Ukufakelwa kwamaphaphu kungase kubonakale kuyindlela yokwelapha "engizange ngiye" ye-cystic fibrosis. Kodwa kungakhathaliseki ukuthi unomdlandla kangakanani ukwelashwa kwakho, iqiniso elibi ukuthi kuyofika usuku lapho amaphaphu akho engakwazi ukulwa khona. Ekugcineni, umonakalo ovela empini yokuphila nge- cystic fibrosis (CF) uzoba mkhulu kakhulu, futhi amaphaphu akho azoqala ukuhluleka.
Ngalesi sikhathi, abahlinzeki bakho bokunakekelwa kwezempilo bangase batuse ukufakelwa kwamaphaphu njengendlela yokwelapha engayengeza iminyaka empilweni yakho.
Uzobhekana nesinqumo esikhulu esidinga ukuzibophezela okukhulu. Uzoba nemibuzo eminingi. Thola izimpendulo kwabanye kulapha.
Uma Isikhathi Sokucabangela Ukutshala
Abahlinzeki bakho bokunakekelwa kwezempilo bazokusiza ukuthi unqume ukuthi uma nini nesikhathi, kodwa ngokujwayelekile, ukuguqulwa kubhekwe abantu abanezifo eziphuthumayo ze- lungs nge- FEV ngaphansi kuka-40%.
Ingabe Ukuguqulwa Kokuqeda I-Cystic Fibrosis?
Cha, hhayi ngokuphelele. Izingxenyana eziningi kubantu abane-cystic fibrosis ziphakathi kwamanye amazwe, okusho ukuthi kokubili amaphaphu ashintshwa. Amapayipi ashintshiwe ngeke abe nezakhi zofuzo zakho, ngakho ngeke abe nokuguquguquka kwe- CFTR okubangela i-CF. Amapayipi akho amasha azokwazi ukuhambisa usawoti namanzi ngendlela efanele, ngakho ngeke abe nezinkinga ngezifo ezinamahlumela amancane namaphaphu amakhophu akho.
Uzobe une-mutation CFTR kwezinye izicubu , njenge-pancreas yakho nezono. Kumele uthathe ama-enzyme ukusiza ukugaya ukudla nokuvimbela ukungondleki. Uzoqhubeka nokuthola isifo kanye nezinye izifo ezingaphezulu zokuphefumula ezingasakazeka futhi zithelele amaphaphu akho amasha.
Ukuthatha Imithi Ngemva Kokufakelwa
Ngemuva kokuba usufakelwe ukufakelwa, uzothatha imithi yakho yonke impilo yakho, kodwa iyoba imithi ehlukile kunalokho obekujwayele. Esikhundleni sokuthatha imithi ukukusiza ukuphefumula, uzobe uthatha imithi eminingana ukuvikela amaphaphu akho amasha nokuvimbela umzimba wakho ukuba ungawafuni.
Indlela Yokuthola Uhlu Lokufakelwa Kwe-Lung
Uma udokotela wakho enquma ukuthi udinga ukufakelwa kwamaphaphu, uzohlolwa ngethimba lokufakelwa. Uma uhlangabezana nemigomo, uzobekwa ohlwini lokulinda kazwelonke. Lapho umnikeli ekhona, i-organ iya kumuntu wokuqala ohlwini olumdlalo ofanelekayo.
Ngizoze Ngilinde Kangakanani Ukutshala?
Ubude besikhathi oyobe ulindele ukufakelwa akunakwenzeka ukubikezela. Kuzothathwa ngokutholakala komnikeli kanye nesimo sakho ohlwini. Ukufakelwa kwamaphaphu, kunezinhlu ezihlukene zokulinda zabantu abadala nabantwana, futhi iqembu ngalinye leminyaka linesethi yezinqubo zayo.
Abantu abadala: Isikhundla sohlu lokulinda abantu abaneminyaka engu-12 nangaphezulu kunqunywa into ethiwa i-Lung Allocation Score (LAS). Uhlelo lwe-LAS, olwakhiwa yi-United Network for Organ Sharing (UNOS) ngo-2005, lubheka ubuhlungu bokugula kanye namathuba okuphila futhi inikeze amaphuzu amanani phakathi kuka-0 no-100.
Abantu abanezikolo eziphakeme babhekwa njengabalamukeli bokuqala futhi babekwa phezulu ohlwini lokulinda. Izibalo ze-LAS zihlolwa kabusha okungenani njalo ezinyangeni ezingu-6.
Izingane ezingaphansi kweminyaka engu-12: Izinhlu zokulinda izingane ezineminyaka engaphansi kwezingu-12 zisalokhu zifika ohlelweni lokuqala olunikezwayo. Isikhundla ohlwini lunqunywe kuphela ubude besikhathi kuhlu.
Isibikezelo sokusinda emva kokufakelwa
Ngokombiko we-2008 we-Scientific Registry of Transplant Recipients (SRTR), cishe abangu-80% kubo bonke abamukeli bamaphaphu okufakelwa kwamaphaphu basaphila ngonyaka owodwa emva kokufakelwa futhi cishe ama-50% asephila ngemva kweminyaka emihlanu.
Imithombo:
I-Cystic Fibrosis Foundation. I-Registry Regulatory 2006 Umbiko Wezezimali Yonyaka2008.
I-Registry Scientific of Abamukeli Bezitshalo. "I-SRTR Analysis" Ngo-Okthoba 2008.
I-United Network ye-Sharing Sharing. "I-LAS wokubala". February 2009.