Ngemuva kokumangala kokuqala kokufunda ukuthi ingane yakho enezingane ezine- Down syndrome , njengomzali wezinye izingane, kunento ebaluleke kakhulu ukubhekana nayo ekhaya: Indlela yokuchaza izingane zakho ezindala ukuthi umfowabo noma udadewabo omusha une-Down syndrome.
Kuncike eminyakeni yobudala bakho nabantwana babo, bazokwenzela ulwazi ngezindlela ezahlukene.
Ezinye izingane zakudala kungenzeka zesazi ulwazi mayelana ne-Down syndrome, futhi kungenzeka ukuthi zisebenzisana noontanga abane-Down syndrome esikoleni noma kwezinye izindawo.
Izingane ezineminyaka engaphezu kwengu-10 zivame ukuletha imibono yazo, ngakho-ke zilungele:
- Lalela ngokucophelela ngaphandle kwesahlulelo.
- Lindela ukusabela okungalindelekile: ukumangala, ukudabuka, noma ukunganakwa. Futhi ngezinye izikhathi, izingane zakho zizokwenza izifundo ezinhle kakhulu zokwamukelwa nokuphefumulelwa.
- Yiba nesineke futhi ungabasoli izingane zakho ngokukhuluma ngobuqotho ngokukhathazeka kwabo. Bangasebenzisa i-terminology engafanele. Leli yizwe elisha kubo, njengoba kunjalo nakuwe.
- Thatha isinyathelo esisodwa ngesikhathi. Ungalindele ukuthi izingane zakho zithole lonke ulwazi oludingayo engxoxweni eyodwa. Zama ukukhuluma ngokukhululekile nangokwethembeka, futhi uqhubeke ubanika isikhathi esikhethekile sokuxoxa ngemizwa yabo bese uphendula imibuzo yabo.
- Khumbuza izingane zakho ukuthi kungakhathaliseki ukuthi isimo somntakwethu, njengelungu lomndeni, ungumntwana kuqala futhi uzoba namalungelo nezibopho ngokusekelwe kwamakhono akhe nentuthuko yakhe. "Asilindeli kancane ngoba unesifo se-Down syndrome, kodwa ukuze amenze asenze lokho akwazi ukukwenza ngothando nokusekela kwethu."
- Okhulile izingane zikhona, cishe zizodideka ngokuxuba imizwa okungenzeka ukuthi bayabhekana nayo. Izikhathi eziningi abafuni ukucindezela abazali babo futhi lokhu kungaholela ekufihle imizwa yabo. Ukuthola ukusekelwa ngokomzwelo esikoleni, esontweni noma namanye amalungu omndeni kuhlale kuwumqondo omuhle.
- Uma unesithakazelo, abangane bakhe badlala indima ebalulekile empilweni yakhe. Mbuze ukuthi kukhona othile okhethekile angathanda ukwabelana naye ngezindaba, emphakathini wakubo ofunda nabo noma abangane. Nikeza usizo kule nqubo. Angadinga isiqondiso sokukhuluma ngalokhu nabo.
- Chaza izingane zakho ukuthi isiqalo singase sibe inselele kubo bonke abantu, kodwa ekugcineni wonke umuntu uzojwayela isimiso esisha. Akekho okulindeleke ukuthi abe ophelele ngenqubo, kepha abe nesineke futhi ahloniphe imizwa yomunye nomunye.
Njengabazali, kulungile ukungabi nazo zonke izimpendulo. Uma kunoma yisiphi isikhathi ungazi ukuthi ungathini, chaza izingane zakho ukuthi sonke sifunda ndawonye futhi kubalulekile ukuthatha kalula, nokuqonda ukuthi izimpendulo eziningi zizofika ekugcineni.
Kubaluleke kakhulu ukuqonda ukuthi njengabazali nomndeni, kuvamile ukuba nemicabango engafanele, izinkolelo noma ubandlululo nge-Down syndrome.
Ungathathi amazwana noma ukusabela njengokuhlukunyezwa komuntu siqu. Wonke umuntu ekhaya uzodinga isiqondiso kanye nemfundo ukuqonda ukuthi kungani isihlobo sabo sinesifo se-Down syndrome, nokuthi yikuphi ukuthuthukiswa kwakhe okuyoba khona.
Noma yikuphi ukuzalwa okudinga ukukhathazeka okuningi nokuzinikela ezinyangeni zakhe zokuqala zokuphila, futhi ngisho nangaphezulu uma kuthiwa une-Down syndrome noma unezinkinga zezokwelapha. Khuluma nezingane zakho ngale nqubo futhi ungalindeli ukuba bazi noma bavuthiwe ngaso sonke isikhathi. Ukuqala akulula, ngakho-ke zama njalo uhlele isikhathi esikhethekile sezingane zakho ezindala. Ungazifaki endaweni yesibili, noma uvumele ukuba bacabange ukuthi izidingo zabo azibalulekile. Yonke ingane inesidingo esikhethekile sohlobo oluthile, futhi bonke badinga ukunakekelwa ngokugcwele kanye namazwi avamile wokunika amandla nokubonga.