I-Fibromyalgia inendlela ende yokuhamba uma kuziwa ekucwaningweni, ezinokwelashwa , ekuxilongweni , nokuqwashiswa komphakathi. Ngenkathi izikhungo zocwaningo, zomphakathi nezizimele, zibalulekile ekuthuthukeni kwethu, akuzona kuphela abadlali abasensimini.
Izinhlangano zokusiza zisebenza kanzima ngemuva kwezigcawu nasemphakathini iso lokuqhubekela phambili ucwaningo nokuqwashisa. Imigomo yabo ephakeme ukusiza sonke sibhekene nesimo esiyinkimbinkimbi nesiphathisa amandla ukuhola impilo engcono. Izinsiza eziphezulu ze-fibromyalgia e-US kanye nabanye abavela emhlabeni wonke kubhalwe lapha ukuze ufunde kabanzi mayelana nala maqembu abalulekile nomsebenzi obalulekile abawenzayo ngenxa yethu.
I-National Fibromyalgia Association
I-National Fibromyalgia Association (NFA) cishe iyona eyaziwa kakhulu yi-fibromyalgia uthando e-US Kuye kwaba yimbangela enkulu eyenziwa ngoMsombuluko wezinsuku zokuqwashisa ngosuku lwe-fibromyalgia ezweni lonke iminyaka engaphezu kwengu-20. Liphinde ishicilela umagazini iFibromyalgia AWARE kanye nokusingatha izinkomfa zemfundo.
Ngokwe-website ye-NFA, inhlangano "isisize ukushintsha isimo sengqondo nokuqonda ukuthi kunjani ukuhlala ne-FM." Iwebhusayithi yayo inikeza ulwazi oluningi ngalesi simo kanye nohlelo oluqhubekayo lwemfundo yezokwelapha odokotela nabanye abahlinzeki bezempilo abaphatha i-fibromyalgia.
Amaqiniso okusheshayo ku-NFA:
- Eyasungulwa: 1997
- Isimo sosizo: 501 (c) 3 engeyona inzuzo
- Indawo: I-Orange, California
Izinsiza ngawe:
- Ubulungu bamahhala buhlanganisa i-eNewsletters, izethulo zemfundo e-intanethi, izibuyekezo zocwaningo, ulwazi mayelana nezifundo ezifuna abahlanganyeli, kanye nezaphulelo kwezinye izinto esitolo se-NFA esisekuqaleni
Izindlela zokufaka isandla:
- Nikela ngemali nge-PayPal
- Thenga imikhiqizo yokufundisa nokuqwashisa kwisitolo se-intanethi
- Dala i-fundraiser
- Usizo ngemikhankaso yokuqoqa imali nokuqwashisa, kufaka phakathi umkhankaso wokupha i-Giving ngoLwesibili nokwazisa ngosuku
- Khetha iNFA ku-Amazon Smile
I-Fibromyalgia Coalition International
Ku-website yayo, i-Fibromyalgia Coalition International (FCI) ithi ifuna ukuba "ibhondi yethemba lezigidi zeziguli ze-FM / CFS emhlabeni jikelele." Iqoqa izingqungquthela nezinye izenzakalo zezemfundo endaweni yaseKansas City futhi inakekele ngokukhethekile izindlela ezingezona zokwelapha, njengokudla, ezisekelwa ucwaningo lwezokwelapha.
Amaqiniso okusheshayo ku-FCI:
- Isekelwe: 2000
- Isimo sosizo: 501 (c) 3 engeyona inzuzo
- Indawo: Mission, Kansas
Isitatimende sezithunywa:
Inhloso ye-FCI ukunikeza ithemba kuwo wonke umuntu obhekene ne-Fibromyalgia ne-Chronic Chronic Fatigue Syndrome ngokusebenzisa ucwaningo olunzulu nokubika ngemithi yemvelo, efakazelwe, futhi ephumelelayo egxile ezimpandeni eziyisisekelo.
Izinsiza ngawe:
- Uhlu lwemikhakha yokusekela ye-fibromyalgia
- Umhlahlandlela wezinhlinzeko zezempilo ze-fibromyalgia
Izindlela zokufaka isandla:
- Thenga amabhuku, ama-CD, nemikhiqizo yokuqwashisa ngokusebenzisa isitolo se-intanethi
- Isikhathi esisodwa noma okuqhubekayo ngemali
- Ukunikeza Umsebenzi
- Khetha i-FCI ku-Amazon Smile
I-National Fibromyalgia & Chronic Pain Association
I-National Fibromyalgia & Chronic Pain Association (i-NFMCPA) ithi umgomo wayo ukugqugquzela ukuxilongwa kwangaphambili, ukuqhubekisa ucwaningo lwesayensi ukuze uthole ukwelashwa, futhi kwenziwe lula ucwaningo emitholampilo efanele, etholakalayo, futhi engabizi nge-fibromyalgia. Ihlela futhi ikhuthaze imicimbi yosuku lokuqwashisa ngoMeyi 12 futhi inikeza nodumo nodumo kanye nalokho okukukhunjulwa kwikhompyutha kwiwebhusayithi yayo.
Amaqiniso okusheshayo ku-NFMCPA:
- Isekelwe: 2008 (njenge-CURE FM, yaba i-NFMCPA ngo-2010)
- Isimo sosizo: 501 (c) 3 engeyona inzuzo
- Indawo: Logan, Utah
Isitatimende sezithunywa:
I-National Fibromyalgia & Chronic Pain Association ihlanganisa iziguli, abenzi bezinqubomgomo, kanye nempilo yezempilo, imithi yezokwelapha, kanye nesayensi ukuguqula izimpilo ngokusekelwa kombono, ukugqugquzela, ucwaningo, kanye nemfundo ye-fibromyalgia kanye nezifo ezibuhlungu ezingapheli. Ibuye inikeze iphephandaba ngemizamo emisha yokucwaninga nokukhuthaza.
Izinsiza ngawe:
- Uhlu lwemithombo yokukhubazeka kanye nezindaba zomsebenzi
- Uhlu lwemithombo yezinkinga zomdala
- Uhlu lwezibonelelo zezezimali ezigulayo
- I-Articulos en-Espanol
Izindlela zokufaka isandla:
- Nika imali
- Thenga ama-t-shirts noma izesekeli kusuka esitolo se-intanethi
- Khetha i-NFMCPA ku-Amazon Smile
I-National Fibromyalgia Partnership, Inc.
Umgomo we-National Fibromyalgia Partnership (i-NFP) ukusabalalisa ulwazi nokuqwashisa kwe-fibromyalgia kanye nokuxhumanisa nabantu abanalo nalesi simo kuze kube semthethweni, ngokwezezimali nakweminye imithombo yokusiza. Ishicilela iphephandaba lekota elibizwa nge- Fibromyalgia Frontiers futhi libeka ulwazi mayelana nezifundo ezifuna abahlanganyeli.
Amaqiniso okusheshayo mayelana ne-NFP:
- Kusungulwe: 1992
- Isimo sosizo: 501 (c) 3 engeyona inzuzo
- Indawo: Linden, Virginia
Isitatimende sezithunywa:
Ukwenza imithi enembile, ulwazi lwezinsizakalo zekhwalithi ye-fibromyalgia etholakalayo kubulungu bethu, ochwepheshe bezempilo kanye nomphakathi ngokubanzi.
Izinsiza ngawe:
- Ulwazi mayelana nesifo se-myofascial syndrome (isimo esivumelanayo esidlulayo)
- Ulwazi mayelana nezinsizakalo zezezimali nezenhlalakahle
- Uhlu lwemithombo yamadoda nabantwana abane-fibromyalgia
- I-Articulos en-Espanol
I-American Chronic Pain Association
I-American Chronic Pain Association (ACPA) inikeza "ukwesekwa kontanga nokufundiswa kwamakhono okuphatha ubuhlungu kubantu abanezinhlungu, emndenini nabangane, nabachwepheshe bezempilo." Kuye kwasiza ukusungula amaqembu amaningi asekela i-ACPA e-US, Canada, Great Britain, nakwamanye amazwe.
Ngenkathi kungabonakali inhlangano egxile kakhulu e-fibromyalgia, abantu abane fibromyalgia bangakwazi ukuzuza kumaqembu asekela, ulwazi, kanye nokuvikela okuhlinzekayo. Ibuye ine-newsletter ebizwa ngokuthi iThe Chronicle.
Amaqiniso okusheshayo ku-ACPA:
- Isekelwe: 1980
- Isimo sosizo: 501 (c) 3 engeyona inzuzo
- Indawo: Pittsburgh, Pennsylvania
Izinsiza ngawe:
- Uhlu lwamacembu okusekela ubuhlungu obungapheli
- Qala iqembu lokusekela endaweni yakho
- Ukwaziswa ngezimo eziningi zobuhlungu, ukwelashwa, namathuluzi wokuphatha ubuhlungu
Izindlela zokufaka isandla:
- Nikela ngemali nge-PayPal
Izinhlangano Zomhlaba Wonke
Ngaphandle kwe-US, izinhlangano eziningi zosizo zisebenza kanzima ukuthuthukisa izimpilo zabantu abanezimo. Ezinye zazo ziyi:
- I-International Myopain Society
- I-European Network ye-Fibromyalgia Associations
- Fundacio nge la Fibromialgia I la Sindrome de Fatiga Cronica (Spain)
- I-AFIBROM (Spain)
- I-Fibromyalgia Action UK
Izwi elivela
Kulabo abakwazi ukunikela, ungathola umamukeli ofanele wokuphana kwakho. Kulabo abangakwazi, mhlawumbe ungathola ezinye izindlela zokusiza noma ukukhuthaza lezi zinhlangano. Kungakhathaliseki ukuthi, ungakwazi ukuzuza ngokuqondile ulwazi kanye nezinsizakalo abazihlinzekayo, ngaphezu kokuzuzwa okuqondile sonke esikutholayo emizamweni yabo.
Ngaphezu kwalokho, iminikelo yezinhlangano zokusiza ezinjengalezi ingenza izipho ezinhle kubantu abaphila ngokugula okungapheli noma abangakhonza njengendlela yokukhumbula umuntu olwa ne-fibromyalgia ngesikhathi sokuphila kwakhe. Ungabhala futhi iminikelo yokusiza eyokuthanda kwakho. Kodwa, ngaphambi kokuba unikeze kunoma iyiphi inhlangano yokusiza, qinisekisa ukuyihlola ukuze wazi ukuthi imali yakho iyasetshenziswa kanjani ukuthi uyayifuna.