Ukubhekana nomdlavuza wokuqeda amandla nokuphila impilo yakho engcono kungaba yinselele ngezindlela eziningi. Ngokwemvelo, izinkinga ngokugwinya kanye nokulahlekelwa isisindo ngokuvamile zidinga ukunakekelwa. Ngomzwelo, ungase uhlangane nezikhathi zentukuthelo, ukungakholwa, nokukhungatheka. Ukuphila kuyashintsha emphakathini cishe wonke umuntu obhekene nomdlavuza njengoba izindima zomndeni zishintsha futhi ubungane obuningi bujula ngenkathi abanye bewela.
Ukuphila akumi lapho abantu bethola ukuxilongwa komdlavuza, futhi izindaba ezingokoqobo ezivela ezimalini kuya ezikhathazweni zomshuwalense ziholela ekucindezelekeni.
Lokho kusho ukuthi kukhona amathuluzi amaningi angasiza ekubhekaneni nokuthola ukusekelwa okudingayo njengoba ubhekene nalesi sifo.
Uzwela
Kungakhathaliseki ukuthi unesifo somdlavuza osengcupheni noma isifo se-metastatic esithuthukisiwe, ukuthola ukuxilongwa kuyafana. Kuyadabuka okwenza impilo yakho iphenduke phansi. Abantu abaningi baphawula ukuthi baqala ukubheka izimpilo zabo njenge "BC" ne "AC," ngokubhekisela "ngaphambi komdlavuza" futhi "emva komdlavuza."
Lokho akusho ukuthi ngeke ube nezikhathi zenjabulo, ngisho nombono wokubonga nokwazisa impilo ongazange ucabange ngaphambili. Noma ubani owakhulume ngokuthi "kufanele uhlangabezane nempilo yakho ukuqonda ngokugcwele ukuphakama" kungenzeka ukuthi ubhekene nokuthile okufana nawe manje.
Imizwelo Ye-Array
Ukuba nomuntu oyedwa noma ababili empilweni yakho kanye noba ngubani ongaba othembekile futhi oqotho kungabaluleke kakhulu ngenkathi elwa nomdlavuza.
I-Cancer iyinhlanganisela ephezulu ye-highs kanye ne-lows kanye nemizwa egcwele yezimzwelo. Esikhathini esiningi le mizwa ayitholakali kunoma yiliphi iphethini elisethiwe, futhi ungase uhambe uzizwe ujabule futhi unethemba lokucindezeleka nokucindezeleka, ngosuku noma ngisho nangomzuzu. Kungokwemvelo ukuzwa intukuthelo, ukwesaba, ukukhungatheka nokucasuka.
Phela, usanda kunikwa ukuxilongwa ukuthi akekho umuntu ofanelekayo futhi akulungile .
Kubalulekile, futhi empeleni ukuzihlonipha, ukukhuluma ngale mizwa ngomunye umuntu. Ngaphambi kokwenza kanjalo, cabanga ukuthi ubani owaziyo empilweni yakho ongesiye ukwahlulela futhi angalalela nje. Abantu abaningi bazama "ukulungisa" izinto ngisho noma yizinto ezingenakunyulwa. Kodwa ngenxa yokuthi umngane akanalo ikhambi, akusho ukuthi awufuni ukuvuselela imizwa yakho.
Khumbula ukuthi akudingeki ube nesimo sengqondo esihle nomdlavuza ngaso sonke isikhathi. Ngenkathi ungase uzwe lawa mazwana kaningi, asinayo izifundo ezitshela ukuthi ukuhlala imiphumela emihle kakhulu. Eqinisweni, ukuveza imizwelo emibi njengokwesaba kwakho, intukuthelo yakho, intukuthelo yakho, nokukhungatheka kwakho kunganciphisa ukucindezeleka kanye nama-hormone avuthayo imizimba yethu ikhiqiza lapho igxilile.
Izinsiza Zokubhekana Nezinkinga
Izikhungo eziningi zomdlavuza manje zinikeza ukwelulekwa kubantu abanomdlavuza nabathandekayo babo. Akukhona nje kuphela ukuthi le mindeni ingasiza ukuxhumana nokusiza labo abaphila nomdlavuza, kepha ezinye izifundo zithole ukuthi zingathinta nokuphila (okungenani kubantu abanomdlavuza webele).
Kulabo abahlukumezeka ngokubona "ochwepheshe," ungase ufise ukuwubuka njengokuvimbela noma njengomshuwalense ngokumelene nezinye izingcindezi ozothola ngokuphumelelayo ohambweni lwakho.
I-Linings yesiliva
Ngokuqinisekile asifuni ukuhlambalaza izinselele zangempela futhi angeke sikhuthaze ukuthi umuntu ahluke ekuboniseni ukwesaba kanye nentukuthelo eyenziwa ngumdlavuza. Kodwa kulabo abahlukumezayo, kungasiza ukwazi ukuthi ucwaningo lusitshela ukuthi umdlavuza ushintsha abantu ngezindlela ezinhle kanye nezindlela ezicacile ozibonele zona. Abantu abaningi abanomdlavuza babhala ukwazisa okusha ngokuphila, ububele obuningi kwabanye, amandla angaphakathi angaphakathi, nokujuliswa kobudlelwane obuhle empilweni yabo.
Uma ukuthola kunzima ukuthola izinsimbi zesiliva, abanye abasindile bathole ukuthi ukugcina iphepha lokubonga kusiza.
Kulo magazini ungabhala phansi izinto ezintathu ozibonga ngazo ngosuku ngalunye. Ezinsukwini ezithile, ungase ukwazi ukubhala kuphela, "ayikho i-bulb ekhanyayo endlini yethu eshonile namhlanje." Noma kunjalo, abantu abaningi baye bakuthola lokhu kuyasiza.
Enye inqubo eye yasiza abasindile abaningi ukuba babhekane nakho "ukuqhuma." Ukumisa kabusha kubhekene nesimo esifanayo kodwa ukuhumusha ngendlela ehlukile. Isibonelo, esikhundleni sokulila izinwele zakho ezincane ezivela kumakhemikhali, mhlawumbe ungakujabulela ukuphumula.
Physical
Umdlavuza we-Esophageal ungenye yezinkinga zomdlavuza ezinzima kakhulu ngoba uphazamisa umsebenzi wansuku zonke iningi lethu elithatha kalula: ukudla nokugwinya ukudla. Ukulahlekelwa isifiso, ukulahlekelwa isisindo, nokukhathala cishe yonke indawo, futhi kungaphinda kuthinte indlela ozizwa ngayo ngokomzimba kanye nangokomzwelo.
Ngenhlanhla, i-oncologists manje igcizelela kakhulu izinga lokuphila ngesikhathi sokwelashwa futhi kuningi okungenziwa. Ungalokothi unganqikaze ukushiwo uphawu. Empeleni isenzo sesibindi sokuxoxa nodokotela wakho ngezinto ezikhathazayo futhi ucele usizo. Ukukhathazeka okuvamile ngokomzimba kufaka okulandelayo.
Ukwehlisa Izinkinga
Ngesikhathi umdlavuza we-esophageal uthola ukuthi abantu abaningi sebevele bashintsha ukudla kwabo futhi baye baqeda ukudla okunjengokudla kanye nemifino eluhlaza. Izikhathi ezivame ukwenziwa, i-esophagus iyancipha ibe ngamaphesenti angu-10 kuphela okulinganayo ngesikhathi sokuxilongwa. Kodwa kunezinto eziningi ezingenziwa.
I-oncologist yakho ingase ibe nomsebenzi wezokwelapha ukuze ufunde ukugwinya ngaphandle kokukhipha. Kungenzeka ukuthi ubona isondlo sokudla okunomdlavuza ongakusiza ongakusiza ekuqondiseni ukudla okuzokwazi ukukubekezelela. Ubuhlungu bungelashwa ngemithi.
Kunezinqubo eziningana ezahlukahlukene ezingahle zenziwe ukuze kuvuleke isisindo futhi, kusukela emithini yokwelapha imishanguzo kanye nokwelashwa kwelaser ukubeka i-stent nokuningi. Uma unenkinga yokuthola ukudla okwanele, angase ancoma ithubhu yokudla.
Ukulahlekelwa Isisindo Nokulahlekelwa Ukudla
Ukulahlekelwa isisindo kungaba yinselele futhi abantu abaningi baye bawela okungenani amakhilogremu ambalwa ngesikhathi bexilongwa. Sifunda ukuthi umdlavuza we-cancer , inqwaba yezibonakaliso ezihlanganisa ukulahlekelwa isisindo, ukulahlekelwa kwesisindo somzimba, nokulahlekelwa yidla , akugcini nje ekunciphiseni ikhwalithi yokuphila kodwa kuyimbangela ebalulekile yokufa.
Ngaphezu kokukhuluma nomdlavuza we-oncology, i-oncologist yakho ingase iphakamise izithako. Kukhona neminye imithi engasetshenziselwa ukuthuthukisa ukudla.
Ukukhathala
Ukukhathala kuseduze nendawo yonke futhi kungathinta inhlalakahle ngokomzwelo. Ungase ukhungatheke ukuthi awukwazi ukuhlanganyela emisebenzini oyenzile ngaphambilini. Labo abakuzungezile abangaqondi umehluko phakathi kokukhathala komdlavuza nokukhathala okujwayelekile kungase kungaqondi, futhi lokhu kungase kwengeze ekukhungathekeni kwakho. Ukukhathala okuhambisana nomdlavuza akukwazi ukuqedwa kalula ngobusuku obuhle bokulala.
Izeluleko ezimbalwa eziye zabasiza abanye abantu ukuthi babhekane nokukhathala komdlavuza zihlanganisa:
- Ukufunda ukucela nokuthola usizo: Ukwamukela usizo kungaba nzima uma uhlale uzimele. Enye indlela yokucabanga ngalokhu, noma kunjalo, ukucabanga ngalabo abahlinzeka ukusiza. Abathandekayo bavame ukuthi enye yezinto ezinzima kunazo zonke ababhekana nazo lapho othandekayo enomdlavuza kungumzwelo wokungabi namandla. Ngokwamukela usizo, ngeke nje uzisize, kodwa uzosiza othandekayo wakho ukuba abhekane nalokho kunzima kakhulu.
- Ukugcizelela usuku lwakho: Hlela imisebenzi efuna amandla amaningi ngesikhathi sosuku lapho uzizwa ungcono.
- Ukuzivocavoca umzimba okulinganiselwe: Kungase kuzwakale kungaqondakali, kodwa ukuvivinya umzimba okulinganayo kungasiza kokubili ukukhathala nokunciphisa ukulahlekelwa kwesisindo.
- Ukuzihlanganisa: Zinike imvume yokuthatha isikhathi eside ukwenza imisebenzi. Ukuthatha isikhathi sesikhathi esifushane sokuphumula usuku lonke, kunokuzama ukufeza okuningi ngesikhathi esisodwa, kuyasiza kakhulu.
Ukuzimela Ekukhuselweni Kwemdlavuza
Uma utholakala, kubalulekile ukufunda okuningi ngangokunokwenzeka ngomdlavuza wakho. Ukucwaninga ngomdlavuza wakho kungakusizi nje ukuthi uzizwe ulawula isimo sakho futhi ukwazi ukwenza izinqumo kangcono, kodwa kwezinye izimo uye wenza umehluko ngomphumela.
Uma unenkinga yokuba ngummeli wakho siqu lokhu kungase kube yindima yomuntu oyithandayo ongagcwalisa. Futhi, abathandekayo bavame ukuzizwa bengenasici futhi bakusize ngokuya endaweni yokuqokwa, ukuphakamisa imibuzo nodokotela wakho, ukubhekana nezinkinga zomshuwalense, nokuningi kungagcwalisa isidingo somthandekayo wakho ngenkathi kukusiza ukuba ubhekane nesifo.
Social
Ngesikhathi esifanayo lapho siyazi ukuthi ukuhlukanisa ukuxilongwa komdlavuza kungahlukaniswa kanjani, sifunda ukuthi ukuxhunywa komphakathi kubalulekile ekukhuliseni izinga lokuphila kubantu abaphila nomdlavuza. Ukuxilongwa kokungalingani kuthinta kanjani abantu emphakathini, futhi yini ongayenza?
Izinguquko zobudlelwane
Ubudlelwano bungashintsha ngokuphawulekayo. Ungathola ukuthi abangane abakudala ongabe ulindele ukusekela kwakho okukhulu ngokungazelelwe kuphele. Lokhu akusho ukuthi bangabantu ababi. Akuwona wonke umuntu ongakwazi ukubhekana nokungaqiniseki nokwesaba okuza nokuxilongwa komdlavuza.
Ngesikhathi esifanayo, ungathola ukuthi abantu abade kakhulu, noma abangane abasha, badlala indima enkulu kakhulu empilweni yakho. Uma uthola ezinye zezinguquko ezibuhlungu, awuwedwa.
Emndenini indima yakho ingase ishintshe. Kuye ngendima yakho yangaphambilini, lokhu kungase kube enye yezinto ezibucayi obhekene nazo. Uma uthola ukucasuka ngoba usuphenduke "indima" ebalulekile, khumbula ukuthi kunezinzuzo eziningi ezingabonakali ngaso leso sikhathi. Ukufunda ukwamukela kungaba yinto eningi yothando njengokupha, kanti abanye abashadile bathole ukuthi le ndima-ukushintsha nomdlavuza kwandise ubuhlobo babo ngendlela ekhethekile kakhulu.
Ukusekela imiphakathi
Amaqembu okusekela angabalulekile kakhulu ekunikezeni ithuba lokukhuluma nabanye ababhekene nezinselelo eziningi ezifanayo futhi futhi indlela yokuzwa mayelana nocwaningo lwamuva mayelana nomdlavuza we-esophageal. Kungani? Ngoba abantu abaphila nalesi sifo bashukumiseleka kakhulu ukufunda.
Kodwa akusiwo wonke umuntu ojabulela amaqembu, futhi kungenzeka ukuthi angeke kube nesigaba sokusekela esophageal emphakathini wakho. Ngisho noma kukhona iqembu lokusekela lomdlavuza jikelele, ungase ungaboni nabanye abane-khansa ehlukene. Ukukhathala okuhambisana nokwelashwa kungalimaza ikhono lakho lokuya emhlanganweni.
Ngenhlanhla, i-intanethi manje inikeza abantu indlela yokuxhumana nabanye nomdlavuza ofanayo kuwo wonke umhlaba. Awudingi ukushiya induduzo yendlu yakho. Kukhona imiphakathi yokusekela inthanethi (njenge-Inspire nokuningi) namaqembu e-Facebook amaningana aklanyelwe ngqo labo ababhekana nomdlavuza we-esophageal. Uma ungumuntu oyimfihlo, la maqembu angakunika indlela engaziwa, uma ufisa, ukuba uhlanganyele emphakathini.
Ukubhekana Nokuhlukunyezwa
Umdlavuza we-Esophageal, njengomdlavuza wamaphaphu, uye wenza inhlamba yokuba "isifo sokubhema" nakuba ifomu elivame kakhulu lomdlavuza wokuphelelwa yisisu namuhla alihlobene nokubhema nhlobo. Noma kunjalo, ngisho ne-squamous cell cancers, akekho okufanele abe nokubhekana nombuzo othi, "Ingabe ubhema?" futhi wonke umuntu onomdlavuza ufanelwe ukusekelwa kanye nokunakekelwa okufanayo.
Uma unenkinga yeminye imibono engacabangi abantu abakwenzayo kungasiza ekuqapheliseni ukuthi okuyisisekelo esibuza ukuthi abantu abaningi banethemba lokuthi u-yebo, ukucabanga ukuthi kuzokwenza ukuthi bangaphansi kengozini. Kodwa noma ubani one-esophagus angathola umdlavuza we-esophageal, kungakhathaliseki ukuthi ababhemayo noma cha.
Kuyawusizo
Kubonakala sengathi wonke umuntu unomatasa kakhulu kulezi zinsuku, futhi akanayo umdlavuza. Ukuphonsa umdlavuza ngaphezu kohlu lwakho lokuzenza kungenza uzizwe njengotshani wokugcina emhlane wekamela. Yiziphi ezinye zezinto ezikhathazayo?
Umsebenzi
Labo abasebenza ngesikhathi sokuxilongwa akumele babhekane nomdlavuza wabo kuphela kodwa ukuthi benzeni ngomsebenzi wabo. Izindlela zokwelapha umdlavuza we-esophageal, ikakhulukazi uma uhlinzwa, ngokuvamile uguqula umdlavuza wakho ube ngumsebenzi wesikhathi esigcwele.
Ngaphambi kokuba ukhulume nomphathi wakho noma abasebenza nabo, kungaba usizo ukubuka kahle ukuthi yini ongakhetha ngayo. Umthetho waseMelika onokukhubazeka udinga abaqashi ukuba banikeze "indawo yokuhlala efanelekayo" kulabo abanochola. Lokhu kungabandakanya ukusebenza kude, ukuguquguquka ngamahora omsebenzi, nokuningi. Inhlangano engenzi inzuzo I-Cancers ne-Careers inikeza ulwazi oluhle kakhulu nolusizo njengoba uhamba ngendlela okufanele uyenze kuze kube sekusebenzeni.
Noma kunjalo, ngisho nezindawo zokuhlala, abantu abaningi bakuthola kunzima ukusebenza. Ngisho noma ngabe awusayidingi, kuyasiza ukuhlola uhlelo lokukhubazeka onalo emsebenzini noma uhlelo olukhubazekile olungaba nalo. Ukufaka isicelo sokukhubazeka kwezenhlalo nakho kuyindlela kodwa kungathatha isikhathi. I-oncology abasebenzi bezenhlalakahle bavame ukuncoma ukwenza lokhu ngokushesha nje lapho ucabanga ukuthi kungadingeka.
Ukukhathazeka ngokwezimali
Ukukhathazeka ngezimali kubalulekile kwabaningi ababhekene nomdlavuza. Ukuphila nemiphumela emibi yomdlavuza ngokwayo kanye nokwelashwa komdlavuza ngokuvamile kwenza kube nzima ukusebenza, kanti ngesikhathi esifanayo izindleko zakha.
Ukuthenga i-notebook engabizi ngesikhathi sokuxilongwa nokugcina wonke amaresidi akho kufolda eyodwa kungasiza ekulandeleni izindleko zakho zezokwelapha. Lokhu kungasiza njengoba uqala ukubhekana nezikweletu eziphakama futhi kubalulekile uma uhlela ukubandakanya ukwehliswa kwezokwelapha ezintela zakho. Ukwehliswa kwentela kubantu abanomdlavuza kungabandakanya konke okuvela kumalimboli akho odokotela ukuya ku-mileage oya kuyo ukwelashwa.
Uma unenkinga yokwelashwa, isisebenzi senhlalakahle esikhungweni sakho somdlavuza singase sibe neziphakamiso ezithile. Kukhona nezinye izinketho zokusiza ngezezimali kubantu abanomdlavuza onganikeza usizo ngezindleko ezivela ezindleleni zokuhamba kuya ezindlebeni zemithi yokwelashwa.
Enye inketho iphakamisa enye imali ngokwakho. Kusuka ku-Go Fund Fund ama-akhawunti ukuhlela i-fundraiser , kunemibono eminingi engaphandle kwebhokisi yokubhekana nokuphazamiseka kwemali yomdlavuza.
Ukuphela Kokukhathazeka Kokuphila
Akekho othanda ukukhuluma ngalokho okungase kwenzeke uma noma uma ukwelashwa sekuyeka ukusebenza futhi sesiye safunda ukuthi lezi zingxoxo ezibalulekile zivame ukushiywa ngomzuzu wokugcina, ziphika abantu abaningi ukwesekwa nezinsiza ababengayithola.
Ukulungiselela ukuphela kokuphila akuyona into okufisa ukuyenza, kepha kungasiza ukuqinisekisa ukuthi izifiso zakho zihlonishwa uma umdlavuza wakho uqhubeka. Ukubhekana nomdlavuza wokuphela akuyona into umuntu angayenza yedwa. Uma unqikaza ukukhulisa lezi zingxoxo, khumbula ukuthi abathandekayo bakho bangase bazizwe ngendlela efanayo futhi babambele ukuze bangakusizi.
Kubangani Nomndeni
Bambalwa abantu abahamba ngomdlavuza wedwa futhi abangani nomndeni bahlangabezana nemizwelo efanayo kanye nezinkinga eziningi endleleni. Ngandlela-thile, umuzwa wokungabi namandla njengomnakekeli kunzima nakakhulu.
Ukunikeza Ukusekela
Kunezindlela eziningi ongase ukwazi ukusekela othandekayo ngomdlavuza , kodwa okubaluleke kakhulu ukumane ulalele. Abantu abaningi bafuna "ukulungisa" izinto, kodwa kaningi izikhathi abantu abanomdlavuza bafuna ukuzwakala.
Esikhundleni sokugxila kulokho ongayenza kothandekayo wakho, cabanga ngalokho ongaba khona kubo. Ukwesaba okukhulu kwabantu abaningi abanomdlavuza kuyafa yedwa. Khumbuza othandekayo wakho kaningi ukuthi ukhona futhi awukho ndawo.
Ukuthola Ukusekela
Sikhuluma okuningi mayelana nendlela yokunakekela umuntu onomdlavuza kodwa ukuzinakekela njengomnakekeli konke kubaluleke kakhulu. Kubalulekile ukufinyelela ohlelweni lwakho lokusekela. Akukwenqabeli othandekayo wakho noma ukuziqhenya ukuze uthathe isikhathi sakho. Kunalokho, "ukuzinakekela" okuhle kubalulekile uma ufuna ukuhlinzeka othandekayo wakho ngokunakekelwa okufanele.
Siphinde sizwe okuningi mayelana namaqembu okusekela kanye nemiphakathi yokusekela abantu abaphila nomdlavuza. Ezinye izinhlangano zomdlavuza, ezifana neCancerCare, ziqaphela izidingo zabanakekeli futhi zinikeza amaqembu asekela kanye nemiphakathi ikakhulukazi abahlinzekeli.
> Imithombo:
> Society of American of Clinical Oncology. I-Cancer.Net. Ukubhekana Ne-Cancer.
> Bast, R., Croce, C., Hait, W. et al. Holland-Frei Cancer Medicine. UWiley Blackwell, ngo-2017.
> National Cancer Institute. Ukubhekana Ne-Cancer.