Izibonelo Zethemba - Ukuphila Ngokugcwele ngeCystic Fibrosis
Ingabe kukhona abantu abaye bakwazi ukuphila ngokugcwele nokuphila okunenjongo naphezu kokuba bathole ukuxilongwa kwe-cystic fibrosis ? Ukuqaphela ukuthi abantu abaningi ngisho nabantu abadumile baye baphila ngokugcwele nge-cystic fibrosis kungaletha ithemba kulabo abaphila nalesi sifo, nemindeni yabo, namuhla.
Ukuphila ne-Cystic Fibrosis
Eminyakeni eyizinkulungwane edlule ukuxilongwa kwe- cystic fibrosis (CF) okuqinisekisiwe kuqinisekiswe ukuthi kuncane kakhulu kunesikhathi sokuphila esijwayelekile.
Izingane ezitholwe zingalindelekile ukuba ziphile isikhathi eside, futhi ngisho namashumi ambalwa eminyaka adlule, kwakungavamile ukuba ingane neCF ifike kubantu abadala.
Namuhla, ngenxa yemithi yesimanje kanye nokuqonda okuthuthukisiwe kwezifo, abantu abane-CF bangabangela ukuphila okugcwele futhi okunenjongo.
Abantu abadumile abane-Cystic Fibrosis
Laba bantu abadumile abane-cystic fibrosis baye bangaphezulu nangaphezulu kwalezi zifo zokufakazela ukuthi ungaholela ngokugcwele ngeCF.
1. Lisa Bentley
U-Lisa Bentley, owazalwa ngo-1968, ungumuntu waseCanada. Utholwe eminyakeni engama-20 ubudala, uye wadlula isikhathi esiphezulu sokuphila kwalabo abane-CF, futhi uyaqhubeka nokuphila impilo ekhuthele kakhulu. I-Bentley igcizelela ukubaluleka kokunamathela ngokuqinile emiphakathini yokwelapha nokuzivocavoca kubantu abahlala neCF. Unqobe imincintiswano engu-11 ye-Ironman futhi ingenye yezintathu ezintathu eziphumelele kakhulu.
Esikhundleni sokubheka isimo sakhe njengengozi, uBly wabhala ebhukwini likaDisemba 2016, "ukuhlupheka kubangela ubukhulu." Ngokuqondene nokwabelana ngethemba elitholile nabanye uthi, "njalo lapho ngigijimela, ngangazi ukuthi umncintiswano wami wanikeza inhloso ephakeme ukunikeza imindeni ithemba lokuthi izingane zabo ezineCF zingakwazi ukufeza izinto ezifanayo ekuphileni." Siyabonga, Lisa, ngokusiletha ithemba.
2. Gunnar Esiason
U-Gunnar Esiason, owazalwa ngo-1991, uyindodana yenkampani yangaphambili ye-NFL uBoomer Esiason nomkakhe uCheryl. UGunnar watholakala ene-cystic fibrosis lapho eneminyaka emibili ubudala. Kuyathakazelisa ukuthi uBommer wayebandakanyekile emikhankaso yokuqwashisa ne-fundraising ngeminyaka eminingana ngaphambi kokuthi indodana yakhe itholwe.
UBommer nguye osungula i-Boomer Esiason Foundation, inhlangano engeyona inzuzo efuna ukukhuthaza ucwaningo lwe-CF nokuthuthukisa izimpilo zabantu abane-cystic fibrosis. UGunnar uphumelele eBoston College nabaqeqeshi bebhola eliphezulu esikoleni saseLong Island, eNew York.
3. Nolan Gottlieb
UNolan Gottlieb, owayengumdlali webhola basketball kanye nomqeqeshi webhola basketball eAnderson University eSouth Carolina owazalwa ngo-1982, watholakala ene-cystic fibrosis esemncane. Wabhekana nokukhula okuncane ngesikhathi esemusha, kodwa wakhuliswa ngemuva kokuthola ithebhu yokudla eyayisemathunjini. Isidlali se-basketball sika-6'1 "ekugcineni sagcwala indawo eqenjini lika-Anderson likaVarsity basketball. Njengabanye abagijimi abaningi abane-cystic fibrosis, uGottlieb ugcizelela ukubaluleka kokusebenza ngokomzimba kubantu abane-CF futhi uthemba ukuthi indaba yakhe izogqugquzela abanye abantu abasha ababhekana nalesi sifo ukuphishekela amaphupho abo.
4. UJames Fraser Brown
UJames Fraser Brown, owazalwa ngo-2006 uyindodana kaNdunankulu waseBrithani uGordon Brown, futhi wathola ukuthi une-cystic fibrosis ngenxa yesimo sokuhlola ukuzalwa okusha . Ukuxilongwa kwamangala kwabakwaBrowns, ababengazi ukuthi bayithwala lesi sifo. Indaba yakhe ubufakazi bezinzuzo zokuhlolwa kwezingane ezisanda kuzalwa nge-cystic fibrosis .
Ngokuhlolwa kokuzalwa okusha, ukwelashwa kungaqaliswa ngokushesha kunokuba ulinde izimpawu nezimpawu ze-cystic fibrosis njengokungondleki noma ukucindezeleka kokuphefumula. Kubalulekile ukuqaphela ukuthi ukuhlolwa okwenziwe okwamanje kubantwana abasha kuyisivivinyo sokuhlola kuphela; Ukuhlolwa okuqhubekayo kuyadingeka ezinganeni ezivivinya ukuthi zikhona ukuthi zinezinkinga zokuthi zinama-cystic fibrosis noma cha.
U-Alice Martineau
U-Alice Martineau wayengumculi waseBrithani. Waphumelela ngezinga lokuqala elivela ekilasini likaKing's College eLondon futhi waba nomsebenzi owuphawulekayo wokuzifanela nokucula. UMartineau wabhala futhi wakhuluma njalo ngesimo sakhe futhi walinda ukufakelwa kathathu (inhliziyo, isibindi, kanye nephaphu).
Wadlula ngo-2003 evela ezinkingeni eziphathelene ne-CF lapho eneminyaka engu-30. Ngokujabulisayo, ngisho nangesikhathi esifushane kusukela ekufeni kwakhe kuze kube manje, kwenziwa inqubekela phambili enkulu ekwelashweni kwe-cystic fibrosis.
6. U-Travis Flores
U-Travis Flores, owazalwa ngo-1991 futhi wathola ukuthi une-CF enyangeni enezinyanga ezine, wabhala incwadi yezingane ebizwa ngokuthi "The Spider Who Never Gave Up" ngosizo lwe- Make-A-Wish Foundation . Wasebenzisa ingxenye yokuthengisa evela encwadini yakhe ukuze abuyele emuva ku-Foundation kanye nezinhlangano zeCF nocwaningo. Ukhulise ngaphezu kwezigidi eziyizigidi zamaRandi ku-Cystic Fibrosis Foundation futhi uyisikhulumi njalo nomkhulumeli wenhlangano. Wathola i-BA ekwenzeni i-Marymount Manhattan College ne-Master's Degree evela eNew York University (NYU) kanti manje uhlala eLos Angeles, eCalifornia.
UNathan Charles
UNathan Charles, owazalwa ngo-1989, ungumdlali we-rugby ophumelelayo wase-Australia. Utholwe ukuthi une-CF ngesikhathi esemncane. Odokotela batshele umndeni kaCharles ukuthi ngeke aphile esikhathini sakhe sokuzalwa kweshumi. Cishe eminyakeni engamashumi amabili kamuva, uCharles udlala isikhundla se-hooker futhi unqobe amaqhawe amaningana. Ucatshangwa ukuthi nguye kuphela umuntu ophethe i-CF yokudlala imidlalo yokuxhumana ngokusemthethweni. UCharles manje useyinceku yeCystic Fibrosis Australia.
Ukuphila ne-Cystic Fibrosis
Njengoba kucacile ekufundeni kwalaba basindile kanye nentshonalanga ye-cystic fibrosis, abantu abaningi manje bakwazi ukuphila ngokugcwele nokuphila okuphawulekayo nalesi sifo. Kukhona abantu abaningi abangakhulumi ngokuphila ngokujulile, nakuba bengadumile, ngenxa yokuthuthuka okukhulu kokwelashwa okuye kwenzeka eminyakeni embalwa edlule. Okwamanje, isikhathi sokuphila sesifo sisondele eminyakeni engama-40, sinethemba lokuthi ukuthuthukiswa okuqhubekayo kuzokwandisa lokhu okwamanje.
Lapho ufunda ngalaba bantu, uyazibuza ukuthi kungaba njani ukuhlala ne-cystic fibrosis? Bheka indaba kaZoe - intombazanyana ehlala neCF .
Imithombo:
Ilabhulali Kazwelonke Yezokwelapha yase-US. I-Medline Plus. I-Cystic Fibrosis. Kubuyekezwe 02/15/16. https://medlineplus.gov/ency/article/000107.htm