Bazokwamukelwa kahle kangakanani?
Ingabe i-syndrome engapheliyo ingabe inegama elisha? Lokho kuxhomeke ikakhulukazi ukuthi noma ubani ozosebenzisa lolu olusha oluphakanyisiwe.
Ngomhla ka-Februwari 10, 2015, iphaneli leNhlangano Yezokwelapha lihlongoze igama elisha kanye nemigomo entsha yokuhlonza isimo. Kodwa abazange bakhulume "i-myalgic encephalomyelitis" noma i-ME / CFS , ngakho-ke ochwepheshe bayangabaza ukuthi umphakathi wesiguli uzoyamukela yini igama.
Ukukunika umbono othile, iphaneli ibuyekeze izifundo ezingaphezu kuka-9,000 zesayensi, izwile ubufakazi bochwepheshe, futhi ithola ulwazi emphakathini ngaphambi kokwenza izincomo zayo. Kwabe sekuhlanganisa umbiko wekhasi angu-235 othi "Beyond Myalgic Encephalitis / Chronic Fatigue Syndrome: Ukuhlanza kabusha ukugula."
Igama elisha
Liyini igama? Isifo sokungabekezelelani kwesimo sokusebenza, noma i-SEID.
Amalungu wePhaneli athi leli gama lichaza isici esiyinhloko salesi sifo - ukungakwazi ukubekezelela amandla, okungokomzimba noma kwengqondo, okubizwa ngokuthi i-malaise post-exertional . Bavumelana neziguli kanye nochwepheshe abathi emashumini eminyaka ukuthi igama elithi "ukukhathala okungapheliyo" kugcizelela ukugula okungathí sina, nabantu bevame ukuphawula ngendlela abaphelelwa ngayo, ngakho-ke kufanele babe nakho.
Kodwa-ke, ngokusho kweNew York Times, abanye ochwepheshe bacabanga ukuthi ikomidi kumele lihlolwe nomphakathi we-ME / CFS ngaphambi kokuza negama elisha ukuze kuqinisekiswe ukuthi kukhona iziguli ezingayamukela.
Le mpikiswano iqhubekile kakhulu futhi isilokhu ishukuthele futhi ingokomzwelo ukuthi abanye abantu banamathele kakhulu amagama angu-myalgic encephalomyelitis, ME / CFS, noma i-CFS / ME.
Iphaneli liveza ukuthi kunezinkinga egameni elithi myalgic encephalomyelitis. Lelo gama lisho ukuvuvukala ohlelweni lwezinzwa, olungenayo ubufakazi obuqinile ngemuva kwalo, kanye nobuhlungu besisu, abakushoyo ukuthi akuwona uphawu oluvelele.
Abaningi emphakathini weziguli baye bagxeka iphaneli ngoba iningi lamalungu alinawo ubuchwepheshe obuwaziyo ngokugula. Kwakukhona namalungu amaningana anolwazi olunzulu ekwelapheni i-ME / CFS, noma kunjalo.
Ikhomba ukuthi ujabule
Iphaneli ibonakala iqondakala umonakalo igama lomlando eliye lazenza ezigulini ngokugxeka nokunciphisa ukuguquka kokuphila nokuguquka kanzima. Lokho kuyisiqalo esihle. Futhi, amanye amalungu ephaneli athi akakholelwa ukuthi igama eliphelele, kodwa ukuthi lingcono manje.
Izinto ezimbili okumele ziveze ngegama ngokwayo - lihlanganisa "uhlelo," olukhomba ngesisekelo somzimba, kanye "nesifo," igama labantu abaningi balinde isikhathi eside ukuzwa ngokuphathelene ne-ME / CFS.
Esinye isazi sithi lo mbiko uyisifinyezo esiphezulu sobufakazi awake wafunda. Iphaneli iphinde yaphawula ukuthi ucwaningo oluncane lwenziwa kanjani kuM ME / CFS uma kuqhathaniswa nokuthi bangaki abantu ababa nethonya.
Umngane walo mbiko uzochaza izinto ezibalulekile zokucwaninga zokuqhubekela phambili. Njengamanje kubuyekezwa ukushicilelwa yi-Institutes National Health.
Futhi-ke kukhona into engaba yingxenye ebaluleke kakhulu kulo mbiko: indlela entsha yokuxilonga.
Imfuneko Yokuthola
Umphakathi wesiguli usucele isikhathi eside ukuba i-US ithathe lokho okuvame ukubizwa ngokuthi yiCanada Consensus Criteria.
Kuyinto isinyathelo esihle, ke, ukuthi izindlela ezintsha zakhiwe, kodwa azifani, lokho.
I-criteria entsha ihlanganisa:
- Izinyanga eziyisithupha zokukhathala okujulile, okungahlongozwayo kanye ne-malaise postexertional kanye nokulala okungapheli;
- Izinkinga zengqondo noma ukubekezelelana ngokwemvelo (ukuzondeka kokuma) .
Odokotela abaningi baye bakhononda ukuthi incazelo ye-CDC, eye isetshenziselwa ukuxilonga abantu kusukela ngo-1994, ingaqondisa kabi abantu abanezinye izimbangela zokukhathala isikhathi eside, kuhlanganise nokucindezeleka. Lezo zinqubo zazihlanganisa nezinyanga eziyisithupha zokukhathala okuphikisanayo, okungahlongozwayo kanye nezimpawu ezine noma ngaphezulu ohlwini oluhlanganisa yonke imigomo emisha ngaphandle kokungabekezelelani kwe-orthostatic.
Kodwa-ke, kungenzeka, ngaphansi kwe-CDC, ukuhlonza i-ME / CFS ngaphandle kwezimpawu ezintsha zokugcina ukugcina ukukhathala.
Ukwamukela Umbiko
Ukuphikisana okude isikhathi eside futhi i-ME / CFS igxile iziguli nabacwaningi ngokumelene nohulumeni amashumi eminyaka. Ngenkathi lo mbiko kanye nephaneli owakhiqiza ngokuqinisekile akupheleli, kufanele ngizibuze ukuthi noma yini ezojabulisa bonke abantu abanenja kule mpi. Ngikholelwa ukuthi abanye bazoqhubeka bamukela mina ngenye indlela kungakhathaliseki ukuthi yini.
Kodwa-ke, ngithemba ukuthi abantu abenele bayokwamukela igama elisha ukuthi singagcina sishiya ngemuva kwenhlamba yesifo esingapheliyo sokukhathala futhi sifundise umphakathi ngokuphathelene nokukhubazeka kwangempela kwalesi sifo.
Ngaphezu kwalokho, ngithemba ukuthi umphakathi wezokwelapha uzobona inani locwaningo kanye nobuchwepheshe obuye baqala ukuhlanganisa lo mbiko futhi beza ukwamukela noma yini esiyisho njengesimo esingathí sina somzimba. I-criteria entsha yokuxilonga kangcono iveza izici ezibalulekile zalesi sifo futhi ingaholela ekuxilongweni okuqhubekayo nangokwethenjelwa nokucwaninga. (Ngemva kwakho konke, emashumini ambalwa edlule siye sabona izincazelo ezingaphansi kwezingu-20, okungenani ezinhlanu zazo zisadlala .)
Uma lo mbiko nomngane wakhe bekwazi ukwenza konke lokhu kanye nokuholela ekuthandweni kwentando ephakeme, kuzothatha indlela ende ekuphulukiseni izimpikiswano zempi yokuphikisana kanye nokuthuthukisa umbono wabantu abaphila nalesi simo.
Imithombo:
Ngaphandle kwe-Myalgic Encephalomyelitis / Chronic Chronic Fatigue Syndrome: Ukuhlanza kabusha ukugula. Institute of Medicine, National Academy of Sciences. Februwari 10, 2015. Wonke amalungelo agodliwe. Kufinyelelwe: Januwari 2016.
Cohen, Jon. Yenza okuhle ukuphelelwa yisikhathi ukukhathala syndrome, hello SEID. Isayensi ngaphakathi, i-American Association for the Development of Science, February 10, 2015. Wonke amalungelo agodliwe. Kufinyelelwe: February 2015.
U-Tuller, uDavid. Isifo sokuphelelwa yisikhathi eside sithola igama elisha. I-New York Times, ngo-February 10, 2015. Wonke amalungelo agodliwe. Kufinyelelwe: February 2015.