Ukuzivocavoca kwakudinga ukudikibala phakathi kwabantu abane- cystic fibrosis (CF) ngoba kwakucatshangwa ukuthi ukukhuphuka ngokweqile kungandisa izinkinga zokuphefumula. Manje siyazi ukuthi okuphambene empeleni kuyiqiniso. Ucwaningo luye lwabonisa ukuthi umsebenzi owenziwe ngokomzimba wanikeza izinzuzo eziningi kubantu abane-cystic fibrosis.
Ake sikhulume ukuthi yiziphi lezo zinzuzo eziqondile, yimiphi imisebenzi engcono kakhulu, ukuthi kufanele usebenzise kangakanani futhi kangakanani, futhi kubaluleke kangakanani, kubaluleke kangakanani ukuthi usebenze nodokotela wakho ukuze wakhe uhlelo lokuzivocavoca olufanele.
Kungani Ukuzivocavoca?
Izinzuzo zezempilo zendlela yokuphila esebenzayo zihlonishwa kabanzi kubo bonke abantu. Noma kunjalo, ukuzivocavoca kubaluleke kakhulu kubantu abane-cystic fibrosis ngoba kungaba:
- Ukwandisa umthamo wamaphaphu
- Ukwandisa amandla nokukhuthazela
- Ukwandisa amandla
- Ukwandisa isikhathi sokuphila
- Thuthukisa imvume yezindiza, okusiza ukuvimbela izifo zokuphefumula
- Ukwandisa amathambo omzimba nokuvimbela ukulahleka kwethambo
- Yiba nethonya elihle enhlalakahleni
- Yiba indlela ephumelela kakhulu yokubhekana nokuhlukumeza komzimba we-muscle
- Ukuzuzisa ngezindlela ezingaphezu kwe-fibrosis ye-cystic
Sebenza Ngodokotela Wakho
Sizobhekana neminye yemibuzo evamile mayelana nokuvivinya umzimba kubantu abane-cystic fibrosis ngezansi, kodwa kubalulekile ukuqaphela ukuthi wonke umuntu uhlukile. Izifundo zisitshela ukuthi yini engasebenza ngezibalo, kodwa abantu abangekho izibalo. Kungase kube nesizathu sokuthi into enhle ebantwini abaningi ngeke ibe kuhle kuwe, futhi ngokufanayo.
Eqinisweni, isizathu esibaluleke kakhulu sokuxoxisana nabantu abane-cystic fibrosis ukuqinisekisa ukuthi wonke umuntu onesifo uthatha isikhathi sokuba nengxoxo egcwele nodokotela wabo. Ezokwelapha sivame ukubeka amandla engeziwe ekuxoxiseni imithi kanye nezinqubo-izinto esizenza njengodokotela, esikhundleni sezinto ezifana nokuzivocavoca ongakwenza wena.
Kodwa ukungabi nesikhathi isikhathi esichitha ukuxoxa ngomzimba akusho ukuthi kubaluleke kakhulu kunemithi oyithathayo kanye nezinqubo ozenzayo ukuze uhlale uphilile nesifo sakho.
Lokho kusho ukuthi izikole zezokwelapha nezinhlelo zokuhlala zibeka ugcizelele kakhulu ekwelapheni okuthile okungasiza nge-cystic fibrosis. Kuze kube yilapho imithi ithola izinzuzo ezitholakala ekuzivocavoca, lokhu kungase kube ingxoxo oyidingayo ukuze uqale njengesiguli esinikezwe amandla.
Izinhlobo Zokuzivocavoca Ukwenza
Nakuba abantu abaningi abane-cystic fibrosis bekwazi ukubekezelela uhlobo oluthile lomsebenzi wokuzivocavoca, inani kanye nohlobo lokuzivocavoca ongalubekezelela luzohluka ngenxa yobukhulu bokugula kwakho. Kulabo abangakwazi ukubekezelela, ukuzivocavoca kwe-aerobic kubonakala kuhlinzeka ngenzuzo enkulu kakhulu. Ukuzivocavoca kwama-aerobic kuhlanganisa imisebenzi efana nokubhukuda, ukuhamba ngebhayisikili, ukugijima, noma noma yimuphi omunye umsebenzi onamandla ophakamisa izinga lakho lenhliziyo futhi okwenza uphefumule kanzima. Kubalulekile ukuqaphela ukuthi ukuhamba kungaba uhlobo oluhle kakhulu lokuzivocavoca. Uma ugijima uzwakala ngaphandle kombuzo, ungakhathazeki. Uhlelo oluhle lokuhamba lunganikeza inzuzo enkulu kakhulu.
Okuvame ukunganaki lapho ukhuluma ngokuzivocavoca, ukuthi udinga ukuthola uhlobo lokuzivocavoca oyithandayo.
Umsebenzi wakho womzimba kufanele ube okuthile okubheka njengokujabulisayo. Sonke siyazi ukuthi kwenzekani kubantu abaningi uma benza izinqumo zanoma yiluphi uhlobo. Abanye abantu bayakwazi ukuqhubela phambili futhi bahloniphe izinhloso zabo ezinhle, kodwa iningi lethu, lezo zinhloso azenzeki ngaphandle uma sithanda lokho esikwenzayo.
Ungakanani Okufanele Uzivocavoca?
Umbuso jikelele wesithupha ungukuthi ukuze uthole inzuzo enkulu, imizila yokuzivocavoca kufanele ihlanganise imizuzu engu-20 ukuya kwangu-30 yomsebenzi we-aerobic kathathu ngeviki okungenani. Kodwa-ke, noma yikuphi ukuzivocavoca kungcono kunokuba akukho ukuzivocavoca nhlobo nokuzivocavoca kufanele kulungiswe ngokwezinga lomuntu ngamunye lokubekezela.
Ngokuvamile, imvamisa ibaluleke kakhulu ukuthi ubude. Isibonelo, uma ukhetha ukuhamba amaminithi angu-10 kuya kwangu-15 ngosuku nsuku zonke cishe uzoqaphela ukuthuthukiswa okungcono ebuhleni bakho kunokuba uma uzama ukuphuma imizuzu engu-45 kabili ngesonto.
Ukuzivocavoca Ukuqapha
Ukuze uthole okuningi ekusebenzeni kwakho futhi uvimbele ukushiyeka okungenzeka, abantu abane-cystic fibrosis kufanele bathathe izinyathelo ezimbalwa zokuqapha lapho behlanganyela kulo msebenzi.
Gwema ukuphelelwa amandla ngokweqile: Ukuphuza nokuphuza usawoti ngesikhathi sokuvivinya umzimba kungabangela ukuba umuntu aphelelwe amanzi , ikakhulukazi eshisayo. Abantu abane-cystic fibrosis balahlekelwa usawoti owengeziwe ngokuthuthumela kunabantu abangenawo i-cystic fibrosis, engakubeka engozini enkulu yokucindezeleka ekudambiseni amanzi. Ukwehlisa amandla emzimbeni kungagwenywa ngokufaka uketshezi kwamanzi kanye nosawoti olahlekile ngokuphuza iziphuzo zezemidlalo noma amanzi nokudla ukudla okusawoti.
Gwema Ukulahlekelwa Isisindo: Ukuzivocavoca kwandisa izidingo zamandla omzimba, ezivele ziphakeme kakhulu kubantu abane-cystic fibrosis. Ukuvimbela ukulahleka kwesisindo, kubalulekile ukuba udle amakholori okwanele ukufaka esikhundleni sekhalori elishisiwe ekusebenzeni. Kungaba usizo kakhulu ukuxoxa ngezinhlelo zakho zokuzivocavoca nge-cystic fibrosis yokudla okunomsoco ongakwazi ukuphakamisa izongezo ezifanele zokudla. Funda kabanzi mayelana nokungondleki nge-cystic fibrosis .
Ukususwa kwe-Airway: Abantu abaningi abane-cystic fibrosis bathola ukuthi ukwenza ukwelashwa kwemigwaqo ye-airway ngaphambi kokusebenza ngokomzimba kusiza ukwandisa ukuzivocavoca kwabo. Njengebhonasi eyengeziwe, ukuzivocavoca ngokwayo kungakhipha imfihlo eminingi ukuze kungadingekile ukwenze olunye ukwelashwa kwemvume yezindiza ngemuva kokuzivocavoca.
Izinselele Zokuzivocavoca Eziphethwe I-Cystic Fibrosis
Ngokuqinisekile, i-cystic fibrosis ingabangela ukulinganiselwa kokuzivocavoca, kodwa yiziphi ngempela lezi? Ucwaningo olubheka lo mbuzo oqondile luthola ukuthi ukukhathazeka okuningi okuhlobene no:
- Ukukhishwa kwenhliziyo - Inani legazi inhliziyo yakho iqhuma nge-beat ngayinye
- Ukunciphisa kwe-ventilatory - Ikhono lokwandisa ivolumu yokuphefumula kwakho noma imvamisa yalezo ziphefumula
- Ukumiswa kwemvelo - Uma ungazange usebenzise njalo, kungathatha isikhashana ukuma
Udokotela wakho angasebenza nanoma yikuphi kwalokhu kunciphisa ukukusiza ukhethe izinhlobo zokuzivocavoca okungenzeka ukuthi ziphumelele, futhi kukusize wazi ukuthi ungashesha kanjani umsebenzi wakho ngokushesha.
Ukuthola Umgqugquzeli Wokuzivocavoca
Njengombhalo wokugcina, ucwaningo lusitshela ukuthi abantu abane-cystic fibrosis, ikakhulukazi izingane kanye nentsha, bawa yizinhlelo zabo zokuzivocavoca kakhulu kakhulu. Kungaba ngcono ukubuka izindlela abantu abangenayo i-cystic fibrosis abambelele ezinhlelweni zabo zokusebenza. Nazi ezinye imibono:
- Hamba umqeqeshi wempilo noma umqeqeshi womzimba.
- Hlola izinhlelo zokusebenza zezempilo nezempilo ezinhle kakhulu zefoni yakho.
- Thola u-buddy wokuzivocavoca. Ukuba nokuphendula komunye umuntu kungakusiza ukuthi unamathele ohlelweni lwakho lokuzivocavoca ngisho nalapho ufuna ukuzidela.
- Hlola uhlelo lokusebenza lomsebenzi wokubuka i-apple.
- Hlola lezi zeluleko zokugqugquzela ezisebenzayo.
- Sebenzisa ngokunempilo imidlalo yemidlalo yevidiyo (lezi zinto zitholakale ziphumelela ekusebenzeni imigomo yokuzivocavoca yabantu abane-cystic fibrosis.)
- Ukuze uthole ukugqugquzelwa okuncane, funda ngabantu abathile abane-cystic fibrosis abaye badlala ibhola, basketball, noma ibhola lombhoxo.
- Funda kabanzi mayelana ne-psychology yokuzivocavoca, futhi yini egcina sishukumisekile.
Ngezansi Ekusebenzeni Nge-Cystic Fibrosis
Kusobala ukuthi ukuzivocavoca kunganikeza izinzuzo eziningi kubantu abaphila ne-cystic fibrosis. Ngesikhathi esifanayo, noma kunjalo, ukuvivinya umzimba kudingeka kuqhutshwe njalo ukuze kusebenze.
Thatha isikhashana ucabange ngezinhlobo zomsebenzi womzimba owuthandayo kakhulu. Yiziphi izinhlobo zokuzivocavoca ezenza ujabule? Zikhona yini izinhlobo ezithile zomsebenzi ezingabulala izinyoni ezimbili zezinyoni ngetshe elilodwa? Isibonelo, ingabe kukhona umsebenzi owenza uphume futhi uvumele ukuthi uhlanganyele nabanye? Ingabe kukhona umsebenzi ongagcwalisa isifiso esithile sokudala onakho, njengokungadini? (Yebo, izinga lokulima libala njengokusebenza ngokomzimba.)
Uma usuqaphele imisebenzi oyithandayo kakhulu, hlala phansi nodokotela wakho futhi ukhulume ngokuthi ungakwenza kanjani lo msebenzi ngokuphepha ezinkingeni zesifo sakho.
Ukuzivocavoca kuyindlela eyodwa kuphela yokuthuthukisa ukuhlala kahle kwakho ne-cystic fibrosis. Thatha isikhashana ukuhlola lawa macebiso ekuphila ngokugcwele nge-cystic fibrosis .
> Imithombo:
> I-Carbonera, R., i-Vendrusculo, i-F., ne-M. Donadio. Izimpendulo Zemizwelo Ngesikhathi Ukuzivocavoca NgeMidlalo Yemidlalo Ezigulini Ne-Cystic Fibrosis: Ukubuyekezwa Okuhlelekile. Imithi yokuphefumula . 2016. 119: 63-69.
> Cox, N., Alison, J., no-Holland. Ukungenelela Ukukhuthaza Umsebenzi Wokwenyama Kwabantu abane-Cystic Fibrosis. I-Cochrane Database yezibuyekezo ezihleliwe . 2013. (12): CD009448.
> Gruet, M., Troosters, T., no-S. Verges. I-Misipheral Muscle Yehluleka Ku-Cystic Fibrosis: I-Etiology, Impikiswano Yezokwelapha kanye nokuphendula Ngezokwelapha Ukwelashwa. Journal of Cystic Fibrosis . 2017 Mar 2. (Epub ngaphambi kokuphrinta).
> Urquhart, D., isikhangiso F. Vendrusculo. Ukuchazwa Kwemitholampilo Yokuhlolwa Kwe-Cardiopulmonary Exercise Testing ku-Cystic Fibrosis kanye Nemiphumela Yokululekwa Ngokuzivocavoca. Ukuhlolwa kokuphefumula kwezingane . 2015 Okthoba 13. (i-Epub ngaphambi kokuphrinta).