Ungaba kanjani ummeli wakho uma unomdlavuza? Uma usu-intanethi noma ufunda noma yini nje kamuva mayelana nomdlavuza, kungenzeka ukuthi uzwe i-lingo. Imisho efana nokuthi "ukuzimela," " yiba nesiguli esinikezwe amandla ," futhi "wabelane ngokuthatha izinqumo" kubhekisela ekushintsheni kwipharadigm yobudlelwane begulane nodokotela.
Kodwa uqala kanjani? Labo kithi abazalwa ngaphambi kwesizukulwane sikaJ bakhula ngefilosofi ehlukile mayelana nendima yeziguli nabahlinzeki bezempilo emnothweni wokunakekelwa komdlavuza. Kwakukhona ubudlelwane obungabonakali bokubeletha lapho iziguli ezinikezwe izimpawu, udokotela wenza ukuxilongwa nokunconywa ukwelashwa, khona-ke isiguli sathola leyo yokwelashwa.
Imithi ishintsha. Inkulumo ethi "imithi yokwenza iqhaza" ibhekisela ebuhlotsheni lapho, esikhundleni salesi sibonelo esiphelelwe yisikhathi, iziguli zisebenza ngokubambisana nodokotela bazo ukukhetha inkambo engcono kakhulu yokwelashwa komdlavuza.
Ungase uzibuze: "Ngingayenza kanjani lezi zinqumo ngingahambi esikoleni sezokwelapha? Ngiqala kanjani ukuzimela? Funda ukuqonda ukuthi kungani le mibuzo ibalulekile futhi ukuthola amathiphu okuqalisa.
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Kusho Ukuthini Ukuzivikela Ngomdlavuza?Ukuziphakamisa njengomuthi wesifo somdlavuza kusho ukumane uthathe indima enkulu ekuhloleni kwakho kanye nokwelashwa. Kusho ukuthi uqonde ukuhlolwa kwakho, ucabangele izingozi nezinzuzo zokhetho lwezokwelapha, futhi ukhethe ukwelashwa okukufanele wena njengomuntu ngamunye.
Yiqiniso, ukubamba iqhaza kule nqumo, kubalulekile ukuqonda okungaphezu kwesiguli esedlule. Kamuva, sizokwabelana ngemibono yokuthi singakwenza kanjani lokho.
Uma ucabanga ngokugqugquzela, ungase ucabange ngabantu abaphikisanayo futhi balwela amalungelo abo.Lokhu ngeke kube kude neqiniso uma kuziwa ngomdlavuza ukuzimela. Ukuba ummeli wakho akusho ukuthi ube nobuhlobo obunzima nodokotela wakho. Ngokuphambene nalokho, kusho ukusebenzisana nodokotela wakho njengethimba ukuza nehlelo lokuphatha kangcono kakhulu; uhlelo lwezokwelapha olwanelisa kakhulu udokotela wakho futhi luzokwenza kangcono izidingo zakho ezikhethekile zokunakekelwa okungcono kakhulu.
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Ukubaluleka kokuzimelaUmqondo wokuthi "ukuzimela" akuyona nje imfashini edlula, kodwa kungenza umehluko phakathi kokuphila nokufa. Izifundo zisitshela ukuthi iziguli (kanye nabathandekayo beziguli zesifo somdlavuza) abafunda okwengeziwe ngesifo sabo futhi bahileleka kakhulu ekunakekelweni kwabo kwezempilo, babe nekhwalithi engcono yokuphila. Ezinye izifundo zize zisho nokuthi bangase babe nemiphumela engcono.
Ngokuthuthukiswa kokwelashwa komdlavuza, kunezinketho eziningi ezitholakalayo kubantu abaphila nomdlavuza. Ngezinye izikhathi kunezinqumo eziningana mayelana nokwelashwa, futhi nguwe kuphela ongakwazi ukhetho olungcono kuwe. Nguwe ophila nomdlavuza, futhi nguwe kuphela owazi ukuthi ulaka olunjani olufisa ukuba lunokwelashwa, futhi yimiphi imiphumela emibi ozimisele ukuyibekezelela. I-oncologist yakho, abangani bakho, ngisho nomlingani wakho kanye nezingane zingase zenze isinqumo ngecebo elihlukile uma zibhekene nomdlavuza. Ukuzihlonipha akusho nje ukwenza isinqumo okulungile kuwe kuphela kodwa ukwazi ukubhekana nemibono yabanye abangase bahluke ngokuthandayo.
Ngesikhathi esifanayo ukuthi ucwaningo landa ngokucacile, iziguli manje zinokufinyeleleka cishe okungenamkhawulo kulolu lwazi okufanele zifundiswe zona. Ulwazi olufana ne-PubMed lunikezela ama-newspapers angenakubalwa wezokwelapha, futhi amawebhusayithi wezimo zezokwelapha avame. Umngane wami usanda kukhuluma ekilasini lokungena labafundi bezokwelapha okwenza lesi sitatimende: "Ngenxa yokufinyelela kolwazi lwezokwelapha ku-intanethi, kuhlangene nesisusa, iziguli eziningi zizokwazi okwengeziwe ngezifo zazo kunakho!"
Ukuzimela akusizi nje ukuthi ukhethe okukhethwa kukho futhi uthole izindlela ezintsha zokwelapha, kodwa kunciphisa ukukhathazeka nokwesaba okuhambisana nomdlavuza. Kushiya uzizwa unamandla futhi esihlalweni somshayeli.
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Funda Ngomdlavuza WakhoIsinyathelo sokuqala sokuba ummeleli wakho ufunde okuningi ngangokunokwenzeka ngomdlavuza wakho. Kunezindlela eziningi zokwenza lokhu.
- Buza imibuzo-imibuzo eminingi.
- Cabanga ngokuthola umbono wesibili, kahle esikhungweni somdlavuza esibamba inani elikhulu labantu abanomdlavuza ofana neyakho.
- Buyekeza ulwazi oluhlinzekwa yi-oncologist yakho namanye amalungu eqembu lomnakekeli womdlavuza.
- Cwaninga umdlavuza wakho ku-intanethi noma emtatsheni wezincwadi.
- Cabanga ngokujoyina umphakathi womdlavuza we-intanethi, inhlangano yomdlavuza, noma iqembu lokusekela umdlavuza .
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Buza imibuzoUkubuza imibuzo kubaluleke kakhulu uma ukhuluma ne-oncologist yakho. Ngesikhathi laba odokotela bejwayele ukuchazela iziguli kanye nokuphuma komdlavuza, wonke umuntu uthola ukuxilongwa ngomdlavuza onokuhlangenwe nakho okuhlukile. Ungesabi ukuphinda uphendule imibuzo uze unelisekile ukuthi uqonda izimpendulo.
Ukuletha umngane wakho ukuqokwa kungasiza kakhulu njengoba uzama ukukhumbula ukuthi udokotela wakho uthini. Abanye abantu bakuthola kuwusizo ukuthatha amanothi noma ukuba nomngane uthathe amanothi ngenkathi ekhuluma nodokotela wabo. Ungase ufise ukuletha ukuletha ulwazi olunikezwe ngabangani noma olutholakala ku-intanethi.
Ungesabi ukuthi uthatha isikhathi esiningi somdokotela wakho. Oncologists baqaphela ukubaluleka kokuphendula imibuzo. Kungakusiza futhi isikhathi esilandelayo-futhi ikhanda lamakholi wefoni-ukuqinisekisa ukuthi ushiya igumbi lokuhlolwa nemibuzo yakho iphendulwa.
Gcina inothi lokuzungezile phakathi kokuvakashelwa, futhi uma le mibuzo ingaphuthumanga, bhala uqobo ukuze ubuze ngokuvakasha kwakho okulandelayo.
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Imibono YesibiliKungenzeka ukuthi wezwa i-adage yakudala "amakhanda angu-2 angcono kuno-1." Ezokwelapha ezithinta iqiniso, futhi kuvunywa ukuthi abantu abaningi abanomdlavuza bazocela umbono wesibili .
Kubalulekile ukuthi uqaphele ukuthi udokotela oyedwa akakwazi ukwazi konke mayelana nohlobo ngalunye nohlobo lomuthi womdlavuza. Okuhlangene nalokhu, ukuthuthukiswa kokwelashwa kwamanye amagciwane okukhipha isifo somdlavuza, isibonelo, izidakamizwa ezintsha ezengeziwe zokwelapha umdlavuza wamaphaphu zivunyiwe phakathi nenkathi kusukela ngo-2011 kuya ku-2015 kunanoma yiminyaka engama-40 eyandulela ngo-2011. Ngaphandle kokwelashwa okuvunyiwe, ezinye ze-oncologists wazi kangcono izilingo zomtholampilo eziqhubekayo ngomdlavuza wakho - izilingo ezingase zibheke ngqo kuphrofayli ethile yomzimba womdlavuza wakho.
Kutholakale ukuthi imiphumela yokuhlinzwa yomdlavuza ingase ihluke kuye ngokuya esikhungweni sezokwelapha. Isibonelo, ivolumu ephezulu yokwelashwa (ngamanye amazwi, inqwaba yezinhlinzeko ezenziwayo) yayixhunyaniswe kakhulu ngokusinda phakathi kwabantu abanomdlavuza wamaphaphu. Hlola lezi zeluleko ekukhetheni isikhungo sokwelapha umdlavuza .
Esinye isici ngezinye izikhathi ezinganakwa ubuntu bodokotela wakho. Uma kuziwa emdlalweni, ungase usebenze nodokotela wakho isikhathi eside. Kukhokhwa ukuthola udokotela olala nobuntu bakho futhi ushiye uzizwe ukhululekile futhi uqiniseka ekunakekeleni kwakho.
Okushiwo abanye abantu abahluleka ukuyiqaphela, ukuthi ngisho noma umbono wakho wesibili (noma wesithathu noma wesine) udumisa uhlelo olufanayo lwezokwelapha njengowokuqala, uzoba nesiqiniseko sokuthi awushiyanga noma yikuphi amaqabunga avuliwe njengoba uqhubeka phambili ukunakekelwa. Ukuthula kwengqondo kungabaluleke kakhulu.
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Ukuthola Ulwazi Oluhle Lwezokwelapha OnlineNakuba kunemininingwane eminingi yokwelapha etholakalayo ku-intanethi, okwamanje akukho mithetho yokuthi ubani ongashicilela lolu lwazi. Ngenxa yalokho, kungaba nzima ukwazi ukuthi ulwazi oluvela ku-google search lubhalwe ibhodi labahlengikazi noma indodana yakho eneminyaka engu-13 yomakhelwane womakhelwane.
Yini okufanele uyibheke ekutholeni ulwazi oluhle lwezokwelapha kwi-intanethi ?
- Hlola i-URL. Uma iphela nge .gov, .org, noma .edu ingase ibe nokwethembeka ngaphezu kwesayithi eliphela ne-.com. Kunezindawo ezithile ezinhle kakhulu, kodwa hlola ezinye izinqubo ekugwebeni ulwazi.
- Ubani umbhali? Ingabe umuntu obhekene nalesi sihloko udokotela wezokwelapha?
- Ingabe lesi sihloko sibuyekezwe udokotela, omunye umhlinzeki wezempilo, noma ibhodi lokubuyekeza kwezokwelapha?
- Ingabe imithombo yolwazi ifakwe ohlwini? Uma kunjalo, ingabe lolu lwazi lwekhwalithi yokubhekisela lufana nezinhlolovo ezishicilelwe kumaphephandaba wezokwelapha abuyekezwa kontanga?
- Ungakwazi yini ukuhlukanisa ngokucacile ukwaziswa okukhulunywe ngakho kumakhangiso?
- Zikhona yini izixhumanisi zokuqhubeka nolwazi uma ufisa ukucwaninga ngale ndaba ngokujula okukhulu?
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Ukuxhuma Nomphakathi We-CancerNjengoba kuphawuliwe ekuqaleni, ukuxhuma neqembu lokusekela umdlavuza, umphakathi womdlavuza we-intanethi, noma inhlangano yomdlavuza ingaba usizo ekufundiseni ngomdlavuza.
I-caveat yukuthi kubalulekile ukukhumbula ukuthi ulwazi emakamelo okuxoxa futhi kusuka ezigulini ngabanye kungase kungakhulumi ngawe, noma kungaba nokungaqondile nakanjani. Kodwa lemiphakathi ingaba yisiqalo esihle kakhulu, ikakhulukazi uma ungaqiniseki ukuthi yimiphi imibuzo okufanele uyibuze. Isibonelo, kungani kufanele ubuze udokotela wakho mayelana nokuprofetha kwamangqamuzana uma unomdlavuza wamaphaphu ?
Ngaphambi kokuthumela noma yiluphi ulwazi lomuntu siqu, hlola lawa macebiso ekuphepha kwezokuxhumana kwezenhlalo eziguli zomdlavuza .
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Indlela Yokwenza Izinqumo Ezifanele EzokwelaphaUma usubuze imibuzo futhi uqoqa ulwazi lwezokwelapha, ungenza kanjani isinqumo esihle sezokwelapha mayelana nokunakekelwa kwakho? Ngokungafani nesikhathi esidlule lapho kunezinketho ezimbalwa zokwelashwa komdlavuza, manje sekuvame ukwanda kwezinketho-zombili ezivunyelwe futhi zitholakale ekuvivinyweni kwemitholampilo-okumele ukhethe kuzo.
Njengezinqumo eziningi kangaka esizenzayo empilweni yethu, ukwehlisa inqubo phansi kungenza kube lula, ikakhulukazi uma ubhekana nemibono ehambisana nokuxilongwa komdlavuza .
- Thatha isikhathi sakho. Izinqumo mayelana nokuphathwa komdlavuza ngokuvamile akuphuthumayo, okungukuthi, ungakwazi ukuthatha izinsuku ezimbalwa noma amasonto ambalwa ukuhlala futhi uhlaziye izinqumo zakho.
- Khuluma nabanye. Dlulisa ukukhetha kwakho ngabathandekayo bakho; baxoxe nabo ngethimba lakho lokunakekelwa kwezempilo, futhi cabanga ukukhuluma nabanye ngeqembu lokusekela umdlavuza noma umphakathi wesifo somdlavuza. Khumbula ukuthi lokhu okufakwayo kungabalulekile, kodwa isinqumo sokugcina siphezu kwakho. Ungazizwa ucindezelekile ekwenzeni isinqumo esingalungile kuwe.
- Hlola ubuhle nokuziqhenya kokukhetha kwakho . Ngaphezu kokuqonda ukuphumelela kwezokwelapha, uzodinga ukucabangela ezinye izinto ezifana nemiphumela emibi, izingozi, izindleko ngaphezu kwalokho umshwalense wakho ohlanganisa khona, kanye nezici zokungena ezifana nesidingo sokuhamba ukwelashwa, ukunakekelwa kwengane, kanye isikhathi sokusebenza.
Ukwenza isinqumo ngokuhlanganyela kusho okungaphezu nje kokulalela iseluleko sikadokotela wakho noma ukunikeza imvume enolwazi. Le nqubo, ngaphezu kokuhlolisisa izinzuzo nezingozi zokhetho lwezokwelapha, ikhumbula izindinganiso zakho, imigomo, kanye nezinto eziza kuqala njengokuyisisekelo sokhetho olwenzayo.
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Lapho Uzama Ukuba Ummeli WakhoKuthiwani uma ungaqinisekisi futhi ungathandi ukulwa? Kuthiwani uma uvame ukwenza amahloni futhi ungathandi ukubuza imibuzo ngokukhethekile? Ngizwe abantu bethi bafuna ukuba "isiguli esihle," noma besaba ukuthi uma bebuza imibuzo eminingi kakhulu, noma beza kakhulu, udokotela wabo ngeke abathande.
Abanye besaba ukuthi bazobonakala be-hypochondriac uma bekhalaza izimpawu eziningi kakhulu. Isibonelo, bangase banganqikazi ukuletha ubuhlungu ngenxa yokwesaba ukuthi uma beba nezimpawu ezimbi nakakhulu, bazoxoshwa.
Uma uzizwa ungenqikazi ukuzimela, cabanga ukuthi ungabekela kanjani umngane esimweni esifanayo. Yini ongayicela? Ungathini? Uma ungakhulumela umngane, zikhulume wena.
Uma usathola lokhu kunzima, ukhetho olulodwa ukuthi ube nomngane noma othandekayo omele eceleni kwakho. Ngenze lokhu ngokwabo kubangani abanomdlavuza. Kungaba lula kuwe ukuba omunye umuntu abuze imibuzo enzima, noma ukuletha izindlela onganelisekanga ngazo ngokuphelele ukunakekelwa kwakho. Kulesi silungiselelo, umngane wakho angakwazi "ukudlala umuntu omubi" ngenkathi udlala indima "yesiguli esihle."
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Ukuba Ummeli Wakho Ngomshwalense WezokwelaphaAkuyona nje impilo yakho ongase udinge ukuyikhuthaza, kodwa futhi i-pocketbook yakho. Ngezinhlobonhlobo ezihlukahlukene zezinhlelo zomshuwalense, eziningi zazo ezinemikhawulo ehlukene kanye neyodwa yokwelashwa, ukukhetha kwakho uhlelo lokwelapha kungase kuhambe ngaphezu kokuthandayo. Mhlawumbe uzwile indlela yokwelapha uhlobo lwakho lomdlavuza olunikezwa kuphela esikhungweni somdlavuza ongekho ngaphansi kwabanikezeli abathandwayo (isigaba sokuqala) ohlelweni lwakho lomshuwalense.
Funda ngokusebenzisa inqubomgomo yakho yomshuwalense wezempilo ngokucophelela. Amaphutha avamile njengokungaxoxiswanga izindleko zokunakekelwa kwenethiwekhi kungaba yindleko kakhulu kodwa avinjelwe kalula ngokucabanga okuncane. Xoxa nenkampani yakho yomshuwalense mayelana nanoma yiziphi izindawo ezikushiya uzizwe ungaqiniseki, futhi ucele ukuthi icala lakho libuyekezwe uma ucabanga ukuthi wehluleka komunye wemithetho.
Uma ungaqondi umthethosivivinywa wakho noma ubone amacala ongawulindele, ungayamukeli nje. Yenza ucingo. Ngezinye izikhathi ukuxuba okungahle kwenzeke kungabangela ukuphika komshuwalense ukuphika , ngisho nento elula njengokuthi usuku lwakho lokuzalwa lufake ngokungalungile ifomu lamakliniki. Hlola lawa macebiso wokuthi ungamelana kanjani nokuphikiswa komshuwalense .
Abanye abantu bangase bafise ukucabangela ukuqasha ummeli wenkokhelo yezokwelapha uma bexhaswe yinqubo yonke yomshuwalense. Ungase ungayiqondi izikweletu zakho, ugijime nalabo abanomshwalense wakho wenqaba ukukhokha noma ukugula kangangokuthi umcabango wokuhlunga ngalezo zincwadi ugaxa nje. Ungase unqikaze ukuthatha le ndlela ngoba lokhu kuyinkonzo ekhokhelwe-akuyona mahhala-kodwa kuye ngokuthi isimo sakho singase sibe ipeni elihlakaniphile le dollar eliwubuwula ukuze lihambe lodwa. Izikweletu zezokwelapha empeleni, imbangela ehamba phambili yokuqedwa komuntu e-United States.
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Izinyathelo Ezilandelayo ZokubambisanaUkufunda ukuba ngummeli wakho umdlavuza kufana nokukhuphuka intaba. Abanye abantu, lapho bathole indlela yabo eya emhlanganweni, bafisa ukwabelana ngalokho abaye bakufunda kwabanye abaqala uhambo lwabo; isidingo sokubuyisela ngandlela-thile.
Ngokuqinisekile, umdlavuza uyaqeda amandla, futhi akuwona wonke umuntu oyozizwa ngale ndlela. Kodwa ukusekelwa kanye nezeluleko zalabo "ababekhona" kuyinduduzo enkulu kwabanye.
Awudingi ukuqhuba ama-marathon, noma ukhulume emhlabeni jikelele ukwenza umehluko; awudingi ngisho nokushiya ikhaya lakho. Ukusetshenziswa kwezindaba zomphakathi kubantu abanomdlavuza kuyanda nsuku zonke; nemiphakathi eminingi kubandakanya inhlanganisela yeziguli, abahlinzeki bemindeni, abameli, abacwaningi, kanye nabaqeqeshi bezempilo. Eqinisweni, enye yentuthuko enkulu kakhulu yamuva ekulawulweni komdlavuza ibe "ukucwaninga okuphethwe ngesineke" -ukuhlola kanye nezifundo zomtholampilo ezenziwa ngokuphendula ngokuqondile iziphakamiso ezenziwe abantu abaphila nalesi sifo.
Eziningi zezinhlangano zomdlavuza, isibonelo, i-LUNGevity kanye neLung Cancer Alliance yomdlavuza wamaphaphu, noma i-Inspire, inemiphakathi emangalisayo yabantu ezindaweni zonke ekuhambeni komdlavuza wabo. Ezinye zalezi zinhlangano nazo zinikeza ngamasevisi afanayo (isibonelo i-LUNGevity Lifeline,) lapho othile osanda kutholakala ukuthi angaxhunyaniswa nomuntu oye wahlala nesifo okwesikhashana.
Encwadini yokugcina, kungakhathaliseki ukuthi ukuphi uhambo lwakho lomdlavuza kuhle ukuhlala unolwazi. Ucwaningo aluqhutshwa nje kuphela ngezokwelapha kodwa ngezindlela ezingenzeka zokunciphisa ingozi yokuthi umdlavuza uzobuya.
Imithombo:
I-American Society of Clinical Oncology. Cancer.net Ukunakekelwa Ukunakekelwa Kwakho. Kufinyelelwe ngo-07/01/15.
UHagan, T., noJ. Donovan. Ukuzimela kanye nomdlavuza: ukuhlaziywa komqondo. I-Journal of Nursing Advanced . 2013. 69 (10): 2348-59.
Luchtenborg, M. et al. Inqubo Ephakeme Ye-Procedure Volume ixhunyaniswe Ngokujulile Nokusinda Okuthuthukisiwe Ngemva kokuhlinzwa kwe-Cancer Lung. Journal of the National Cancer Institute . 2013. 31 (15): 3141-3146.