Uma uthola ukuthi unomdlavuza wamaphaphu, kungenzeka ukuthi uzwile ukuthi eziningi zokwelashwa ezintsha zitholakale ekuvivinyweni kwemitholampilo. Kodwa phakathi kwezilingo eziningi emhlabeni jikelele, futhi unikezwe ukuthi yonke imdlavuza ihlukile, ungayithola kanjani enye ehlangabezana nezidingo zakho ezithile? Ukuthuthukiswa kwamanje emdlalweni wamaphaphu wamaphaphu nokuphila kuyamangalisa, kodwa izinga lenza kube nzima kakhulu ngisho nomchwepheshe wekhanda lomaphaphu ukwazi konke okukhethwa kukho.
Ngenhlanhla, awuwedwa, futhi kukhona izinsiza kanye nezisebenzi zokuzithandela ezingasiza.
Ukuhlolwa Kwemitholampilo Ye-Cancer Cancer
Izivivinyo zemitholampilo zisinika ithemba lokuthi imithi emisha noma ukwelashwa kuzokwenza ngcono ukusinda noma izinga lokuphila ngezinga eliphakeme kunelashwa okwamanje etholakalayo. Ngokusho kweNational Cancer Institute, abantu abaningi abanomdlavuza wamaphaphu kufanele bacabangele ukuvivinywa komtholampilo . Kodwa ungayithola kanjani eyodwa?
Kukhona ithuba elikhulu kubantu abanomdlavuza wamaphaphu, kodwa sizofika lapho. I-oncologist yakho ingase isikisele ukuhlolwa kwesilingo, noma ungase ufise ukubuka izivivinyo ngokwakho. Izinsiza zokuthola izivivinyo zemitholampilo zifaka imininingwane yolwazi olusemtholampilo, kanye nezinsizakalo ezihambelanayo (ochwepheshe bangakusiza ekutholeni isilingo somtholampilo ngokuya ekuhloleni kwakho kanye nendawo oyifunayo ukwelashwa).
Ngaphambi kokufunda kabanzi mayelana nokuhlolwa kwemitholampilo kungasiza ukufunda mayelana nezinzuzo kanye nokuqapha kanye nemibuto okufanele ibuze, kanye nezigaba ezihlukene zokuvivinywa kwemitholampilo , isibonelo, uma isilingo somtholampilo isilingo sesigaba 1 esenziwa kubantu abambalwa nje ukucacisa ukuphepha, noma isilingo esikhulu sesigaba sesi-3 sibheke ezinkulungwaneni zabantu.
Khumbula ukuthi ucwaningo lwezokwelapha luyashintsha. Njengoba esikhathini esidlule, izilingo zesigaba I zazicatshangwa ngokuthi "izivivinyo zokugcina", manje kunabantu abaningi abanomdlavuza wamaphaphu abaphila kuphela ngenxa yalezi zivivinyo.
Ukuthi ukwenze kuleli khasi kusho ukuthi uthatha ingxenye esebenzayo empilweni yakho.
Ukuba yilunga elikhuthele lethimba lakho lokunakekelwa kwezempilo akusizi kuphela usizo kepha kubalulekile ezweni lethu eliguqukayo. Thatha iminithi ukuze ufunde kabanzi mayelana nokucwaninga umdlavuza wakho wamaphaphu ku-intanethi , kanye namathiphu ekuziphendulela ekunakekeleni komdlavuza wakho .
Izinsizakalo Zokuqhathaniswa Nezokwelapha Emtholampilo
Kuze kube nje nje nje nje, abantu bekufanele bathembele ku-oncologist yabo ukuba babe umphenyi ovivinyweni oluthile lomtholampilo, noma ukubhekisela komuntu ngesilingo. Lokhu kushintsha, futhi kanjalo nenani elikhulu lezilingo elenzelwe ukuthola imithi emisha yomdlavuza wamaphaphu.
Njengesifinyezo esisheshayo sendlela intuthuko esheshayo eyenziwa ngayo nomdlavuza wamaphaphu, ukwelashwa okutholakala emdlavuza wamaphaphu kuye kwaba ngaphezu kokuphindwe kabili kusukela ngo-2011. Kulabo abanokukhubazeka okuthile kwezakhi zofuzo emangqamuzaneni abo omdlavuza, umdlavuza wamaphaphu ngezinye izikhathi uphathwa njengesifo esingapheli . Ezinye izidakamizwa ze-immunotherapy ziye zaholela ekuphenduleni okuphawulekayo ngisho nalabo abanezicubu eziphambili kakhulu. Kodwa izidakamizwa zokuqala kulezi zigaba zavunywa kuphela ngo-2015.
Khumbula ukuthi ngayinye yalezo zindlela zokwelapha ezintsha zaqala njengesivivinyo somtholampilo, futhi kuzo zonke izilingo, abantu babe nethuba lokusebenzisa ukwelashwa okungcono kunalokho okwakungatholakali ngaleso sikhathi.
Manje, ukuhlanganiswa kwezidakamizwa ze-immunotherapy kusetshenziselwa ukuvivinywa kwemitholampilo futhi kunikeze ithemba lokuthi ngisho nangaphezulu yalezi zomshukela zingalawulwa. Ngokokuqala ngqa, izazi ze-oncologists ziyazibuza ukuthi ngabe abanye abantu abanesifo somdlavuza wegciwane lesigaba 4 bangaphulukiswa. Ngaphezu kwalokho, imishanguzo emisha ehlosiwe ifundelwa ukuguqulwa kwezakhi zangaphambili ezingenakuphefumula.
Ngaphandle kokuba uchwepheshe wezokwelapha ezihamba ngezinyawo kuwebhu, ukusebenzisa insizakalo yokulinganisa ukuhlolwa komtholampilo kuyithuba elikhulu. Namanje, ngisho noma ucwaninga wena ngokwakho. Futhi mahhala.
Isevisi Yokulinganisa I-Cancer Clinical Trials Service
Izinhlangano eziningana zomdlavuza wamaphaphu zihlanganise le nsizakalo yomuntu siqu, yamahhala futhi eyimfihlo kuphela kubantu abanomdlavuza wamaphaphu.
Ungakwazi ukukhuluma nge-navigator ye-trial trial efonini noma ifomu eliphelele le-intanethi ukuze ufunde mayelana nokuvivinywa kokwelashwa okungase kufane nesimo sakho.
I-Navigator ye-Emerging Med Ithola Izinketho Zomtholampilo
I-Emerging Med Navigator ikuvumela ukuthi useshe izivivinyo ezingaphezu kuka-10 000 zomtholampilo e-United States naseCanada e-inthanethi noma ngocingo. Isevisi ehambisanayo iyatholakala futhi; gcwalisa iphrofayela eningiliziwe ukuze ubone uma uhambelana nanoma yikuphi kwalezi zifundo. Ochwepheshe bokuhlolwa kwemitholampilo baxhumana nawe mahhala ngocingo ukuze uphendule imibuzo ngesikhathi sokusesha kwakho futhi kukusize ungene noxhumana nodokotela abaqhuba izifundo.
Ukwaziswa Kwemininingwane Yomtholampilo
Ulwazi lwemininingwane yokuhlolwa kwemitholampilo luyatholakala ku-inthanethi futhi likuvumele ukuba ufinyelele ezinhlobonhlobo zokuhlolwa kwezempilo. Ezinye ezimbalwa kunazo zonke zihlanganisa:
I-ClinicalTrials.gov
Lesi siqondiso sihlinzekwa njengesevisi yi-Institutes of Health kazwelonke futhi sibhala ngaphezulu kuka-55,000 ukuhlolwa kwemitholampilo. Izivivinyo zomdlavuza wamaphaphu zingatholakala ngokucwaninga ngaphansi kwe- "lung neoplasm."
IsikhungoWatch: Isevisi YokuLawulwa Kwezinkinga Zomtholampilo
I-CenterWatch inikeza uhlu lwamazwe omhlaba jikelele lwezilingo zomtholampilo kanye nolwazi lwezemfundo yesiguli ukukusiza ekwenzeni izinqumo.
I-National Cancer Institute
I-National Cancer Institute ibhala izinhlolo ezingaphezu kuka-6,000 zomtholampilo ezingasetshenzwa uhlobo lomdlavuza kanye nekhodi ye-zip (ukuhlolwa kwendawo kwenzeka).
Umphakathi we-Lung Cancer
Ngaphandle kokucwaninga ngezilingo zomtholampilo ngokusebenzisa udokotela wakho, ngokusebenzisa imininingwane yolwazi, futhi ngokusebenzisa insizakalo efanayo, ukubandakanya emphakathini womdlavuza wamaphaphu kuyindlela enhle kakhulu yokunquma ukuthi noma "awunayo" yini noma yini ekufuneni ukhetho lwakho noma ukusekelwa.
Iminyaka eyi-10 edlule ibone ukukhula okukhulu kwendima abantu abadlalayo ekunakekelweni komdlavuza wabo. Iminyango eminingi yomdlavuza manje isimeme abasindile (nge-scholarships) ukuya emihlanganweni. Kunezinhlangano zokusekela ku-intanethi, amaqembu e-Facebook, ngisho nama-tweet wengxoxo ku-Twitter lapho abasindile, abanakekeli nabanakekeli bengakwazi ukuxoxa ngokuqondile nabaholi be-oncologists, odokotela bama-thoracic, nabaningi abaphatha lesi sifo, nabacwaningi abafunda lesi sifo . Uma uqala ukubheka ezokuxhumana nabantu, qaphela i-hashtag #lcsm emele umdlavuza we-lung emphakathini, ukuze uthole abantu abalungile.
> Imithombo:
> National Cancer Institute. Ukwaziswa Kwemitholampilo Emitholampilo Nabanakekeli. https://www.cancer.gov/about-cancer/treatment/clinical-trials
> I-Library Kazwelonke Kazwelonke Yezokwelapha. Bonisa okuningi Izivivinyo zemitholampilo. Kubuyekezwe 02/21/18. https://medlineplus.gov/clinicaltrials.html