Indlela Yokuphila Ukuphila Okugcwele Nge-CF
Eminyakeni eyizinkulungwane edlule, i-cystic fibrosis (CF) yayicatshangwa njengesijeziso sokufa. Ukuphila ne-CF kwakusho ukuchitha isikhathi esiningi sibhekene nokuphefumula nokuzama ukugwema ukuhlupheka kuze kube yilapho usufa ngokungazelelwe ngesikhathi usencane. Ngenhlanhla, lokhu akusasekho. Namuhla, abantu abane-cystic fibrosis baphila isikhathi eside kunanini ngaphambili, ngokuvamile baba phakathi-abadala.
Isizukulwane samanje sithola ukuthi ukuhlala neCF kusho ukufunda ukubhekana nesimo, ukubhekana nethemba nokuthola okuvamile.
Ukufunda Indlela Yokubhekana Ne-CF Diagnosis
Ukuxilongwa kwe-CF kuyinkimbinkimbi kakhulu futhi yonke imindeni iphendula ngokuhlukile. Ukufunda ukuthi ingane yakho inesifo esibulalayo yisipiliyoni esishintsha ukuphila. Uma ukushaqeka kokuqala sekuphela, ungaqala ukwakha ibhokisi lakho lamathuluzi amakhono namasu okubhekana nokubhekana ne-CF ukunakekela ingane yakho.
Nazi izinto ezine zonke ibhokisi lamathuluzi le-CF okufanele lifake.
Ulwazi. Buza, ubukele, ufunde, futhi ufunde konke mayelana ne-CF ungathola izandla zakho. Kuningi okumele ufunde, ngakho-ke kungokwemvelo ukuthi uzoba nemibuzo eminingi endleleni. Thatha amanothi! Ungathembeli kwimemori yakho, izohluleka ngesikhathi sokucindezeleka. Bhala phansi noma yikuphi imibuzo ongayithola encwadini yezincwadi ezilinganiselwe. Gcina i-notebook yakho ngaso sonke isikhathi futhi ulungele ukubhala amanothi akho njalo uma ubona odokotela bakho.
Ukusekela. Zibandakanye namaqembu okusekela. Xhuma nezinye iziguli ze-CF nemindeni yabo. Akekho owaziyo ukuthi uhamba kanjani njengomuntu oye wawela phansi ngendlela efanayo. Zizungeze nabantu abangakuqondisa njengoba udala indlela yakho.
Uhlelo. Ukubhekana nokuphila kwansuku zonke nge-CF kungadala.
Yazi zonke izindlela zokwelashwa, imithi, kanye nemithi yokwelashwa oyodinga ukuphatha isimo somntanakho. Dala uhlelo oluhlela yonke le misebenzi - imithi, ukwelapha, nezinye izindlela zokwelapha - ohlelweni lwakho lwansuku zonke.
Amandla. Ungase uzwe amazwi amaningi adikibayo avela kubantu abanomqondo omuhle kodwa abantu abangaziwa. Khumbula ukuthi i-cystic fibrosis isetshenziselwa izinto eziningi ezingasekho. Noma kunjalo, abanye bangase bangazi lokhu. Ungakwazi ukufundisa abanye nge-CF, kodwa uma ukhetha ukungenzi kahle lokho. Lindela ukubhekana nokungabi nandaba, kodwa ungakuvumeli ukuthi uthole okungcono kakhulu kuwe. Zama futhi uhlunge umsindo wangemuva bese ulalele labo abanolwazi olubanzi lwe-CF, njengabahlinzeki bezempilo bezingane zakho.
Ukuhlela Ukuphila Okugcwele Nge-CF
Njengoba manje usuqalile isu lokubhekana nokuhlolwa kwe-CF, isinyathelo esilandelayo ukuqala ukuhlela ikusasa lesikhathi esiseduze nesikhathi eside. Izingane ezine-CF zingahlela ukuphila njengabantu abadala ngoba sifundile izindlela ezingcono zokuphatha i-CF. Ukuvimbela umonakalo kusukela esemncane kuyindlela kuphela yokunikeza izingane nge-CF ithuba lokuba abantu abadala. Lo umthwalo omkhulu kubazali futhi uhilela umhlatshelo owodwa okudingekayo.
Nazi izindlela ezintathu zokuqinisekisa ukuthi ingane yakho inekusasa elihle kakhulu.
- Hlela isimiso. Ukwelashwa kwe-CF ngokuvamile kudinga ukuthatha imithi ngaphambi kokudla, ukufaka imishanguzo izikhathi ezimbalwa ngosuku, nokwelapha ukwelapha izikhathi ezine ngosuku. Ukufanisa lezizinto empilweni yakho kungaba yinselele. Noma kunjalo, ukuzivumelanisa kuyisihluthulelo sempumelelo. Ukuhlela konke okudingayo ukukwenza kungasiza ukulondoloza isikhathi nokunciphisa umthwalo.
- Yiba nomdlandla. Uma unesimiso, zama bese unamathela kuso. Uma izinto ziba nzima, ungase ulingeke ukuba weqa ukwelashwa noma uhlehlise imithi. Ungenzi! Ukungaphumeleli ngisho nesinye isinyathelo sokwelashwa kungabangela ukushiyeka okukhulu. Ukunamathela esimisweni kuzokusiza ukuba uhlale endleleni futhi ufundise ingane yakho imikhuba emihle ngekusasa.
- Funda ukugubha. Abazali abaningi bezingane abane-CF bathola ukuthi badliwa kakhulu nezidingo zabantwana babo ukuthi bayakhohlwa ukuzikhathalela bona. Ungavumeli lokhu kwenzeke noma uzophuthuma ngokushesha. I-CF isithembiso sokuphila konke. Ngeke uhambe. Uzodinga ukuthola izindlela zokwenza kube yingxenye yokuphila kwakho ngaphandle kokuvumela ukuba kube impilo yakho yonke.
Ukufunda ukuhlala ne-CF kungabangela ukucindezeleka kuwo wonke umuntu ohilelekile, kodwa kuvame ukwethusa izingane zakubo ezingase zibe mncane kakhulu ukuqonda ukuthi yini ephila neCF. Abantakwethu abadala bangase besabe ukuthi umfowabo noma udadewabo uzofa, abe nomona ngakho konke ukunakekelwa kogogo wabo ogulayo, noma bazizwe benecala lokuthi baphilile futhi umfowabo noma udadewabo akayena. Kubalulekile ukufaka izingane zakini ku-equation, uqiniseke ukuthi abalahleki ekuthungeni.
Ukuthola uhlobo olusha lokujwayelekile
Ukuguquka kokuphila emva kokuhlolwa kwe-CF. Ngisho nangemva kokuba ingane yakho ifike emdala, i-CF izoqhubeka idlala ingxenye enkulu empilweni yakho. Ingane yakho ingadinga usizo olwengeziwe ngokunakekelwa ngokomzimba ngisho nalapho ekhula. Ngaphezu kwalokho, uzodinga ukucabangela isimiso sabo sokwelashwa lapho uhlela imicimbi yomndeni.
With tweaks ezimbalwa lapha futhi, ingane yakho ingaphila impilo evamile . Abantu abane-CF bangaya esikoleni, babe nabangane, badlale imidlalo, bashade futhi babe nezingane, futhi babe nomsebenzi ophumelelayo.
Ungaphupha omkhulu ngisho noma wena, noma ingane yakho, unayo i-CF. Beka imigomo yesikhathi esifushane ukukusiza ukuthi ufeze uhlelo lwakho lokuphila, kodwa uguquke. Kungadingeka wenze ezinye izinguquko endleleni.
Umthombo:
Umbazi, DR, & Narsavage, GL (2004). Ukuphefumula kwesinye isikhathi: Ukuphila ne-cystic fibrosis. Journal of Nursing Pediatric. 19, 25-32.
I-Havermans, T. & De Boek, K. (2007). I-cystic fibrosis: Isenzo sokulinganisela? Journal of Cystic Fibrosis. 6, 161-162.