Lapho Uzokwazi Ukuthola Umthombo Ozowudinga
Uma wena noma ingane yakho ene-cystic fibrosis (CF) , kufanele ube nomshuwalense wezempilo. Akukho nje indlela okuzungezile. Izindleko zezokwelapha zomuntu one-CF zinganezela kalula ezinkulungwaneni zamaRandi ngenyanga. Ngaphandle kohlobo lwempilo yomshwalense wezempilo, izinsiza zakho zizophelelwa isikhathi ngokushesha futhi ngeke ukwazi ukuthola ukwelashwa . Ungavumeli lokho kwenzeke kuwe.
Kungaba nzima ukuthola umshwalense uma unesifo sokunciphisa impilo, kodwa kungenathemba njengoba kungase kubonakale, kunezinye izinketho ezitholakalayo kuwe.
Umshwalense Wezempilo Ozimele - Umzila Wokuqala Wokuzivikela
Uma wena noma ingane yakho ihlanganiswe ngaphansi kwenqubomgomo yomshuwalense wempilo yangasese ngaphambi kokuthi utholakale ukuthi une-cystic fibrosis, yenza konke okusemandleni akho ukukugcina. Uma kungenjalo, ungase ugijime ezinkingeni ngezimo ezingakabikho ezikhona ngaphambi kokuthola inqubomgomo entsha.
Umthetho we-Federal unikeza ukuvikeleka kulabo abashintsha imisebenzi noma mhlawumbe babe nekhefu ekuhlinzekeni komshuwalense ngokuvumela isikhathi esisikhombisa somusa sokuthola ukufakwa okusha. Uma uthola ukufakwa okusha esikhathini esingakapheli izinsuku ezingu-63, umshwalense wakho omusha angeke akwazi ukukhipha izimo ezikhona ngaphambili uma ungaveza isitifiketi sokuqinisekisa okuthembekile kusuka kumshuwalense wakho wangaphambilini. Kodwa-ke, uma unesiphakamiso esiphezulu kwezinsuku ezingaphezu kwezinsuku ezingu-63, umshwalense wakho omusha angabandakanyeka ukusakazwa kuze kube yimuphi umqondo owathola ukwelashwa ezinyangeni eziyisithupha ezedlule.
Uma ungenayo umshuwalense wezempilo wangasese ngenkathi i-CF itholakale, cishe uzoba nezinkinga zokuthola ukwaziswa kwangasese. Uma ukwazi ukuthola inqubomgomo, cishe uzothola ukuthi izindleko ezihlobene nokuphathwa kwe-CF ngeke zimbozwe ngonyaka wokuqala.
Umshwalense Wezempilo Osekelwe Kahulumeni
Kulabo abangakwazi ukuthola umshuwalense wezempilo wangasese, kunezinhlelo eziningana zikahulumeni ezingase zitholakale.
Izinketho kanye nezidingo zizohlukahluka kusuka kumbuso kuya kuhulumeni, kodwa isimo ngasinye semindeni enomholo owela ngaphansi kweziqondiso ezithile, okungaba okungenani 200% wezinga lobuphofu laseSweden.
Uma ungenakho ukufinyelela kumshuwalense wezempilo wangasese noma umshuwalense wakho awufihli ngokwanele izindleko zokwelashwa kwakho kwe-CF, faka izicelo zalezi zinhlelo ngisho noma ucabanga ukuthi imali yakho engenayo iphezulu kakhulu. Eziningi zezinhlelo zivumela labo abanezimo ezingelapheki zokwelapha ukuba bahlehlise imali yabo ngokuthola izindleko zezokwelapha noma basebenzise amanye amafomula anganciphisa inani lemali engenayo.
- I-Medicaid
I-Medicaid uhlelo lwe-umshuwalense wezempilo oluxhaswa nguhulumeni olutholakala kulabo abasebhange elingenalutho abangakwazi ukukhokhela umshuwalense wezempilo wangasese. Uhulumeni wesifunda ufuna zonke izifunda zinikeze i- Medicaid , kodwa uhulumeni ngamunye uqhuba uhlelo ngokuhlukile. Kukhona izikhathi eziningi izinhlobo eziningi kanye namazinga okuhlanganisa. Thintana nehhovisi lakho le-Medicaid lombuso ukuze uthole olunye ulwazi kanye nemiyalelo yesicelo.
- Ukuphepha komphakathi
Abantu abadala kanye nezingane abane-cystic fibrosis bangakwazi ukufaneleka ukuthola izinzuzo zokukhubazeka kwezenhlalo kubandakanya usizo lwekheshi, umshuwalense wezempilo, noma kokubili. Kubantwana kanye nabantu abadala abangakaze basebenze, ukufaneleka kufanele kusekelwe emalini engenayo kanye nesimo sezokwelapha. Abantu abadala abaye basebenzela futhi bathola izikweletu zokuvikeleka kwezenhlalakahle bangakwazi ukuthola izinzuzo zemali ngaphandle kokuthola imali yabo uma nje behlangabezana nezidingo zezempilo.
I-Medicaid inikeza inzuzo yomshuwalense wezempilo kubantu abanenzuzo yokukhubazeka. Ezingxenyeni eziningi, abantu abafanelekile ukuthola usizo lwekhefu lokukhubazeka ngokuzenzakalelayo bayakufanelekela ukuthola iMedicaid, kodwa abanye bathi badinga uhlelo oluhlukile lwe-Medicaid. Vakashela iwebhusayithi ye-Social Security Administration ukuze ufunde kabanzi noma usebenzise izinzuzo ku-intanethi.
Izwi mayelana nezikhalazo: Uma ufaka isicelo sezinzuzo zokukhubazeka kwezenhlalakahle, ungadangali uma isicelo sakho senqatshelwe. Kuvamile ukuthi izicelo ziphiwe okokuqala lapho zithunyelwa, futhi akusho ukuthi awufanelekeli izinzuzo. Ngezinye izikhathi, i-Social Security Administration idinga kuphela ulwazi oluthe xaxa ukuze ukwazi ukuvumela uhlelo lokusebenza. Uma uthola incwadi yokuphika, izofaka imiyalelo ekufakeni isikhalazo. Uzoba nezinsuku ezingu-60 ukuze ufake isikhalazo sakho ngaphambi kokuthi ukuphika kube ngokomthetho. Qiniseka ukulandela imiyalelo ngokucophelela bese uhambisa isikhalazo sakho phakathi nosuku lwama-60.
- SCHIP
Wonke umbuso kudingeka ukuba abe ne-State Health Insurance Insurance Program (SCHIP) ehlinzekela umshwalense okhokhelwa yizinga eliphansi ezinganeni ezingaqinisekisiwe. Izidingo zokufaneleka zihluka kusuka kumbuso kuya kumbuso, kodwa uhlelo luhlelwe ukugcwalisa igebe futhi lunikeze ukuhlinzekwa kwabantwana abazali babo abenza imali eningi kuMedicaid kodwa abakwazi ukukhokhela umshuwalense wangasese. Shayela i-hotline federal ngo-877-543-7669 noma vakashela i-Insure Kids Now ukuze ufunde kabanzi mayelana nesistimu ye-SCHIP yesimo sakho.