Abanye abantu bakhululekile ukuxoxa nge- multiple sclerosis yabo (MS) nabo bonke abahlangana nabo, kanti abanye banomuzwa wokuthi lokhu kuyimfihlo yangasese ehloselwe ukudalulwa ngesikhathi esifanele . Lesi simo senziwa kancane kanzima uma kuziwa ekuthandeni. Sifuna ukuthola ukulinganisela kokuthembeka futhi sigcine ngenkathi sizama ukubona indlela esizizwa ngayo ngomuntu.
Ngakho nini isikhathi esihle kakhulu sokudalula i-MS yakho ngosuku?
Ukudalula ulwazi lomuntu siqu
Ungaba omunye walabo abahle bavulekele ngesimo sabo se-MS. Kodwa-ke, abantu abaningi abazizwa bephoqelekile ukudalula iqiniso lokuthi banama-MS kuwo wonke umuntu abahlangana naye, ikakhulukazi ezweni elingaziwa futhi eliyinkimbinkimbi yokuphola. Le nhlekelele iholela ekubambeni-22: awufuni ukukhulula abantu abanentshisekelo ngaphambi komhla wakho wokuqala, kodwa ukulinda isikhashana ukubona ukuthi yini eqhubekayo ingaholela kumuntu onenhliziyo e-MS ezwa sengathi bebelokhu ebambelela ulwazi omunye umuntu. Lesi simo singabangela ukucindezeleka ngokukhethekile uma uthanda lomunye umuntu futhi ucabanga ukuthi kungase kube yinto engathà sina.
Isikhathi Esifanele Sokukhuluma Nge-MS yakho
Ayikho imithetho eqinile futhi esheshayo mayelana nesikhathi esihle sokudalula i-MS yakho kumuntu othile. Uma ungavulwa mayelana ne-MS yakho, noma kunjalo, ungase uzizwe ukhululekile ukulinda kuze kube usuku lwesibili.
Ngalesi sikhathi kungenzeka ukuthi uzimisele ukuthi uqhubeke nokubona lo muntu, futhi bazobe bathola ukuthi ukhulu kangakanani. Ngokusobala, ukukhathalela kokubili kwakwanele ukuthi okungenani kuholele ngosuku lwesibili.
Usuku lwesibili luvamise uma kuvezwa ulwazi oluningi mayelana nomunye, noma kunjalo. Usuku lokuqala luphathelene nokubuka futhi kube nokuziphatha kwakho okuhle, kanti usuku lwesibili lungancani mayelana namafayili futhi kukuvumela uzizwe ukhululekile ngokwakho.
Usuku lwesibili ngukuthi ezinye izinto "zangempela" zingaphuma. Akekho olindele ngempela ukuthi athole ngesiphakamiso esibi sesikweletu, ukukhubazeka kokufunda, ukubandakanyeka okudlulile esikhathini esidlule, noma izintandokazi zokudla ezidumile ngosuku lokuqala.
Asikho isikhathi "sokunene" sokuba phambili nge-MS yakho. Uzokwazi ukunquma. Kodwa ngosuku lwesibili noma lwesithathu noma lwesine, cishe uzozizwa ukhululekile ngaleyo simo futhi ukwazi ukuzisho ngokuqondile kangcono ngezihloko ezinzima ngokujwayelekile; hhayi nje i-MS yakho.
Indlela Yokutshela Omunye Unayo MS
Asikho isizathu sokuzizwa unamahloni noma ukhululekile. Ukutshela othile onayo i-MS kulula njengokutshela umuntu onayo i-MS. Nokho, ukuhlelwa okuncane akulimazi muntu. Nazi izinto ezintathu okufanele uzikhumbule.
Hlela inkulumo yakho. Yigcine ibe mfushane futhi enhle, kodwa uhlele futhi usebenzise lokho ofuna ukusho mayelana ne-MS yakho. Khumbula, abantu abaningi abazi okuningi nge-MS, ngakho kufanele ulungele ukunikeza isizinda esincane mayelana nesifo. Ukukhuluma ngokukhululekile ukubikezela kwakho kanye nesimo sakho sengqondo nge-MS kuzokwenza usuku lwakho-noma ubani, ngaleyo ndaba-uzizwe ekhululekile ukubuza imibuzo.
Yilungele ukukhuluma "okuyisimungulu". Futhi, abantu abaningi abazi okuningi nge-MS, ngaphandle kwalokho abakubonile kuWest Wing noma kuxoxisana nabadumile njengoMontel Williams noJamie-Lynn Sigler.
Idethi yakho ingase ibe nemibuzo ocabanga ukuthi i- downright ayifuni , kodwa yiba nesineke nokuqonda. Khumbula ukuthi kukhona umehluko emkhatsini wokuba ngaphansi-kunokuba-knowledgable ngokungaqondakali.
Ungase ungadingi ukutshela. Uma ungamthandi muntu akekho isizathu sokubatshela. Ngokusobala, uma usuku lwakho luyi-jerk awusoze ufune ukuphinde ubone, asikho isidingo sokuba "kubonakaliswe okukhulu."
Okwenza Ufune Ukulinda
Abanye bangase bakhuthaze ukulinda uze wazi ukuthi ufuna ukuthola ikusasa lomuntu ukuthi umtshele mayelana ne-MS yakho. Nguwe owaziyo kuphela isimo sakho, ngakho-ke uma ufuna ukulinda, kuhle.
Mhlawumbe uthatha ubuhlobo kancane kancane, noma awunakutholakali ngokuqinisekisiwe ukuthi una MS , noma awuqiniseki ukuthi uyamthanda ngempela lo muntu. Lezi zonke izizathu ezinhle zokuzigcina izinto kuze kube yilapho isikhathi sizwa kahle.
Noma kunjalo, ukulinda isikhathi eside kungangezelela ukucindezeleka okungaphezulu, ikakhulu uma ngabe omunye wabelane ngolunye ulwazi lomuntu siqu. Kwabanye, kungase kubonakale sengathi ubufihlile okuthile noma ukungathembeki, kodwa akusikho into engakwazi ukusekelwa ngencazelo elula. Khuluma ukucabanga kwakho ngemuva kokulinda ukukhuluma nge-MS ekudaluleni "inkulumo" yakho.