Uma uhlala ne- syndrome engapheli ( ME / CFS ), amathuba okuba ungena kubantu abaningi abacabanga ukuthi bayazi ukuthi kuyini. Bangase bathi izinto ezifana nokuthi, "Yebo, ngicabanga ukuthi nginakho, nami ngimatasa kakhulu ukuze ngithole ukulala ngokwanele."
Lapho abantu bezwa igama elithi "ukuguga okungapheli," kunengqondo ukuba bacabange ukuthi kuyincazelo enhle yokukhathala okuningi.
Emphakathini wethu wanamuhla, abantu abaningi bazizwa bekhathazekile ngezikhathi ezithile-ukukhathala kungenye yezikhalazo eziphezulu ezizwakalayo odokotela.
Nokho, empeleni, siyazi ukuthi i-ME / CFS yisifo esiyinkimbinkimbi nesinokulimaza. Uma usichazela abantu, kusiza ukugcina izinto zilula futhi ziqondise izimpawu zakho ezihlangenwe nakho ezivamile.
Ungase ufune ukuba nencazelo emfushane kubantu abaningi, futhi isikhathi eside kubantu abasondelene nawe.
Mhlawumbe indlela elula yokuchaza ukuphelelwa yisikhathi ukukhathala yi-syndrome yilezi: "Kuzwa sengathi nginomkhuhlane ngaso sonke isikhathi."
Abantu abaningi bajwayele ngokwanele lokhuhlane ukuze bathole lokhu. Ithi, "Angikhathele nje kuphela, ngigula ."
Ungakwazi ukuchaza ngokufushane ngokubhala ezinye zezibonakaliso zakho ezifana nomkhuhlane, njengama-aches omzimba, ama-fever aphansi-grade, umphimbo, futhi ukhathele ukuhamba.
Ngenkathi ukufaniswa komkhuhlane kubandakanya izimpawu ezimbalwa zakho, uzodinga ukuthola ezinye izindlela zokusiza othile ukuba aqonde izinto ezinjengobunkungu bobuchopho, ama-malaise emva kokucindezela, nama-flares / ama-remission.
Ukuchaza ubunkungu bobuchopho
Ukuze uchaze ubuhlungu bakho obuchopho noma ukungasebenzi kahle, khumbula ukusebenzisa okuhlangenwe nakho okuvamile ukusiza.
Cishe cishe wonke umuntu uye wathola okuthile futhi ukhohliwe ukuthi lokho kwakunjani, noma ulahlekelwe isitimela sabo phakathi komusho. Ungasebenzisa izinto ezinjalo, bese uchaza ukuthi kwenzeka kuwe ngaso sonke isikhathi.
Ukusebenzisa igama elithi "ubuchopho bobungqondo" njalo nxazonke kubangani nomndeni kuzobajwayele. Liyigama elihle elichazayo ngokwayo, futhi incazelo encane (efana "Ingqondo yami ifakwe namuhla") ingabasiza baqonde ukukhanya kwakho kwengqondo.
Ukuchaza i-Post-Exertional Malaise
Lesi sibonakaliso singase sibe nzima kunabantu ukuthi baqonde. Kumuntu ongenaye ME / CFS, ukuzivocavoca kwandisa amandla. Kuyisici esaziwa kakhulu ukuthi abantu bavame ukutshela umuntu onalezi zifo ukuze athole umzimba owengeziwe ukuze bazizwe beba ngcono.
Njengoba i -malaise emva kokucindezela kusho ukuthi uzoba namandla angaphansi , kunengqondo ukuthi abantu abakutholi.
Futhi, kungakhokha ukuthi ubuyele emuva enkambeni yemfucuza, ngento ethi: "Cabanga ngesikhathi sokugcina ugule kakhulu umkhuhlane (noma u-strep throat, noma mono) nendlela okukugqoka ngayo ukuze uhambe phansi Izitebhisi. Yilokho okusebenzayo kimi-kungikhathaza futhi kwenza izimpawu zami zibi nakakhulu. "
I-malaise ye-Post-exertional iyisimiso esinzima ukumboza ikhanda lakho nxazonke, ngisho nalapho uhlangabezana nakho.
Ups and Downs
Uma i-ME / CFS yakho inamaphutha nokukhishwa, lokho kungenye into engadideka ngempela kubantu. Ngokuvamile, abantu bacabanga ukuthi ukugula kuyinto ehlala njalo, ngakho-ke kaningi abatholi ukuthi ungaphila futhi usebenze usuku olulodwa (noma umzuzu) futhi ulale ngecala elilandelayo.
Indlela engcono kakhulu engiyitholile ekuchazeni lokhu yilezi: "Izimpawu zokugula zesifo sokuphelelwa yisikhathi ziyeza, zifana no-multiple sclerosis."
Ungaphinde uqhathanise ama-flares akho kumcibisholo wokugcoba, uchaza ukuthi kaningi ungazi ukuthi i-down drop elandelayo iza, okwenza kube nzima ukuhlela noma yini. Futhi, bazise ukuthi yiziphi izinto (ukuzama ukucindezeleka, ukucindezeleka, njll.) Okubangela ama-flares okuzumayo okuzumayo ukuze bawuthole uma kwenzeka ngokungazelelwe.
Incazelo Eminye Engokwemvelo
Ngesinye isikhathi, ungadinga othile ukuthi aqonde ukugula kwakho emibhalweni yezokwelapha. Ngama-ME / CFS, kulula ukuthola izincazelo zamaseli akhethekile e-immune-system kanye nomsebenzi we-neurotransmitter, okungukuthi noma ubani udokotela, cishe awusizo oluncane.
Indlela elula yokuchaza ukuthi kwenzekani emzimbeni wakho yilezi: "Isivikelo sami somzimba sokuzivikela ngigxilile ekudleni okuningi njengoba sizama ukulwa negciwane elibi, futhi sidonsa izinsiza eziningi zomzimba wami. Uhlelo lwami lwezinzwa lubuye lube ne-hypersensitive and over- uphendukela kuzo zonke izinhlobo zezinto. "
Ungabatshela ukuthi abacwaningi abaningi babiza i-ME / CFS ngokuthi "ugciwane" lwe-neuroimmune noma "neuroendocrine immune" ngenxa yenkimbinkimbi yalo nokubandakanya izinhlelo eziningi.
Unayo izimpawu zakho ezihlukile, ngakho-ke uzodinga ukwenza ngezifiso izincazelo zakho ukuze uvumelane nesipiliyoni sakho. Kungumqondo omuhle ukucabanga ngakho ngaphambi kwesikhathi, ngakho unganika umuntu impendulo ehloniphekile ngisho nalapho ubuchopho bakho bubuthaka.