Kuvunyiwe kahle ukuthi ubuciko buhlinzeka ngamathuluzi amahle kakhulu okusiza abantu ukuba babhekane nezinselele zempilo, kuhlanganise nokugula okungapheli njenge lupus. Akudingeki ukuba uqeqeshwe noma ikakhulukazi unamakhono efomu lobuciko bokudala ukuze ukwazi ukuzwa izinzuzo ezinikezwa ubuciko. Ukuziveza ngokwakho ngobuciko bokudala kukunika ithuba lokutshela indaba yakho nokuveza imizwa eyinkimbinkimbi ehlobene nokuphila ne-lupus-imizwa efana nentukuthelo, ukudabuka, usizi nokukhungatheka. Noma ungasebenzisa ubuciko ukukhombisa ukuthi izinto zangempela zansuku zonke zokuba ne-lupus zifana nobani ukukhathala okubukekayo noma okuzizwayo, isibonelo.
Kungakhathaliseki ukuthi wabelana ngomsebenzi wakho noma uwugcine ube yimfihlo kuwe. Isenzo sokwenza ubuciko, yedwa, singanele.
Umphakathi we-lupus ugcwele abantu abaye basebenzisa ubuciko njengendlela yokubhekana nalesi sifo kanye / noma ukukhulisa ngokuphathelene nokuphila ne-lupus ngempela.
Isithombe
Uhlelo oluthiwa yi-Lupus ngeLens, luvumela abahlanganyeli ukuthi bathathe izithombe ezinamandla futhi babelane ngamagama-ncazo ukusiza ukuthi bachaze ukuthi i-lupus ibukeka kanjani-hhayi nje izimpawu zayo, kodwa yiqiniso lokuphila nge-lupus. Lezi zithombe akusizi nje ukuqwashisa, kodwa inqubo yokubamba nokuwabelana yabanike abahlanganyeli izwi futhi bawanika amandla ukutshela izindaba zabo.
Kunendlela engaphezu kweyodwa yokusebenzisa izithombe ukubhekana noma ukuphakamisa ukuqwashisa kwe-lupus, noma kunjalo. Ngokwesibonelo, umdwebi wezithombe uMichelle Diane Poindexter usebenzisa izithombe ukuze abelane naye nge lupus story. Ewebhusayithi yakhe, wachaza ngenhloso yezithombe zakhe, "Ezinye izithombe zizindla ngezinto ezincane ekuphileni kwabantu ngaphezu kokubukeka okunzima kulabo abane-SLE kanti abanye kuyizindaba ezimangalisayo zemizwa yangaphakathi evuliwe ekuphileni."
Izinkondlo
Izinkondlo zingasetshenziswa futhi kumaqembu asekela. Amazwi, imigqa, nezithombe ezinkondlweni zingabangela umuzwa noma imemori, okunye esingakuqonda, kuhlanganise nesipiliyoni sokuphila kwe-lupus. Izinkondlo ezifana nesipho sikaCzeslaw Milosz kanye ne- The Journey kaMary Oliver kungenzeka kube nenjongo enkulu.
Lapho ufunda izinkondlo, bheka imigqa oyikhonzile. Bathini kuwe? Ingabe bakakhumbuza ngokuphila kwakho nge-lupus? Uma kunjalo, ngaziphi izindlela? Isibonelo, umugqa ku-The Gift,
"Emzimbeni wami angizange ngizwe ubuhlungu /
Lapho ngisuka, ngabona ulwandle oluhlaza okwesibhakabhaka nezinyawo. "
ingase ivele kumuntu onokugula okungapheli komzimba okuhlobene ne-lupus. Le nkondlo iphathelene nosuku oluphelele. Ngabe usuku olungapheli lungakanani lomuntu one-lupus? Mhlawumbe kungaba usuku lapho umzimba wakho ungazwa ubuhlungu. Iyiphi indima inhlanzi enayo empilweni yakho? Ingabe kuthatha usuku lwakho oluphelele? Izinkondlo ezifana ne -Gift zingakusiza ukuthi usebenzise umcabango wakho futhi uhlole okuhlangenwe nakho kwakho nge-lupus kanye nokuphila, ngokujwayelekile.
Ngaphandle kokufunda izinkondlo, izinkondlo zokubhala zingabangela ukucindezeleka. Abanye abantu bagcina amaphephandaba asemaphepheni noma amabhulogi e-intanethi ngezinkondlo abazibhala nge lupus. Lena indlela yokuveza nokuphatha imizwa yakho ngokuphila nalesi sifo.
Ukuze uthole izibonelo zezinkondlo mayelana ne-lupus, yenza usesho lwe-intanethi yezinkondlo mayelana ne-lupus, noma hlola isigaba sezinkondlo sewebhu elidumile Kodwa Awubheke Ugula.
Akukhona nje kuphela ukuthi kungasiza ukubhala izinkondlo, kodwa ukufunda izinkondlo mayelana ne-lupus ebhalwe ngabantu abane-lupus kungasiza abafundi ukuba bazizwe bebodwa futhi baqonde kangcono. Ibuye iphakamise ukuqwashisa nge lupus nokuthi yini ngempela ethanda ukuhlala nesifo.
Futhi ngaphezu kwalokho, izinkondlo akuyona nje uhlobo lwezobuciko ezibhalwe phansi, kodwa kunesimo sezinkondlo esibizwa ngokuthi igama elikhulunywe, njengalokhu kusebenza ngumlobi uShanelle Gabriel mayelana nokunye okuhlangenwe nakho kwakhe kwasekuqaleni nge lupus.
Ubuciko bokubukwa
Yiqiniso, ubuciko bokubukwa njengomdwebo nokudweba kungasiza abantu ukuba babhekane ne-lupus, futhi. Ungase uzizwe uphefumulelwe ukudweba isithombe ukuze uhambisane nenkondlo okusho kuwe. Lokhu kusiza ngokukhethekile kubantu abakhetha ukuzwakalisa ngokwabo ngokudweba noma izithombe ezibukwayo kunamazwi.
Ukudweba, ukudweba nokubandakanya kwezobuciko kungabangela ukuphazamiseka okuhle ekuhluphekeni ngokomzimba nangokomzwelo wokugula. Ngokwesibonelo, "Umdwebo wangisiza kanjani ukuba ngisinde umdlavuza," umculi u-Andrea Feldman wabhala ngochungechunge lwakhe lwe-Artificial Warrior, "Lapho ngingahlala ngiphapheme, nganginesihlungu, kodwa ukudweba kwangisiza ukuba ngiphumelele ekuhluphekeni kwami ngokomzimba nangokomzwelo. ukudweba lapho ngingenza okunye okunye. Kwaba umkhuba oyingcwele wokungena ekukhuliseni, ekukhiqizeni imibala yemidwebo nemidwebo. "
Ngaphezu kwalokho, ubuciko bokubukwa bungasebenza njengethuluzi elinamandla lokukhuthaza. U-Regina Holliday wadala inhlangano yokugqugquzela okuthiwa i-Walking Gallery. Iziguli, abagqugquzeli, nabahlinzeki bezokwelapha babhala izindaba zesiguli ngemuva kwezingubo zebhizinisi ze-suit. Ewebhusayithi yakhe, wabhala mayelana nokuhamba nabahlanganyeli bayo "Baya emibuthanweni yezokwelapha lapho kuvame ukuba khona isikhulumi sesiguli esimisweni noma ezilalelini. Banikeza izwi lesiguli, futhi ngokwenza kanjalo, bayashintsha ingxoxo. "
Ifilimu
Ukubuka ama-movie kungaba umlando wemilingo nendlela ejabulisayo yokusinda ngokoqobo. Ama-movie angabuye abe namafilimu anamandla amakhulu okusiza ukuqwashisa ngendaba ethile, inkinga yomphakathi, izifo noma ukukhubazeka, nokunye. Ama-movie ayingxenye ebalulekile yamasiko amaningi ukuthi kukhona ngisho neSpoonie Film Club lapho abantu abanezifo ezingapheli bahlangana ndawonye, ku-inthanethi, ukubuka nokuxoxa ngama-movie.
Kukhona amafilimu akhethwe nge-Oscar mayelana nezifo nokukhubazeka, kanti abanye babo benza umsebenzi omuhle ngemifanekiso yabo. Futhi-ke kukhona izindaba zangempela, ezivela emthonjeni, eziqondiswa futhi ezidalwe futhi zibhekene nabantu abanezifo ezingapheli.
Isibonelo, i-documentary, Priority Seating, eqondiswa ngu-Andrea Sorkin yilapho impilo ifana nabesifazane abanezifo ezizimele. Kule filimu wachaza isisusa sakhe sokwenza idokhumenti, "Ngithemba ukuthi ngingakwazi ukuphuma ekugcineni kwalokhu ukuze abantu abanjengaye babe nokukhetha okuningi. Ngakho abantu abanjengaye ngeke babe ngabahlengikazi babo bokuqala ukunakekelwa Ukuze abantu abanjengaye bangangeni emalini yabo yonke impilo yabo ngoba begula kakhulu ukuba bangasebenzi. Futhi ukuze abantu abanjengami bakwazi ukuphupha futhi bangabanjwa ukukhubazeka okungabonakali. "
Umculo
Njengamanye amafomu wezobuciko, kokubili ukulalela nokudala umculo kunenzuzo yezempilo. Futhi kuhle ukuthi izingoma zokubhala zihlanganisa kokubili umculo kanye nezinkondlo-cishe njengomthamo ophindwe kabili wokuzikhulumela nokucindezeleka kokucindezeleka.
Umculi uChris Joyner usakaza ukuqwashisa kwe-lupus nge-rock n 'roll. Udadewabo, Dawn, une-lupus futhi wabhala ingoma yakhe ebizwa ngokuthi "Hold and Keep." Lokhu kubonisa ukuthi akudingeki ukuba ube ne-lupus ukuze uzuze futhi uphathe abanye ngobuciko bakho.
Umculi we-Jazz uStephanie Moore, onomphefumulo we-lupus, owabelane ngokubaluleka komculo empilweni yakhe, "Umculo kimi ngukuthi ngiphilisa, kungumuthi wami, yingxenye yethimba lami lokuphila kahle kanye nodokotela bami. Kungakhathaliseki ukuthi une-lupus noma noma yisiphi esinye isifo, usenayo ingoma ngaphakathi kwakho edinga ukuzwakala, wonke umuntu unengoma. "
Ngakho-ke noma uhlabelela ingoma yakho noma ngenye ingoma, ungakhohlwa ukubaluleka kokucula. Ukucula kuhlotshaniswa nezinzuzo eziningi zezempilo nezomzwelo. Kodwa kumnandi futhi!
Uma ubhale ingoma futhi ungathanda ukwabelana nomsebenzi wakho nabanye emphakathini we-lupus, i-YouTube namanye amasayithi omphakathi wezenhlalo yizindawo zokuthengisa ezinhle kakhulu. I-Lupus Awareness Gallery ye-Virtual Art Gallery, enezindlu ezihlukahlukene zobuciko, idale uhlelo lweNgoma lapho ungahambisa khona umsebenzi wakho.
Amahlaya
Ubani ongafuni ukuhleka ngaphezulu? Kungenzeka ukuthi kuhle kakhulu ukuthi ukuhleka kuhle kuwe. Kodwa kukhona izinzuzo zezempilo zangempela, ezibhalwe phansi zokuhleka. Ngaphezu kwalokho, kuyithuluzi lokubamba elihle kakhulu.
Abantu benza zonke izinhlobo zezinto zokwengeza ukuhleka okungaphezulu empilweni yabo-tshela amahlaya, bukela ama-movie ahlekisayo, uye kumbukiso wehlaya. Ngokuphambene nalokho abantu abangaphandle komphakathi we-lupus abangase bacabange, ukuhleka okuningi kuqhutshwa kumaqembu asekela i-lupus ngoba abantu batshela izindaba mayelana nohlangothi olungenangqondo lwe-lupus abanye abakuthintana nabo.
Kodwa kuthiwani uma singathola okunye okucacile futhi kuthiwani uma kukhona umculi nomculi owabhala izingoma ezihlekisayo ngokuqondene nokuhlangenwe nakho kwakhe nge-lupus nokugula okungapheli? Nakhu! UCarla Ulbrich, owaziwa nangokuthi i-Singing Patient, ungumlobi, umculi, nomculi obhala izingoma ezineziqu ezinjenge- "Prednisone" no- "Sittin" Ekamelweni Lokulinda. " Izingoma zakhe zidlulisela isipiliyoni sangempela se-lupus kodwa zikwenza uhlehle ohlelweni.
Mhlawumbe ungazizwa uhleka ngokuhleka nge-lupus namhlanje futhi udinga nje ukuphazamiseka okuhle, kodwa ukuphazamiseka okuhle. I-YouTube ine-comedy yokumisa okungapheli. Jabulela.