U-Lorenzo Odone wazalwa ngoMeyi 29, 1978, eMikhaela no-Augusto Odone. Ngesikhathi efika esikoleni ubudala waqala ukukhombisa izimpawu zezinkinga ngesistimu yakhe yezinzwa. Lapho eneminyaka engu-6 ubudala, ngo-1984, watholakala enesifo sokubeletha kwengane ye- adrenoleukodystrophy (ALD) , i-myelin eyinkinga eqhubekayo eguquguqukayo, okusho ukuthi i-myelin, "ukugxeka" ezungeze izinzwa, ihlehla ngokuhamba kwesikhathi.
Esimweni sikaLornzo, izinzwa ezibuchopho zabhujiswa kancane kancane. Ngokuvamile, abafana abanalesi sifo bakhubazeke ngokuphelele ezinyangeni ezingu-6 kuya eminyakeni emibili futhi bafa ngemva kwesikhathi.
Sesha Isifo
UMikhaela no-Augusto, ababhujiswa yi-Lorenzo, bathola ukucwaninga i-ALD nakuba bengenalo isayensi noma isizinda sempilo. Ekugcineni bafunda ukuthi i-ALD ishiya isidumbu esingakwazi ukuphula ama-molecule amakhulu amafutha, noma ama-molecule umzimba ozenzayo noma owenza umzimba ngokudla. Ngemuva kokusebenza kanzima, basiza ukuhlakulela i-oli eyenziwe ngomnqumo ne-rapeseed, okuthiwa ngokuthi " Amafutha kaLornzo ." Amafutha, uma aqala ekuseni kubafana ne-ALD kodwa azikho izimpawu, manje sekuyaziwa ukuthi inenzuzo ethile ekuvikeleni isimo se-ALD ukuthi uLorenzo wayenalo.
Ifilimu Isekelwe Odones
Ngo-1992 umqondisi uGeorge Miller uphendule indaba ye-Odones nomzabalazo wabo ukuthola imithi ye-ALD emabhayisikobho, "u-Lorenzo's Oil" ophethe uSusan Sarandon noNick Nolte.
USarandon wathola isikhundla se-Oscar sokuba uMnuz Best Actress esikhundleni sakhe njengoMikhaela Odone.
Ukuphila Nezifo zika-Lorenzo
Ngeshwa, uLornzo walala embhedeni futhi wayengakwazi ukuxhumana ngenkathi eneminyaka engu-7 ubudala. Abahlengikazi nabazali bakhe bamnakekela amahora angu-24 ngosuku. Waphathwa ngamafutha kaLornzo nakuba isifo sakhe sesivele sithuthukile.
Wabe esedlule isikhathi eside, wagcina eseneminyaka engama-30 ubudala. Wafa ngoMeyi 30, 2008, ngolunye usuku ngemuva kokuzalwa kwakhe okungu-30. Bobabili ubaba wakhe u-Augusto nomngani wakhe omdala u-Oumouri Hassane babeseceleni kwakhe lapho efa. (Umama wakhe wafa ngomdlavuza wamaphaphu ngo-2002.)
Umthombo:
> "Lorenzo Odone." I-Myelin Project. 04 Mar 2009