Namuhla, umyeni wami wayexoxa ngokuzihlanganisa nomuntu owaziyo indodana yethu uTom. UTom uneminyaka eyi-14, ene- autism ephezulu yokusebenza ; ukhuluma, ujabule, kodwa ngokucacile "uhlukile." Okwaziyo wayezwile mayelana nesimo esiseduze sokuhlala kubantu abadala abane-autism, futhi bakhulume kumyeni wami. Umcabango wakhe ukuthi kungase kube yindlela enhle yendodana yethu esikhathini esizayo.
Umyeni wami wambulela, kodwa wamtshele ukuthi kuyinjongo yethu ukuba indodana yethu ihlale nathi, okungenani ngekusasa elibonakalayo (ngaphandle uma evuka ekolishi noma ekwenzeni ezinye izinqumo zemfundo noma ezomsebenzi ezithatha ngaphandle kwendawo ). Uma kubonakala kunengqondo, singamsiza ukuba athole indawo yokuhlala noma esinye isimo esiphilayo esiseduzane, futhi ahlinzeke ngezisekelo njengoba kudingeka.
Lo mbono wawubonakala uyimangalisa kubangane bethu. Kodwa sinezizathu ezimbalwa zendlela yethu yokucabanga.
Okokuqala, kubonakala kungokwemvelo futhi kuvamile ukuba namalungu ezizukulwane ezahlukene ezihlala emndenini behlala ndawonye. Phela, umqondo wokuthi umuntu oyedwa uzohamba yena ngokwakhe ukuze akhethe ikhaya yedwa, ukulawula zonke izici zokuphila kwansuku zonke, kungokwesimanje ngempela (futhi, ngokombono wami, hhayi okufisa kakhulu). Ngaphambi kwempi yezwe yesibili, kwakungavamile kakhulu - ngisho nanamuhla, ngemisebenzi enzima kakhulu ukuza, abantwana abaningi abadala baqhubeka behlala nabazali babo eminyakeni engamashumi amabili nangaphezulu.
Abantu abaningi, i-autistic noma " neurotypical ," bathola ukucindezeleka kokuphila bodwa, benomthwalo wemfanelo wokusebenza, bethenga, ukupheka, ukuhlanza, izikweletu, ukulungiswa ekhaya, ukukhanda imoto, ukubandakanyeka komphakathi, amalungiselelo okuhamba nokuningi, ukuba abe mkhulu. Kuyini ukukhanga okukhulu?
Okwesibili, ngenkathi kunekhwalithi ephakeme, izinketho ezisekelwe kubantu abadala abane-autism , zimbalwa futhi ziphakathi.
Akunakho ilungelo elizungezile ekhoneni kithi. Futhi ngisho nesimo esihle singashintsha ngokuhamba kwesikhathi, njengoba abasebenzi bejika futhi izakhamizi zize zihambe. Ngesikhathi indodana yethu ineminyaka engama-20, kuzoba khona izinketho eziningi ezitholakalayo; Kodwa manje, umqondo wekhaya leqembu noma ukulungiselelwa okufanayo kuyinkinga enkulu yokukhathazeka.
Okwesithathu, sisebenze kanzima (futhi sizoqhubeka nokusebenza kanzima) ukusiza indodana yethu ukuxhuma nomphakathi wakubo. Siphila edolobheni elincane kakhulu, futhi ngemva kweminyaka emithathu nje kuphela uyazi futhi uyaziwa kakhulu ngabantu abaningi abaxhumana nabo njalo. Ababhalisi, abalindi, ngisho nabantu abahlala e-bowling alley bazi igama lakhe, baqonde umehluko, futhi bafunde ukuxhumana naye ngokukhululekile.
Okwesine, uTom uqale ukuthola indawo yenhlonipho yangempela kulo mphakathi, ngokukhethekile ngamakhono akhe omculo. Uvele eseqaphela ikhono lakhe njenge-clazzetist jazz, futhi uzobe edlala nebhokisi lomuzi maduzane. Lokhu kwenzeka hhayi ngoba uTom ungu-virtuoso, kodwa ngoba amathalenta akhe namakhono ethu okuxhumana naye akwenze ukuba akwazi ukuhlangana, ahlanganyele futhi azi ezinye zabaholi bomculo emphakathini wethu. Uma eshiya idolobha lethu, zonke lezo zixhumanisi - nenhlonipho ayithole - ziyophela.
Okwesishiyagalombili, sijabulela inkampani yendodana yethu. Sinekamelo elikhulu, futhi asihlezi ukuhambisa. Wenza umsebenzi omuhle wokugeza nokugqoka izingubo, ukondla izilwane ezifuywayo, futhi ngokuvamile ukuzikhathalela nokusiza nxazonke zendlu. Yini enye engayithola ngokuhlala kwenye komphakathi nabantu abangakaze bahlangane nabo?
Okokugcina, sifuna indodana yethu ibe nekhaya lapho izwa khona ukhululekile futhi lapho eyaziwa futhi ethandwa khona. Namuhla, unathi. Esikhathini esizayo, angathola umlingani wokuphila, abangane, noma esinye isiqondiso. Uma kungenjalo, ngokuhamba kwesikhathi, sizokwazi ukuthi unekhaya emphakathini lapho ehlala khona iningi lokuphila kwakhe.
Uma eyidinga, singakwazi ukusekela ukwesekwa komuntu siqu nakwezimali emva kokuhamba kwethu. Uma engayidingi - kahle, akukho okulahlekile.
Yiqiniso, akuyona yonke imindeni enezingane ezizimele enezinsiza zomuntu siqu noma zezimali ukuze ingane yabo ihlale nabo - noma ku-nickel yabo - ngokungapheli. Futhi ilungiselelo elinjalo lilula kakhulu ngomuntu ophezulu osebenzayo kunokuba nomuntu omdala onamandla okudinga ukunakekela isikhathi esigcwele. Ngaphezu kwalokho, abaningi abadala abane-autism bangathanda ukuhlala ngaphandle kwabazali babo (futhi indodana yethu kungenzeka, ibe yinye yazo).
Uphi imicabango yakho kulo mbuzo? Ingabe ucabanga kusengaphambili isimo sokuphila esizimele ingane yakho? Ikhaya leqembu? Noma ingabe unengqondo ehlukile yesikhathi eside?
Okuningi mayelana nokuhlelwa kwabadala abane-Autism
- Ukuthola ikhaya elifanele lomntwana wakho omdala nge-Autism
- Izinketho zokuhlala kubantu abadala abane-Autism