lwakho lwezempilo emphakathini, qaphela izilungiselelo zakho zobumfihlo. Ubani ufisa ukubona imininingwane yakho? Ingabe kukhona abantu abangafanele babone lolu lwazi (cabanga abaqashi besikhathi esizayo, isibonelo?) Hlola lokhu kufundiswa kwezilungiselelo zobumfihlo be-Facebook.

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Yenza Isikhathi Esizayo Ngesikhathi Esizayo Uzohlanganyela Kakhulu Kangaki

Ngaphambi kokuba ubhale igama, cabangela ukuthi yiluphi ulwazi olukhululekile ukwabelana kumabonakude ezenhlalo. Kungasiza ukuhlehlisa lokhu kube yizigaba ezintathu:

• Ulwazi lwakho lomtholampilo - Njengezimpawu zakho, ukuxilongwa kwakho, ukwelashwa kwakho, nezimpawu zakho kanye nomphumela.
• Ukuphila kwakho kwansuku zonke - Ukwaziswa okuningi kangakanani ukhululekile ukwabelana ngemisebenzi yakho yansuku zonke nobuhlobo?
• Ubunikazi bakho - Lokhu kuhlanganisa ulwazi olunjengekheli lakho le-imeyili, izithombe ezithathwe kuwe, nenombolo yakho yefoni.

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Khetha lapho uzokwabelana khona ngolwazi

Iziphi izinto zokuxhumana ofisa ukusebenzisa ngazo ukwabelana ngolwazi lwakho? Ezinye izindawo abantu ababelana ngazo ngomdlavuza wabo zihlanganisa:

• Facebook
• Twitter
• Amabhulogi womuntu siqu
• Amabhulogi abhaliwe njengengxenye yenye yezinhlangano zomdlavuza
• Amawebhusayithi e-Personal
• Youtube.com
• Instagram
• I-Google +
• LinkedIn
• Snapchat
• I-Reddit

Okunye okukhethwa kukho (futhi mhlawumbe okungasese), kungenye yemiphakathi yomdlavuza. Lezi zivame ukuba zidinga ukuthi ube nobulungu behhala.

• Khuthaza
• I-Cancer Support Community
• Ukuhamba Ngomdlavuza

Ukuze wabelane nomndeni nabangane, abantu abaningi bakhetha ukusebenzisa isayithi lomuntu siqu njenge-Caring Bridge:

• I-Caring Bridge

> Imithombo:

> Frosti, J., Vermeulen, I., noN. Beekers. Ukungaziwa Ngokumelene Nobumfihlo: Ukwaziswa Okukhethiwe Ulwazi Ezindaweni Zomdlavuza We-Inthanethi. I-Journal ye-Medical Internet Research . 2014. 16 (5): e126.

> Grajales, F. et al. Izingosi Zokuxhumana Nezenhlalo kanye Nezinhlelo Zempilo Yokufunda Okuqhubekayo: Ucwaningo. I-Institute of Medicine ye-National Academies. 02/04/14. http://www.iom.edu/Global/Perspectives/2014/~/media/Files/Perspectives-Files/2014/Discussion-Papers/VSRT-PatientDataSharing.pdf