Ukubandakanyeka komphakathi kunganikeza abantu abadala abasebenzelayo inethiwekhi yokusekela
Kwenzekani Izingane Zethu Ezizimele Ngemva Kokufa?
Ngesikhathi esithile emuva, umngane wangikhombisa ividiyo emfushane kwisayithi le-PBS elihlanganisa imindeni emibili nabantu abadala ku-autism spectrum. Imindeni yayifana kakhulu. Bobabili babengabafundi abamhlophe nabaphakathi (umndeni owodwa wawubheka ukuthi ucebile kunomunye, kodwa futhi wawubonakala ungcebile noma umpofu). Yombili imindeni yayinomama nobaba eminyakeni yabo edlule (iminyaka yobudala) kanye ne-autistic indodana eminyakeni engamashumi amabili.
Bobabili abasebasha babekhuluma ngamazwi futhi bephendula, kodwa bobabili babenselele kakhulu ngalokho okwakubonakala, okungenani emkhathini, ukuba babe nezinselele ezingqondweni nangokwengqondo kanye nesidingo esikhulu sokwenza okufanayo nokujwayelekile.
Kuzo zombili izimo, ukuphela kwezinsizakalo zesikole bekuye kwaveza ukuphela kwezikhungo zokwelapha, nokuphela kwamathuba amaningi asekelwayo. Nokho, enye insizwa, yayichitha usuku emhlanganweni wokugcina; omunye wasebenza esitolo sokudla nomqeqeshi womsebenzi ogcwele. Ngamunye wayebonakala ekhululekile kakhulu ekusebenzeni kwakhe emsebenzini. Ngamanye amazwi, bobabili babenezici ezibalulekile, zelanga, ezixhaswe lapho basebenzakala khona ngaphandle kwekhaya. Futhi kuzo zombili izimo isimo esisekelwayo sibonakala sinikelwa ngemali ethile ngohlobo oluthile lwenqubo yesifundazwe noma yesifundazwe (ayengezona izilungiselelo zangasese).
Ngakho-ke, ukukhathazeka kwabazali kwakungekho "kungabhekana kanjani nalesi simo." Ukukhathazeka kwaba "kwenzekani uma sifa?"
Ingabe Abangabantwana Bakhona Kufanele Abe "I-Network Network?"
Emndenini owodwa, izingane zakithi zasebekhulile zavuma kakade ukuthi zizonakekela umfowabo. Ngakolunye uhlangothi, ngaphandle kobantakwethu, labazali basebenzisana neminye imindeni (abangazange baxoxwe) ukudala isimo sesikhathi esigcwele seqembu. Ngisho noma basebenzela kule nkinga, abazali babonakala bebuhlungu kakhulu ngokuthi indodana yabo ingakwazi yini ukubamba iqhaza ekhaya .
Bathemba, ngokusebenzisa ukuqeqeshwa okuyimfihlo ekhaya, ukulungiselela impilo yokuzimela .
Yiqiniso, le mindeni ibonisa iqembu elikhulu labantu (noma lizoba khona) izimo ezifanayo. UPeter Gerhardt, ongomunye wabantu abambalwa abanokuhlangenwe nakho okujulile ekusebenzeni nabantu abadala kule ndawo, wachaza izikhukhula ezilindelekile zabantu abadala nge-autism njenge "tsunami." Isizathu silicacile ngempela: izingane eziningi ezixilongwa nge-autism zisho, ekugcineni, abantu abadala abadala abane-autism. Izinhlelo zeSikole ziphelele futhi zitholakale kubo bonke - kodwa izinhlelo ezikhulile ziyizinkomba, futhi zingabandakanya uhlu olude lokulindela, ikakhulukazi emindenini lapho umuntu omdala ene-autism engenakho ukuziphatha okuhlukumezayo futhi akwazi ukusingatha ukunakekelwa kwansuku zonke nemisebenzi yomsebenzi.
Ukusiza Izingane Zakho Zokuzibandakanya Ukuba Zijoyine Umphakathi
Into eyodwa eyangihlaba umxhwele mina nomyeni wami njengoba sibukele le vidiyo kwakuyi-isolation engavamile ekhonjisiwe. Abazali nendodana, kuzo zombili izimo, babonakala behlala endaweni engavumelekile. Kwakungekho okushiwo imisebenzi yomndeni; akukho incazelo yemisebenzi yangaphandle yendodana; akukho okushiwo ngabangani noma umndeni (ngaphandle kwabantwana bakini, bobabili abahlala kude). Empeleni, le mindeni yayiyodwa - futhi kwakunjalo namadodana abo.
Imindeni yayizinikele ekuthandweni kwamadodana abo okufana nokuhlelwa; umzali oyedwa waphawula "sonke sakwazi ukuhlala isigamu sompilo omdala."
Yiqiniso, ukukhathazeka ngokuthi "emva kokufa" kuyinto yangempela kubazali banoma yimuphi umuntu omdala onokukhubazeka. Kodwa kubonakala sengathi asikwazi ukuthembela enetheni likahulumeni yokuphepha ukuhlinzeka ukwesekwa, uthando, kanye nomphakathi izingane zethu ezikhulile zidinga. Njengoba nje silindele ukuhlela nokuhlanganyela nempilo yabantwana bethu abancane, kudingeka sihlele futhi sihlanganyele ngokuxazulula izinkinga zokudala kanye nokwakhiwa komphakathi kubantwana bethu abadala, ukuze izimpilo zethu kanye nokuphila kwezingane zethu kungachazwa ngokwemigomo efana "nokuhlupheka "futhi" kubi. "
Into eyodwa umndeni wethu oyenzile - ngenjongo - ukushiya ukungaziwa kwedolobha elisemadolobheni amancane. Lokhu kwenza umehluko. Umehluko wangempela. Lapha, indodana yethu nge-autism akuyona isihambi esiyinqaba: nguTom. Okubalulekile.
I-Volunteerism kanye ne-Inclusion njenge-Cure yokungaziwa
Uma siya emtatsheni wezincwadi , umtapo wolwazi uyamqonda ngegama. Uma siya emgodini we-bowling, abanikazi be-alley bayakwazi ubukhulu besikhumba sakhe. Abasebenzi e-YMCA bayamazi kahle, futhi bazimisele ukwenza izindawo ezincane ezinhlelweni ezingahle zibe yinselele kuye.
UTom ungumdlali omuhle we-clarinet; wonke umfundisi womculo edolobheni uyazi ikhono lakhe, futhi uyamazi. Udlala eqenjini lesikole futhi uqala ukudlala nebhande lomuzi. Ikamu lasehlobo eligijima yi-symphony yesifunda seliyisibusiso, hhayi kuphela ngoba liyinkambi enkulu kodwa ngoba abantu abafanayo abagijima ekamu baphinde baqhube ibhande lomuzi, i-conservatory, kanye ne-symphony. Bathanda uTom, futhi bahloniphe ithalenta lakhe. Umhlaba omncane.
Njengamalungu omphakathi, siyazi futhi ukuthi amathuba amaphi okusebenza ngokuzithandela, ama-internship, futhi, mhlawumbe, umsebenzi. Siyazi ngemisebenzi - hhayi kuphela eWalmart noma esitolo, kodwa ezisekelweni zebhizinisi nezingenzi-nzuzo - ezingase zinikeze amathuba endodana yethu. Siyazi abantu abaqhuba amabhizinisi kanye non-inzuzo. Futhi siyacaca ukuthi, nakuba amabhizinisi amancane nezinzuzo ezingavamile abasebenzisa "abakhubazekile," bangase bazimisele ukuqasha umuntu othile ababazi, futhi bathande, iminyaka eminingi.
Njengoba sengakhulile emadolobhaneni futhi ngihlala edolobheni, ngiyazi ukuthi kulula kangakanani ukuzizwa njenge-chip of amagxolo ehamba olwandle olwandle olukhulu - yedwa esixukwini. Kodwa nami ngiyazi ukuthi kungenzeka ukuba siphile ngokuhlukile. Ngiye ngabona imindeni esondelene enakekela eyabo. Ngibukele amalungu omsekeli womphakathi adinga usizo oluthile olwengeziwe. Lapha edolobheni lakithi, uhlelo olusekelwe emphakathini olubiza izindleko lusisekela abadala nabakhubazekile abanezinsizakalo zasekhaya kanye nokuhamba - ngaphandle kwesidingo socingo olubomvu lukahulumeni noma imali.
Ukuhlala Kwendawo Kungasho Ukuhlala Uxhumekile
Akukho okunye okusho ukuthi siyazi ukuthi uTom uzoba "omuhle" uma sesihamba. Kukhona ibanga elide lokuhamba phakathi kwansuku zonke, kanti indodana yethu ayikafiki 22. Ngokuqinisekile asilindele ukuthi umphakathi wethu uthathe izingcezu uma sihluleka ingane yethu.
Lokho esikwaziyo, noma kunjalo, ukuthi sonke - umama, ubaba, udadewethu nomfowethu-sinokuphila lapha. I-bowling, umtapo wezincwadi, umculo, i-Y nokunye konke kuyingxenye yalokhu. Silindele ukuguga lapha, futhi sicabanga ukuthi uTom uzohlala noma esiseduze nathi njengoba sikhula. Silindele ukuthi uzoqhubeka ekhula njengesivolontiya sendawo, isisebenzi, umculi nomfundi omdala. Njengoba nje sizokuthanda. Sinezinhlelo nemibono yokuthi "lapho sisekho," nakuba lezo zinhlelo zifana (konke ukuphila) ngokushintsha.