Indlela yokuhlela ukunakekelwa kwakho kokubeletha kanye nokwelapha uma une-cystic fibrosis
Uma une- cystic fibrosis (CF) futhi efuna ukukhulelwa, kubalulekile ukwazi ukuthi kunabesifazane abahlala neCF abanokukhulelwa okungazinzima nokuletha izingane ezinempilo. Ukuze uthuthukise amathuba okuba ukhulelwe kahle, kubalulekile ukuhlela ukukhulelwa kwakho futhi usebenze nodokotela wakho ukukuqapha impilo yakho nemntanakho endleleni.
Ngaphambi kokuba ukhulelwe , kufanele ube nesimo esihle somsoco, ube nesisindo sakho esisisindo sakho, futhi ube nomsebenzi wamaphaphu okungenani angu-40. Ngaphambi kokuba ukhulelwe, umlingani wakho kufanele ahlole ukuhlolwa kofuzo ukuze anqume ukuthi uthatha isakhi se-cystic fibrosis . Uma umlingani wakho ethwala igesi, unamaphesenti angu-50 ithuba lokuba nengane nge-cystic fibrosis. Uma umlingani wakho engathwali igciwane, ingane yakho ngeke ibe nesimo.
Ukuqinisekisa ukuthi ukukhulelwa kwakho kubushelelekile futhi kungakhathazeki ngangokunokwenzeka, odokotela batusa ukwenza lokhu okulandelayo:
1. Gcina Ukudla Okunene
Ukudla komzimba wakho kudinga ukwanda ngesikhathi sokukhulelwa. Ukuze uhlangabezane nalezi zidingo, cishe uzodinga ukuthatha izithako, njengokudla okunomsoco, ukuqinisekisa ukuthi umzimba wakho uthola ama-calorie ayidinga. Uma ungeke ukwazi ukuthola ukudla okudingayo ekudleni nasezingenizeni, kungase kudingeke uye esibhedlela ukuze uthole ukudla okunomsoco, okubizwa ngokuthi ukudla okunomsoco we-parenteral (TPN), ngokusebenzisa i-IV yesikhathi eside eyaziwa njengomugqa ophakathi.
2. Ukulwa nezifo zokuphefumula
Izifo zokuphefumula kufanele ziphathwe ngama-antibiotic ngokushesha nje lapho isibonakaliso sokuqala sibonakala. Izifo zingakwazi ukuphuma ngokushesha uma unayo i-CF futhi unganciphisa inani le-oksijini elinikezwe emzimbeni wakho. I-oxygen ephansi akuyona nje inkinga kuwe, ingalimaza ingane yakho ngoba ibala kuwe ukuhlangabezana nezidingo zabo ze-oxygen.
3. Qhubeka i-Chest Physiotherapy (i-CPT)
I-chestotherapy yesifuba yingxenye ebalulekile yokwelashwa kwakho kwansuku zonke futhi kufanele yenziwe ngisho noma ukhulelwe. Lapho kwenziwa kahle, ngeke kulimaze ingane yakho.
4. Qhubeka nemithi yakho ye-CF
Imithi eminingi ekhuluma nge-CF ekhuluma ngomlomo futhi ehambelanayo iphephile ukuthatha ngesikhathi sokukhulelwa. Xoxa nganoma imiphi imithi ongayithatha nodokotela wakho we-CF nodokotela wezinkinga. Ngokubukeza uhlu lwakho lwezokwelapha neqembu lakho lezokwelapha, odokotela bakho banganquma uma kukhona izinguquko ezidingekayo.
5. Yilungiselele Ukungeniswa Kwebhedlela
Kungase kudingeke uhlale esibhedlela okwesikhashana ngesikhathi ukhulelwe ukwelashwa noma ukubuka. Lokhu kungenzeka ukuthi kwenzeke phakathi nezinyanga ezintathu zokugcina zokukhulelwa kwakho lapho kudingeka emzimbeni wakho ukuthi uphakeme kakhulu.
6. Khetha isinqumo sokuthi ufuna ukubeletha
Uma ufuna ukuncelisa ingane yakho nobisi lwakho liqukethe inani elanele lamaprotheni ne-sodium, khona-ke ungakwazi. Uma ukhetha ukuncelisa, kuzodingeka uhlangane nomdlali wakho wezokudla ukuze uthuthukise uhlelo oluzohlinzeka ngekhalori elanele ngokwanele wena nomntanakho.
Hlela ikusasa
Naphezu kwentuthuko ekwelapheni, i-cystic fibrosis inganciphisa impilo yakho. Isikhathi sokuphila esiphezulu kubantu abano-CF e-United States sekuyiminyaka engaba ngu-40.
Kuyinto engathandeki ukucabanga ngethuba lokungakwazi ukukhulisa ingane yakho ekukhuleni, kodwa kungenzeka ukuthi kufanele ucabangele. Kufanele uxoxisane ngalokhu kungenzeka nomlingani wakho bese uqala ukwenza izinhlelo zokunakekela ingane yakho ngokushesha ngangokunokwenzeka.
Ngaphezu kokusebenzisa imithi kanye nokwelapha ukuphatha isifo sakho, ungase ucabange nokuthola ukufakelwa kwamaphaphu. Akuwona wonke umuntu ophethe i-CF ofanele ukufakelwa, kepha labo abakwenzayo bangakwazi ukwandisa izimpilo zabo. Ukufakelwa kwamaphaphu kuyingozi, kodwa kungakunikeza ithuba lokuthuthukisa impilo yakho futhi wandisa impilo yakho. Kuze kube manje, iziguli ezingaphezu kuka-1600 ze-CF zithole ukufakelwa kwamaphaphu.
Abantu abangaba ngu-150 kuya ku-200 abanesifo se-cystic fibrosis bathole ukufakelwa kwamaphaphu minyaka yonke kusukela ngo-2007. Iningi labo lalisaphila ngonyaka owodwa futhi cishe ingxenye yabo bebehamba kahle eminyakeni emihlanu emva kokufakelwa.
Imithombo
- UCalwoodwood, uC. NoNelson-Piercy, C. "Isifo sofuba neCystic Fibrosis ekukhulelweni". Imithi yezempilo yabesifazane. 2005. 2: 29-32
- Cheng EY, Goss CH, McKone, EF, Galic V., Debley CK, Tonelli, MR kanye no-Aitken ML "Imiphumela Yokunakekelwa Ngaphambi Kokubeletha Ekuphumeleleni Emiphumeleni Ye-Fetal ku-CF Women." 2006 Journal of Cystic Fibrosis 5:85 - 91.
- I-Cystic Fibrosis Foundation. Mayelana neCystic Fibrosis. 2016.