Amaqembu Wokukhuthaza Kwalabo Abathintekayo Nge-Leukemia, Lymphoma & Myeloma
I-blood cancers- leukemia, i-lymphoma ne- myeloma- angeke ibe njengephrofayili ephezulu njengamanye amahlobo omdlavuza. Noma kunjalo, kunezinhlangano eziningana zokusiza kanye namaqembu okukhuthaza asekela umphakathi womdlavuza wegazi cishe kuphela. Ngaphezu kwalokho, ezinye zezinhlangano ezibandakanya ukugqugquzelwa komdlavuza jikelele, njenge-American Cancer Society, zinezigaba ezingcono kakhulu ezinikezwe i-leukemia ne-lymphoma.
I-Leukemia & Lymphoma Society
I-Leukemia & Lymphoma Society, noma i-LLS, ingaba yilungu le- leukemia elibonakala kakhulu kunazo zonke kanye nenhlangano yokugqugquzela i-lymphoma nxazonke. Eyasungulwa ngo-1949, i-LLS ixhasa ukucwaninga komdlavuza wegazi, imfundo kanye nezinsizakalo zesiguli, futhi ihlanganisa ohlwini lweForbes lwezinkulungwane eziyi-100 ezinkulu zezinsiza zase-US.
Ngisho nabantu abangaxhunywanga emphakathini womdlavuza wegazi bangase baqaphele umcimbi we-fundraiser wonyaka owafakwa yizigaba ezahlukahlukene ze-LLS, eyaziwa ngokuthi "Ukukhanyisa Ubusuku." Ukukhanya kweLusuku kuyisenzakalo esenzeka ngezikhathi ezahlukene zonyaka emiphakathini ehlukene.
Kodwa-ke, ngokuvamile kuhlelwe kusukela ngoSeptemba kuya kuNovemba eNyakatho Melika futhi kuphelelwe isikhathi ukuhambisana nemini yasekuqaleni eyenziwa ngenkathi yokuwa. Abahlanganyeli bakhipha imali yeLLS eholela ekukhanyeni ukuhamba ebusuku lapho bephethe khona izibani ezinemibala ehlukahlukene ukukhombisa ukusinda kanye / noma ukulahlekelwa othandekayo.
Ithimba le-Leukemia & Lymphoma Society In Training, noma i-TNT, enye enye indlela yokuhlola ngokubuyisela, ikakhulukazi uma ukuqeqeshwa ukukhuthazela kosizo kushaya inkolelo yakho. Uma kuziwa ekuqeqeshweni kwempilo, abaningi bethu kudingeka badonsa kuzo zonke izikhuthazo esingazenza.
Mhlawumbe yingakho ithimba lokuqeqeshwa yiLLS luhlelo oluphumelelayo. Akukhona nje ukuthi unesiyalo esakhelwe ngaphakathi kwanoma yiluphi uhlelo lokuqeqesha impilo, kodwa unezinto ezibala okungaphezulu-okunika labo abadingayo. Kukhona okuthile kuwo wonke umuntu, kungakhathaliseki ukuthi ukugijima, ukuhamba, ukuhamba ngebhayisikili, ukugibela noma ukuncintisana ku-triathlon.
I-LLS igcizelela impumelelo yayo kanje: "Kuze kube manje, i-LLS ifake imali engaphezulu kuka-$ 1 billion ekucwaningeni ukuthuthukisa ukwelashwa nokugcina izimpilo. Izibonelelo zokucwaninga kwe-LLS ziye zaxhaswa izinyathelo eziningi zanamuhla ezithembisayo, kuhlanganise nemithi ehlosiwe kanye nama-immunotherapies. Ukutshalwa kwezimali okusekelwe kudala ukuqhuma kwezesayensi ezintsha kanye nokuphumelela kwemitholampilo. Izindlela ezintsha zokwelashwa eziphephile futhi eziphumelelayo, uma kungenakwenzeka, zisindisa izimpilo namuhla. "
Isibhedlela Sokuhlola Izingane ZaseSt Jude
I-leukemia yisifo esibi kakhulu phakathi kwezingane. Uma umdlavuza wezingane usondelene futhi uyathandeka enhliziyweni yakho, iStro Jude's Children's Research Research kumele mhlawumbe ibe phakathi kwezibonelelo ozibonayo ezisekelayo. Le nhlangano ithole amamaki we-stellar wokuphendula nokucaca, futhi izilinganiso zayo zezimali zingaphezu kwesilinganiso kanye, ngokusho kukaCharity Navigator.
Umsebenzi weSt Jude Jude Children's Research Hospital ukuthola ukwelashwa kwabantwana abanomdlavuza kanye nezinye izifo eziyingozi ngokusebenzisa ucwaningo kanye nokwelashwa.
Esinye sezigameko ezithandeka kakhulu esibukweni somdlavuza we-charity fundraiser sihilela ama-tikes amancane ngokwawo futhi athukuthele. Uma unezingane ebangeni lobudala besikhathi sokuqala, iSt Jude Jude Trike-A-Thon ngumcimbi ophakamisa imali ngenxa yalokhu, kodwa futhi uvumela izingane ukuba zijabulise futhi zizibandakanye ekusizeni abanye ngesikhathi sabo siqu iqembu. Uma unesithakazelo ekuhleleni i-trike-a-thon enkulaneni yengane yakho noma ukunakekelwa kwamasuku, vakashela iSt. Jude kuWebhu futhi ungathola ulwazi lokuxhumana ukuze uqale.
I-Leukemia Research Foundation
Uma intshisekelo yakho ekuthuthukiseni ucwaningo lwe-leukemia nokusiza iziguli zanamuhla nemindeni yabo, enye insizakalo yokucabangisisa yiLeukemia Research Foundation. Lo mnikelo unikezelwa ekunqobeni umdlavuza wegazi ngokuxhasa ucwaningo ngezimbangela zabo kanye nokuphulukisa nokuthuthukisa izimpilo zabathintekayo lezi zifo. I-Leukemia Research Foundation isekela ucwaningo lwe-leukemia kokubili abadala nabantwana.
Ngokuphawula, i-Leukemia Research Foundation yakamuva ithole "izinkanyezi ezine," isilinganiso esiphezulu esingenzeka kusuka ku-Charity Navigator. Inhlangano yayine-stellar obala, ukuphendula, kanye nezikolo zezimali, futhi.
I-Leukemia Research Foundation inezisebenzi zokuvolontiya ezingaphezu kuka-1 500 ezihlelwe ezincwadini ezingu-24 zokuqoqa imali. Banikeza iziguli ngezinsiza zemfundo, ukusekelwa ngokomzwelo, kanye nokusiza ngezezimali. Baphinde baxhase ucwaningo emhlabeni jikelele. Ngaphezu kwalokho, i-Leukemia Research Foundation iye yazinikela ekutholeni ukwelashwa, ekhulisa ngaphezu kwezigidi ezingu-70 zamaRandi ukusekela umsebenzi wayo.
I-Lymphoma Research Foundation
I-Lymphoma Research Foundation yinhlangano enkulu kunazo zonke yenhlangano engeyona inzuzo ezinikele kuphela ekusizeni ucwaningo olusha lwe-lymphoma. Ibuye inikeze ulwazi olusesikhathini esiphathelene nalolu hlobo lomdlavuza kubantu abane- lymphoma kanye nabaqeqeshiwe bezempilo.
Umgomo weLymphoma Research Foundation ukuqeda i-lymphoma nokukhonza labo abathintekile yisifo. Basiza futhi iziguli ezine-lymphoma ezihamba phambili emhlabeni ongenamaphiko we-cancer subtypes, izivivinyo zemitholampilo, izinkinga zokwelapha ezikhulayo, kanye nezindaba emkhakheni.
I-Multiple Myeloma Research Foundation
I-myeloma eminingi , noma ngezinye izikhathi nje "i-myeloma," yindlela yesithathu yomdlavuza wegazi, ngaphezu kwe-leukemia ne-lymphoma. Mhlawumbe ngenxa yokuthi yiyona engavamile kakhulu kulezi zingane zomdlavuza wegazi, lokho kuvame ukunganakwa-ngaphandle kwe-NBC yezindaba zakudala encwadini kaTom Brokaw mayelana nokuhlangenwe nakho kwakhe nge-myeloma. Kodwa-ke, i-myeloma itholakala kahle kakhulu ku-Multiple Myeloma Research Foundation, noma i-MMRF. Ngakho-ke, uma ufuna usizo ngokuziphendulela kwe-stellar, ukukhanya, nezikolo zezimali, i-MMRF ibheja elihle kakhulu.
I-American Cancer Society
Yize inhloso yayo ingacacile ekubulaleni i-leukemia, i-lymphoma, noma i-myeloma, i-American Cancer Society (ACS) nokho inikeza abantu abaningi abanomdlavuza wegazi. Imithombo yayo ingaba usizo ikakhulu kulabo abafuna ulwazi olujwayelekile lwezemfundo ezihlokweni ezahlukene zomdlavuza.
Lena yinye into lapho izibalo ezivela kumathuluzi okuhambisa ezokusiza zingase zibe yikhohlisa. I-ACS ingase ingabi inhlangano ehlelwe kahle kakhulu noma esebenza kahle ngaphansi kwelanga, ikakhulukazi uma ihlolwe njengenqwaba yazo zonke izigaba zayo eziningi. Kodwa, ukutholakala kwalo ku-intanethi-futhi ikakhulukazi ikhono layo lokufinyelela abantu abanezinkinga ezihambisana nesineke-magama ezijwayelekile kumdlavuza wezinhlobonhlobo eziningi-zimelela ikhwalithi kanye nenani elinzima ukulifaka eshadini lendlela yokusiza.
Kunezindlela eziningi ezahlukene zokunikeza usizo njengo-ACS. Ukudlulisela Ukuphila Kuyi-signature fundraiser yenhlangano, umcimbi lapho amalungu eqembu atshintshana ehambahamba ngethrekhi noma umzila oqokiwe. Ngokusho kwabahleli bomcimbi, umcimbi ngamunye unamahora ayisithupha kuya kwangu-24 ubude futhi ithimba ngalinye liceliwe ukuba nelungu ethrekhi ngaso sonke isikhathi ukukhombisa ukuthi umdlavuza awulokothi ulele. Njengoba bethi, "Iziguli ze-Cancer aziyeki ngoba zikhathele, futhi ngobusuku obunye, nathi asikho. "
Ithimba ngalinye libeka amakhamera abo emcimbini futhi liqhubekela phambili imizamo yabo yokuqoqa imali ngokuqoqa iminikelo yokudla, izimpahla, imidlalo, nemisebenzi. Imali ibalwa ekubhekeni komgomo wabo weqoqo lokuxhaswa kwethimba.
Abazali besikole esiphakathi nabo bangase bazi kahle imisebenzi yezinsuku eziphathelene nomsebenzi we-ACS:
Uhlelo lwethu lweSuku lokuDluliselwa kwaMasimu luletha ukuDluliselwa KweMpilo ezikoleni eziphakathi lonke. Ihlinzeka abafundi, othisha nabaphathi ithuba lokuba nemiphakathi yabo ngokugubha abantu abathintekayo ngumdlavuza, ukukhumbula abathandekayo abalahlekelwe futhi baxhaswe ngemali ukuze basekele izinhlelo zomdlavuza kanye nezinsizakalo zendawo nasemhlabeni jikelele. Ivumela abafundi ukuba baphume ekilasini futhi bajabule ngokuzijabulisa nemisebenzi eqinisa imfundo yesifo somdlavuza futhi ithuthukise ukuziphatha okunempilo okuzokwehlisa ingozi yomdlavuza wabo.
Ezinye Izinsiza Ezinkulu
Amanye amaqembu amaningi akhuthaza ukuqwashisa futhi anikeze ukwesekwa okubalulekile kanye nezinsizakalo kulabo abathintekayo impilo yabo yomdlavuza wegazi. Nazi ezinye ezimbalwa ongangeze ohlwini:
Yiba nomdlalo
Kungenzeka ukuthi uzwile ngamathambo omzimba we- bone , okuthiwa i-hematopoietic stem cell transplants. Kwezinye iziguli ezinezinhlobo ezithile ze-leukemia kanye ne-lymphoma, ukufakelwa kwe-stem cell, noma ukufakelwa komnyoba wamathambo, yilo kuphela ithemba lokuthola ukwelashwa.
Yilapho i-Match ifika khona-kuyi-registry egcina wonke umuntu ozimisele ukunikela ngamaseli ayo asematheni ngamathemba okuthola umdlalo womuntu odingayo ukufakelwa komnyoba wethambo.
I-National Comprehensive Cancer Network (NCCN)
Odokotela, iziqondiso ezivela kwi-National Comprehensive Cancer Network (NCCN) ngokuvamile ziyaziwa futhi zivame ukubonisana. Ngama-updates avamile ekulawulweni komdlavuza okunconywayo, lezi zincomo zokwelapha zizama ukuhlanganisa isimo samanje semithi ngesikhathi esithile esithile ngesikhathi sezinkundla ezahlukene zomdlavuza.
I-NCCN isebenze ukuhlinzeka ngeziqondiso ezifanayo ezigulini, ngezimpawu zezokwelapha ezichazwe futhi zihloselwe abantu abathintekayo yi-leukemia, i-lymphoma, ne-myeloma. Izinsiza ezibekezelayo nabanakekelwa yi-NCCN manje zifaka uhlu lwazo zonke izinhlobo ze-leukemia kanye ne- Hodgkin lymphoma nezinhlobo ezahlukene ze- non-Hodgkin lymphoma .
I-Alliance for Resource Collaboration eHematology (ARCH)
Lokhu kubambisana kuhlose ukunika amandla abantu abane-lymphoma ukuba basebenze ekunakekeleni kwabo futhi basize ukuqinisekisa ukuthi abazizwa bewodwa ohambweni lwabo. Ngokuvakashela i-website yabo, abantu bangakwazi ukuxhuma ezinhlanganweni ezihlukahlukene zomlingani ukuze bafunde ngezinhlobo ezahlukene ze-lymphoma, bahlole izinketho zokwelapha, futhi bathole ulwazi mayelana nabachwepheshe nokusekelwa kwezezimali.
Lezi zinsuku, izikhungo eziningi zomdlavuza ezivelele zikhangiswa kuthelevishini. Ungase uqaphele ngisho namagama amakhulu afana neSikhungo seCattering Cancer eChris Sloth naseNyuvesi yaseTexas Isikhungo seKhansela ye-Anderson eHouston. Kodwa-ke, kuzo zonke lezi zizwe, iziguli ze-US kuphela ezingamaphesenti angu-15 ziphathwa ezikhungweni ezinkulu zomdlavuza. Abaningi bayakuthola ukunakekelwa kwezinhlelo zomdlavuza emphakathini wabo noma eduze komphakathi lapho izinsiza zingase zibe khona.
Ngokuhlanganisa inethiwekhi yemisebenzi yomdlavuza womphakathi ngezinsizakalo zekhwalithi ezinikezwa yizinhlangano, i-ARCH ihlose ukuba nomthelela osheshayo ekufinyeleleni ulwazi kolwazi lweziguli ze-lymphoma lapho kunesidingo esikhulu khona.
Izwi elivela
Njengoba ungabona, ngisho nalapho ukhawulela ububanzi ezinhlanganweni zokusiza nezinhlangano ezifanele kakhulu kumdlavuza wegazi, kusekhona izinketho eziningi ezikwazi ukuzithathela. Eminyakeni yamuva, izinsizakalo zosizo sezilokhu zihlolisiswa. Abantu abanikeza imali yabo eyimali enzima ukuze bazuze okuhle bafuna ukuba nezinga elithile lokuzethemba ukuthi iminikelo yabo iyasetshenziswa kahle. Njengalokhu, kunamathuluzi amaningana wezindlela zokuhambisa ezenzelwe ukwakhiwa futhi atholakala kuwebhu.
Abantu bayakwazisa futhi babheka izinto ezehlukene ezihlotsheni zabo zokuzikhethela. Ngakho-ke, uyakhuthazwa ukuthi ubone ukuthi yiziphi izinhlangano ezibalwe ngenhla ezilinganiselwe ngokubonisa izimiso zakho kanye nezithakazelo ezithile. Isibonelo, abanye abantu abafuni ukufaka isandla ezinhlanganweni ezinkulu zokusizakala ezinama-CEO athole imali ephezulu kakhulu yenxephezelo, kanti abanye bazimisele kakhulu ukungazinaki lezo zinto uma inhlangano ibiwa ngokwenza umsebenzi omuhle.
Ngokufanayo, uma imingcele yezezimali ibalulekile kuwe, abanye abacwaningi bezosizo babhala ulwazi olufana nokuthi bangaki ama-dollar ngamunye abasebenzisayo ukuze bakhulise inani elithile lezimali eziya ngqo kumbangela wokusiza noma abamukeli. Lezi zimethrikhi zingalinganiswa kusuka kwenhlangano kuya kwenhlangano.
> Imithombo:
> I-American Cancer Society
> Charity Navigator
> INational Comprehensive Cancer Network (NCCN). Iziguli kanye Nokondla Resources.