Okufanele Ukwazi Nge-Stickler Syndrome

I-stickler syndrome yisimo esingavamile sokuzalwa noma isifo sokuzalwa kwesithwathwa esithinta izicubu ezixhumene emzimbeni. Ngokuqondile, abantu abane-Stickler syndrome ngokuvamile banokushintshashintsha kwezakhi zofuzo ezikhiqiza i-collagen. Lezi zakhi zofuzo zingabangela ezinye noma zonke izici ezilandelayo ze-Stickler syndrome:

I-stickler syndrome ifana kakhulu nesimo esihlobene nesibizwa ngokuthi i-Marshall syndrome, nakuba abantu abane-Marshall syndrome bevame ukuba nesigamu esifushane ngaphezu kwezimpawu eziningi ze-Stickler syndrome. I-stickler syndrome ihlukaniswe yaba yizinhlobo ezinhlanu ezincike kuye ngokuthi yiziphi izimpawu ezibalulwe ngaphambili.

Izimpawu nobuqili zihluka kakhulu phakathi kwabantu abane-Stickler syndrome ngisho nasemindenini efanayo.

Izimbangela

Isigameko se-Stickler syndrome kulinganiselwa ukuthi sibalelwa ku-1 kwabangu-7 500 ukuzalwa. Kodwa-ke, lesi simo sikholelwa ukuthi singatholakali. I-stickler syndrome idluliselwa kusuka kubazali kuya ezinganeni ngendlela ehamba phambili ye-autosomal. Ingozi yomzali nge-Stickler syndrome ukudlulisa isimo kumntwana ngamaphesenti angu-50 ukukhulelwa ngamunye. I-stickler syndrome kwenzeka kubo bobabili abesilisa nabesifazane.

Ukuxilongwa

I-stickler syndrome ingase ifakale uma unezici noma izimpawu zalesi sifo, ikakhulukazi uma othile emndenini wakho etholakele ukuthi une-Stickler syndrome. Ukuhlolwa kofuzo kungasiza ekuhloleni i-Stickler syndrome kodwa okwamanje akukho imigomo ejwayelekile yokuxilongwa eshiwo umphakathi wezokwelapha.

Ukwelapha

Ayikho ikhambi ye-Stickler syndrome kodwa kunezokwelapha eziningi nezinqubo zokwelapha ezikhona zokuphatha izimpawu ze-Stickler syndrome. Ukuqashelwa kuqala noma ukuxilongwa kwe-Stickler syndrome kubalulekile ukuze izimo ezihambisanayo zihlolwe futhi ziphathwe ngokushesha. Ukulungiswa kokuhlinzwa kokukhubazeka ebusweni njengokwenza i-cleft palate kungadingeka ukusiza ngokudla nokuphefumula.

Amalensi noma ukuhlinzeka okulungiswayo kungaba usizo ekuphatheni izinkinga zamehlo. Izinsiza zokuzwa noma izinqubo zokuhlinza ezifana nokubekwa kwamatayipi okuphuza umoya angalungisa noma aphathe izinkinga zendlebe. Ngezinye izikhathi imithi elwa nokuvuvukala ingaba usizo ekwelapheni i-arthritis noma izinkinga ezihlangene, ezimweni ezinzima ukufakwa esikhundleni kwamalungu kungadingeka.

Imithombo:

I-Genetics Home Reference. Stickler Syndrome. https://ghr.nlm.nih.gov/condition/stickler-syndrome

I-Marfan Foundation. Stickler Syndrome. https://www.marfan.org/stickler-syndrome.

Inhlangano Kazwelonke Yezinkinga Ezinzima. Stickler Syndrome. http://rarediseases.org/rare-diseases/stickler-syndrome/.