Izinto okufanele uzicabange uma une-cystic fibrosis
I-cystic fibrosis ayiseyona isifo esiyingane kuphela ebuntwaneni. Abantu abaningi abane-cystic fibrosis bahola ukuphila okukhiqizayo kuba abantu abadala, kanti abanye babo banezingane zabo. Amadoda amaningi ane-cystic fibrosis ngokuvamile ayinyumba. Amaphesenti angaba ngu-95 wamadoda aphethe i-CF alahlekelwe yi-vas deferens, i-tube ehlanganisa ama-testes ku-urethra.
Ngokungafani namadoda ane-CF, abesifazane abaningi bayakwazi ukukhulelwa.
Abesifazane abaningi abane-cystic fibrosis abakhulelwe bayakwazi ukuthwala ukukhulelwa kuze kube yisikhathi. Kunezinto eziningi ongacabanga ngazo nganoma yimuphi umbhangqwana ohlela ukuba nezingane. Kodwa-ke, uma omunye wabazali abanakho abane-cystic fibrosis, kunezinto ezingaphezulu okufanele zicatshangelwe. Nazi izinto ezimbalwa ongathanda ukwazi uma uhlela umndeni wakho
Ukuqonda Ingozi Yengane Yakho Yokufa I-Cystic Fibrosis
Uma une-cystic fibrosis, lokho kusho ukuthi unamakhophi amabili angalungile wegciwane le- CFTR . Uzodlula enye yalezi eziya kumntanakho. Umntanakho uzoba ngumthwali noma abe nesifo se-cystic fibrosis, kuye ngokuthi isakhi esivela kumlingani wakho.
- Uma umlingani wakho enezigameko ezimbili ezijwayelekile ze-CFTR, ingane yakho izoba nesakhi esisodwa esingafaneleki kuwe kanye nesinye isakhi sofuzo esivela kumlingani wakho. Lo mntwana uzoba ngumthwali we-cystic fibrosis.
Uma umlingani wakho enesifo esisodwa esivamile kanye nesinye se-CFTR esingafanelekile, uyithwala. Ingane yakho iyoba nethuba elingamaphesenti angu-50 lokuba nesifo se-cystic fibrosis namaphesenti angama-50 ithuba lokuba ngumthwali, kuye ngokuthi yiliphi igciwane ingane ezuze yona kumlingani wakho.
Ukuvivinya ngezifo ukuze uthole ukuthi ngabe umlingani wakho ungumthwali uyatholakala yini futhi angakusiza wenze izinqumo ezinolwazi mayelana nokuba nezingane ndawonye. Kunezinye izinketho ezingaphezu kokukhulelwa kulabo abafuna ukwandisa imindeni yabo. Ukusebenzisa iqanda noma umnikezeli wesilisa noma ukwemukela kungaphinda uqedele umndeni wakho.
Ukukhulelwa Izinselele ze-Cystic Fibrosis Iziguli
Umthamo wokukhulelwa ungaba nzima ukwenza i-cystic fibrosis. Izinkinga ezivamile kubesifazane abakhulelwe abane-CF zihlanganisa:
Ukwanda kanzima ukuphefumula. Ukunciphisa umsebenzi wephaphu kungaba yingozi kulabo abane-cystic fibrosis. Lena ingozi enkulu kakhulu yokukhulelwa kwabesifazane abane-CF.
Ukwandiswa kwezifo zokuphefumula. Ukunciphisa umsebenzi wamaphaphu kungabangela izifo zokuphefumula, okuzokwenza kube nzima ngisho nokuphefumula.
Isifo sikashukela . Izinguquko zomzimba ngesikhathi sokukhulelwa zingabangela abesifazane abanempilo ukuba babe nesifo sikashukela. Ingozi inkulu nakakhulu kwabesifazane abane-cystic fibrosis ngenxa yomonakalo we-CF obangela ama-pancreas.
Ukungondleki. Ukukhulelwa okuqhubekayo kwandisa amandla emzimbeni, okwenza ukondleka okwanele kunzima nakakhulu ukulondoloza.
Abesifazane abane-CF ngokuvamile benza kangcono ngokukhulelwa uma kuhlelwe ngoba bathola ukuqapha okusheshayo kusukela ekuqaleni. Izazi zakho ze-cystic fibrosis yizazi phezu kwesimo sakho futhi kufanele ukhulume nabo ukuthola ukuthi unempilo ngokwanele yokumelana nokucindezeleka kokukhulelwa.
Uma ukhulelwe, kufanele uyeke ukuthatha noma yikuphi u-A, D, E, noma amavithamini K ongase ube nawo. Esikhundleni salokho, shintsha amavithamini angakabakho okubeletha nge-supplemental Vitamin E.
Ama-antibiotics afana ne-fluoroquinolones kanye ne-tetracyclines kufanele futhi amiswe.
Umthombo:
Edenborough, F., et al. (2008). Iziqondiso zokuphathwa kokukhulelwa kwabesifazane abane-cystic fibrosis. Journal of Cystic Fibrosis. (7) i-S2-S32.