Amathiphu amathathu Okumele Uzindle Njengoba Unakekela Omunye Ane-ALS
Kungakhathaliseki ukuthi ungumlingani wakho, ingane, umngane noma umnakekeli osemthethweni, unakekele umuntu onamyotrophic lateral sclerosis (ALS) inselele emazingeni amaningi kangaka.
Noma kunjalo, ngokucabanga okuhle, ukwesekwa kwabanye, namadivayisi afanelekayo, ukunakekelwa umuntu onama-ALS kungawugcwalisa. Nazi amathiphu ambalwa okufanele uwagcine engqondweni njengoba uhamba ngendlela yakho yokunakekelwa.
Zinike amandla Ngolwazi
Ulwazi oluncane luhamba kakhulu uma kuziwa ekunakekeleni umuntu onama-ALS. Ngokuqonda ukuthi kungani umuntu omnakekelayo engakwazi ukuhamba kahle, unemisipha ye-muscle kanye ne-spasms, ubuhlungu obuhlangenwe nakho kanye nokudonsa ngokweqile (okuthiwa yi-sialorrhea) futhi kamuva kunenkinga yokudla nokuphefumula, ungaba ngumnakekeli osebenzayo futhi ongenelindelekile.
Ngamanye amazwi, ngolwazi oluyisisekelo lwe-ALS, uzokwazi ukubikezela kangcono izinkinga othandekayo wakho, ilungu lomndeni, umngane noma umlingani wakho futhi angakwazi ukulungiselela kahle lezo zinguquko-indlela yokwenza inqubo elula kakhulu yokunakekelwa.
Funa Ukusekelwa
Izidingo zomzimba zokunakekela umuntu onama-ALS zinkulu futhi zivela ekusizeni ngemisebenzi yokuphila kwansuku zonke njengokugeza, ukusebenzisa indlu yokugezela, ukudla nokugqoka ekulawuleni izinsiza zokuhamba nokugcina imishini yokuphefumula nemishini yokuphefumula, i- CPAP yokuqala bese i- ventilator .
Ngaphezu kwalokho, umnakekeli womuntu onama-ALS uvame ukuphatha indlu, ikakhulukazi uma engumlingani noma ilunga lomndeni. Lokhu kusho ukuhlanza, ukwenza izingubo zokuhlanza, ukukhokha izikweletu, ukwenza ukuqokwa kwabadokotela, nokuxhumana namanye amalungu omndeni.
I-ALS Team Healthcare Team
Ukufuna ukwesekwa kwabanye kubaluleke kakhulu.
Kufanele uqale ngethimba lezempilo le-ALS lathandekayo, elibandakanya:
- I-neurologist
- Uchwepheshe wezemvelo nomsebenzi
- Ukukhuluma nokugwinya ochwepheshe
- Umsoco
- Umuthi wokuphefumula
Leli qembu labaqeqeshiwe bezempilo ngeke lisize kuphela ngenqubo yokunakekelwa kokunakekelwa kodwa liphinde lusize kalula izimpawu ze-ALS yakho ethandekayo.
Futhi, ngokusebenzisa ithimba lezempilo le-ALS lothandekayo, izisebenzi zezenhlalakahle zingakunikeza ngolwazi kumaqembu asekelo lokunakekelwa kokunakekelwa emphakathini wakho, kanye nezinsiza zokunakekelwa kokunakekelwa kwamaphilisi ngesikhathi sokuxilongwa, nokudluliselwa kwesifo esibhedlela esigabeni sokugcina se-ALS.
Amadivayisi wokusiza
Ubuthakathaka bemisipha yilona uphawu oluyinhloko lwe-ALS, futhi lokho kuvela izinkinga ukuhamba, ukudla, ukusebenzisa indlu yokugezela, ukugeza, nokugcina ikhanda liqondile (ngenxa yemisipha yentamo ebuthakathaka).
Amadivaysi okusiza afana nezihlalo zabakhubazekile, izikhumulo zokugeza, izihlalo zokukhumula zangasese, izikhwama ezikhishwayo kanye nezitsha ezikhethekile zokudla zingathuthukisa ukusebenza nokukhwalithi kwempilo yomuntu onama-ALS. Lokhu, nakho, kungathuthukisa ikhwalithi yokuphila komnakekeli.
Amanye amadivaysi ewusizo wokunakekela umuntu one-ALS afaka ama-mattresses akhethekile angasiza ekuvimbeleni ukuchithwa kwesikhumba kanye nobuhlungu obuyisisindo kanye nohlangene.
Okokugcina, kunamadivaysi okusiza e-elekthronikhi njengedivaysi yokukhuluma engaguqulwa ukusetshenziswa kwesandla noma iso ukuvumela ukuxhumana nokuzibandakanya.
Qinisekisa ukuthi ukhuluma nethimba lezempilo le-ALS lomthandayo mayelana nokuthi ungahamba kanjani mayelana nokuthola la madivayisi.
Ukukhathalela abahlali
Njengomnakekeli, udinga ukunakekela ingqondo nomzimba wakho ukuze unakekele kangcono omunye umuntu. Ngamanye amazwi, udinga amaphuphu, futhi yilapho ukunakekelwa kobukhosi kudlalwa khona.
Ukunakekelwa kokuhlala kungase kusho amahora ambalwa ukujabulela i-movie, ukulala, ukujabula ngokuhamba kwemvelo, noma ukuphuma kusihlwa noma ikhofi nomngani. Kungase kusho ukuthatha iholidi leviki, ngakho-ke ungathatha isikhathi sokuphumula futhi wenze okuthile okhethekile kuwe.
Lapho ufuna ukunakekelwa kokunciphisa, kunezinketho ezimbalwa ezihlukile. Ngokwesibonelo, ungabheka ama-ejensi ezempilo asekhaya ahlinzeka abahlinzeki abaqeqeshiwe noma ngisho nendawo yokuhlala, njengesikhungo sokunakekelwa isikhathi eside, esisebenzela ochwepheshe bezempilo emasimini. Okokugcina, ungakhetha ukucela nje umngane noma i-ejenti yokuzithandela ukunikeza ukunakekelwa kokuphelelwa amahora ambalwa.
Umphakathi
Kubalulekile ukukhumbula ukuthi labo abasemphakathini wakho bavame ukuzama ukusiza, kodwa abazi ukuthi bangakwenza kanjani. Kungaba ngcono ukuthi ubhale imisebenzi ethize oyidingayo usizo bese uyithumelela kubangani, amalungu omndeni, noma omakhelwane.
Yiba nomuntu oqotho-uma uthola ukuthi ukupheka nokuhlanza kuphazamisa ukunakekelwa kwakho, cela labo abasemphakathini wakho ukuba basize ngokudla noma banikele ngemali yokuhlinzeka ngemisebenzi yokuhlanza indlu.
Qaphela izibonakaliso zokucindezeleka
Uma unakekela umuntu onama-ALS, kuvamile ukuzwa imizwa eminingi ehlanganisa ukukhathazeka, ukwesaba, ukukhungatheka, ukungakhululeki, kanye / noma ngisho nentukuthelo. Abanakekeli abaningi banomuzwa wokuthi banecala, njengokuthi kufanele noma benze umsebenzi ongcono, noma imizwa yokungaqiniseki ngekusasa.
Ngezinye izikhathi le mizwelo ingaba namandla kangangokuthi iqala ukuphazamisa izinga lokuphila lomnakekeli. Abanye abanakekeli baze bacindezeleke. Yingakho kubalulekile ukwazi ngolwazi lokuqala lokucindezeleka futhi ubone udokotela wakho uma uhlangabezana nenye noma ngaphezulu.
Izimpawu zokucindezeleka ziyaqhubeka, zihlala cishe nsuku zonke amasonto amabili, futhi zingabandakanya:
- Ukuzwa kudabukile noma phansi
- Kuthola ukulahlekelwa kwesithakazelo ezintweni owake wazijabulela
- Ukuba nezinkinga zokulala (isibonelo, ukulala kakhulu noma ukubhekana nenkinga yokulala)
- Ukuba noshintsho ekudleni
- Ukuzwa unecala noma ungenathemba
Izindaba ezinhle ukuthi ukucindezeleka kungaphathwa, kungaba nokuhlanganiswa kwemithi nokukhuluma ngelashwa, noma enye yalezi zokwelapha yedwa.
Izwi elivela
Ukunakekela umuntu nge-ALS kunzima futhi kudla amandla, kokubili ngokomzimba nangokwengqondo. Kodwa ngenkathi kuzoba nezinqwaba zokuzama ukuhamba endleleni, qiniseka ukuthi kuzophinde kube nokuvuselela, izikhathi eziphefumulayo.
Ekugcineni, ukukhathalela kwakho, ukunakekelwa kwakho, nokuba khona kwakho kwanele. Ngakho-ke yibani nomusa kuwe futhi ukhumbule ukukhumbula izidingo zakho.
> Imithombo:
> Galvin M et al. Ukunakekelwa kwe-ALS - izindlela ezixubekile ekusetshenzisweni kocwaningo lwe-Burden. Ukunakekelwa kwe-BMC Palliat . 2016; 15 (1): 81
> Karam CY, Paganoni S, Joyce N, Carter GT, Bedlack R. Izinkinga zokunakekelwa kwe-palliative ku-amyotrophic lateral sclerosis: Ukubuyekezwa okusekelwe ekubonisweni. Am J Hosp Palliat Care . 2016 Feb; 33 (1): 84-92.
> Ng L, Khan F, Young CA, Galea M. Symptomatic zokwelashwa ze-amyotrophic lateral sclerosis / motor neuron. I-Cochrane Database Syst Rev. 2017 Jan 10; > 1: CD011776 >.