Uma wena noma othandekayo utshelwe ukuthi une-Rasmussen's syndrome noma i-encephalitis kaRasmussen, ungase ube nomuzwa wokukhulula ukwazi ukuthi ekugcineni unesifo sokuhlonza esichaza izimpawu zakho. Kodwa ungase ube nokukhathazeka okuningi mayelana nokuthi yini ongayilindela kule nkinga.
I-Rasmussen's syndrome noma i-encephalitis kaRasmussen ayivamile, futhi kulinganiselwa ukuthi kungase kube nabantu abangaphansi kuka-2000 abaphila nalesi simo e-United States.
Naphezu kokuthi kungavamile, kukhona ukuphathwa kwezokwelapha kwe-Rasmussen's syndrome kanye ne-encephalitis kaRasmussen, nakuba kukhona nethuba elihle lokuthi uzoqhubeka nokubhekana nemiphumela yesikhathi eside ngisho nangemva kokuthola ukwelashwa nokuthi uzodinga ukugcina ukwelashwa iminyaka eminingi.
Yini i-Rasmussen's Syndrome ne-Encephalitis kaRasmussen?
I-Rasmussen's syndrome yigama elisetshenziselwa ukuchaza isimo nganoma yisiphi isikhathi ngesikhathi sokugula. Kukholelwa ukuthi ngezinye izikhathi i-Rasmussen's syndrome ingase ibangelwe noma ilandelwe uhlobo lokuvuvukala kobuchopho okuthiwa i-encephalitis kaRasmussen.
I-encephalitis kaRasmussen ngokwawo yinkinga lapho ubuchopho bunomphumela omkhulu wokuzivikela omzimba obangela ukuphazamiseka okukhulu kobuchopho emsebenzini ohlangothini olulodwa. Lokhu kungabonakalisa njengokuhlupha, ubuthakathaka, izinkinga zomlimi noma ukulahlekelwa kwengqondo (ukucabanga nokuxazulula izinkinga).
Ngokuvamile, ukuvuvukala okusebenzayo akuphiki isikhathi eside, kodwa ngemuva kokuxazulula ukuvuvukala, abantu bavame ukuqhubeka bezwa izimpawu. Lezi zimpawu zingase zibizwa ngokuthi i-Rasmussen's syndrome esikhundleni se-encephalitis kaRasmussen uma kungekho ubufakazi bokuvuvukala okusebenzayo ebuchosheni.
I-Rasmussen's syndrome yinkinga ehlala isikhathi eside yezokwelapha ephikelela iminyaka eminingi, ngezinye izikhathi emva kwezinyathelo ezinkulu kakhulu zokuvuvukala kwe-encephalitis kaRasmussen. Ngezinye izikhathi i-Rasmussen's syndrome ingenzeka ngisho noma ingacacile ukuthi ngabe ngabe i-encephalitis kaRasmussen eyandulele.
I-Rasmussen's syndrome, efana ne-encephalitis kaRasmussen, ibhekene nokuhlukunyezwa okunzima ukuyilawula futhi okuvela ohlangothini olulodwa lobuchopho. Abanye abantu abane-Rasmussen's syndrome nabo babhekene nobuthakathaka ohlangothini olulodwa lomzimba, izinkinga zolimi, noma izinkinga ngamakhono okuqonda.
Lesi simo ngokuvamile sithinta izingane ezineminyaka engama-2-12 ubudala, kepha zingathinta abantu nganoma yisiphi isikhathi.
Yini Engingayilindela?
Ngokuvamile, ukuhlukunyezwa okubangelwa i-encephalitis kaRasmussen kunzima ukulawula ngemithi, futhi ngokuvamile kuthinta ingxenye eyodwa yomzimba. Ukugubha ngokuvamile kuhlotshaniswa nokuthuthumela nokugxila kolunye uhlangothi lomzimba, ngokuvamile ngokulahlekelwa ulwazi noma ukwehla ekuqaphelweni.
Uma une-encephalitis kaRasmussen, ungase ungakhumbuli ukukhwabanisa ngokuningiliziwe, futhi ungase uzizwe uphelelwe kamuva. Izinkinga, izinkinga zolimi, nezinkinga zokuzicabangela ngokuvamile ziqala ukwenzeka izinyanga emva kokuqala kokuqala, kodwa lezi zimpawu zingenzeka ngokushesha noma cha.
Ukuxilongwa kwe-Encephalitis kaRasmussen
Kungathatha isikhathi eside ukuthi unikezwe ukuxilongwa okucacile kwe-encephalitis kaRasmussen. Lokhu kungenxa yokuthi akukhona ukuhlolwa okulula okungaqinisekisa lesi simo.
I-encephalitis ka-Rasmussen ne-Rasmussen's syndrome zixilongwa ngokususelwa ekuboneni kukadokotela ngempawu zakho zemitholampilo ezinyangeni (noma ngisho neminyaka) kanye nokuhlolwa kwe-EEG nokuhlolwa kobuchopho be-MRI.
I-EEG kulindeleke ukuthi ibonise umsebenzi wokuthungatha ohlangothini olulodwa lobuchopho. Kodwa le iphethini ye-EEG ayiyona into ehlukile ku-Rasmussen's syndrome, ngakho-ke i-EEG ayilona uvivinyo olucacile, kodwa lisetshenziselwa ukulungiswa nezimpawu zakho, ezinye izivivinyo zakho, kanye nokubona kukadokotela wakho ngesimo sakho.
I-MRI yobuchopho kulindeleke ukuthi ibonise umehluko omkhulu phakathi kwezinhlangothi zombili zobuchopho. Ekuqaleni kwesikhathi sokugula, olunye uhlangothi lobuchopho lungabonisa iphethini lokuvuvukala elibonakala njengesifo. Kamuva ngesikhathi sokugula, i-MRI yobuchopho ingabonisa i-atrophy yecala elichaphazelekile, empeleni liwehla ubuchopho ngenxa yomonakalo owedlule wokuvuvukala. Ukubukeka kobuchopho be-MRI akuyona into ehlukile ku-encephalitis ka-Rasmussen noma i-Rasmussen's syndrome, futhi kuhloswe ngayo yonke isimo ukuze kufinyelele isiphetho sokuthi une-Rasmussen's syndrome noma i-encephalitis kaRasmussen.
Ukwelashwa Nokuphathwa
Uma une-encephalitis kaRasmussen, cishe uzothola imithi yokulwa ne-anti-seizure ukuze usize ukulawula ukuhlukunyezwa kwakho. Ngezinye izikhathi, i-steroids isetshenziselwa ukunciphisa ukuvuvukala ebuchosheni. Uma ithimba lakho lezokwelapha linesizathu sokukholelwa ukuthi une- infection ebuchosheni bakho (i-encephalitis esithathelwanayo ) , khona-ke ungase uthole imithi yokwelapha kanye nokutheleleka.
Uma unqotshwa noma unobuthakathaka noma yikuphi ukulahlekelwa kwegazi, kodwa akukho bufakazi bokuvuvukala, khona-ke ukwelashwa kwakho kuzokwenziwa ikakhulu ekubhekiseni ukuhlukunyezwa kwakho nokulahlekelwa kwegazi lakho.
Ngezinye izikhathi, ukuhlushwa kwe-Rasmussen's syndrome kunzima kangangokuthi kungadingeka ube nokuhlinzwa kwesithuthwane. Lokhu kuhlinzeka kungabandakanya ukususwa kwesifunda esithintekile sobuchopho bakho uma isifo esifundeni esithile sobuchopho bakho sibonakala sibangela umonakalo omkhulu. Ngokuvamile, inqubo yokuhlinza iveza imiphumela efana nobuthakathaka obuthakathaka noma obuthile bohlangothi olulodwa lomzimba. Ukungenelela kokuhlinzwa kwe-Rasmussen's syndrome kucatshangwa ngokucophelela, futhi kuyindlela kuphela uma kulindeleke ukuba uthuthukise izinga lakho lokuphila jikelele.
Yini Ebangelwa i-Encephalitis ka Rasmussen ne-Rasmussen's Syndrome?
Incephalitis ukuvuvukala kobuchopho. Akucaci ukuthi yini imbangela eyinhloko ye-encephalitis kaRasmussen. Njengamanje, umphakathi wezokwelapha uye wacabangela amathuba amabili okuyinhloko:
- Kungase kubangelwe ukutheleleka okubangela ukusabela okukhulu kwamagciwane omzimba.
- Kungabangelwa ukusabela okuzenzakalelayo (umzimba ohlasela ngokwawo).
Ngeshwa, ngoba imbangela ye-encephalitis kaRasmussen ayiyazi, akukho ukuzivikela okuyaziwayo kwalesi sifo esingavamile.
Izwi elivela
Uma wena noma othandekayo wakho enesifo esingavamile njengo-Rasmussen's encephalitis noma i-Rasmussen's syndrome, kungasiza ukuhlangabezana nabanye abantu abaphila ngesifo esifanayo. Ungakwazi ukuthola iseluleko futhi ufunde ngokuhlangenwe nakho okwabiwe uma ujoyina iqembu lokusekela futhi ukhulume nabanye abanganikeza isiqondiso kanye namathiphu njengoba uhamba ngokuphila nge-Rasmussen's syndrome.
> Imithombo:
> Nabbout R, Andrade DM, Bahi-Buisson N, et al, Umphumela wokufa kwengane kusukela ekukhuleni kuya ekubeni umuntu omdala: Izingqinamba zokuguquka, Ukuphulukiswa kwe-Epilepsy Behav. 2017 Feb 27. pii: S1525-5050 (16) 30629-1. i-doi: 10.1016 / j.yebeh.2016.11.010.