Funda Indlela Yokuba Ummeli We-Cancer Counsel

Ungayenza Kanjani Umehluko Emphakathini We-Lung Cancer?

Uma uhlala nomdlavuza wamaphaphu , unomuntu othandekayo ngesifo, noma ufuna nje ukukhuthaza isifo lapho ungaba nomthelela omkhulu, ungase ufune ukuba ummeli womdlavuza wamaphaphu. Kuthatha ukuthini ukuba ummeli? Yini ngempela ummeli oyenzayo? Ungaqala kanjani? Ngenhlanhla, into edingekayo ukuba abe ummeli womdlavuza wamaphaphu ukukhathalela.

Ukuzikhuthazela Nge-Cancer Lung

Uma wena noma othandekayo uhlala nomdlavuza, isinyathelo esibaluleke kunazo zonke sokuqala ekukhulumeni ukuzivikela. Ngokuqinisekile, umdlavuza wamaphaphu udinga abagqugquzeli abaningi ngangokunokwenzeka ukuze bahloniphe kanye nokuxhasa ngemali engcono. Noma kunjalo, uma ubhekene nesifo ngokwakho, into yokuqala okudingayo ukuba ugxile kukho impilo yakho (noma eyomuntu othandekayo ngesifo.) Lokhu akusho ukuthi awukwazi ukumela abanye- nje ukuthi udinga ukuzikhathalela kuqala. Eqinisweni, abantu abaningi bafunda indlela yokukhuthaza abanye ngokuzibonela kwabo ekuhambeni komdlavuza. Ngaphambi kokuba ufunde, qiniseka ukuthi uhlole lawa macebiso wokuthi ungaba kanjani ummeli wakho ekunakekelweni komdlavuza wakho .

Ubani Ongaba Ummeli We-Cancer?

Iqiniso liwukuthi noma ubani angaba ummeli womdlavuza wamaphaphu. Yiqiniso, isikhathi ongasenza sizohluka, kodwa ngabe uchitha ihora elilodwa ngonyaka noma amahora angu-40 ngesonto, yonke iminithi yesikhathi sakho iyadingeka futhi iyadingeka.

Okubaluleke kakhulu ukuthi ufuna ukwenza umehluko kubantu abaningi kakhulu abaye bazwa-noma bazozwa-lawo mazwi asabekayo: "Unomdlavuza wamaphaphu."

Yini Ongayenza Ukuze Ukhuthaze I-Cancer Lung?

Uhlu lwalokho ongakwenza ukuze uqonde nokusekela umdlavuza wamaphaphu cishe kungenamkhawulo.

Uma ungenalo umqondo wokuthi ungaqala kuphi, ungabheka nanoma iyiphi yezinhlangano zomdlavuza wamaphaphu ngezansi bese ucela nje.

Abanye abantu bayakujabulela ukuhambisa izinto zemfundo yesiguli kumahhovisi odokotela. Abanye bakhuthaza amaqembu okusekela. Abanye abantu bathanda ukuqoqa isixuku nokuhlela izenzakalo ezinkulu. Abanye bangathanda ukuhlala bethule ekhaya futhi bathumele izincwadi kubakwa-congressmen nabesifazane babo mayelana nesidingo sokuthola imali engaphezulu yomdlavuza wamaphaphu.

Uma ucabanga ngendlela ongazinikela ngayo isikhathi sakho, cabangela izithakazelo zakho nezipho zakho. Kunezindlela eziningi kakhulu lapho kudingwa khona usizo ukuthi awudingi ukuzama ukulinganisa isikhonkwane sesigcawu esigodini esiyindilinga. Uma udelela ukukhuluma komphakathi, ukukhuluma phambi kweqembu labantu ngomdlavuza wamaphaphu kungase kungabi yiyona ndlela engcono kakhulu.

Sibonile imibono emihle yokudala iphumelela eminyakeni embalwa edlule. Ungesabi ukuphakamisa umqondo nje ngoba awubonanga okwenziwe ngaphambili. Ungavumeli lokho kusabise wena. Kwenze!

Yiziphi amandla akho? Ungumlobi? Uma kunjalo, kunezindlela ezingamakhulu ongazisebenzisa ngalo lelo khono ukusiza ukukhulisa. Ingabe ungumuntu oyedwa oyedwa womuntu? Mhlawumbe ukutholakala komunye umuntu osanda kutholakala kungaba ukubiza kwakho.

Ngisho nje ukuxoxa ngezibalo ezimbalwa ngomdlavuza wamaphaphu nomngane oseduze kungabhekwa njengendlela yokukhuthaza.

Imibono yama-Lung Cancer Advocates

Nasi uhlu olusheshayo lwemibono nje ukukwenza ucabange, kufushane ukuze kukuvumele ugxile emicabangweni yakho entsha:

• Ezinye izinhlangano ezifana ne-Lung Cancer Alliance ne-LUNGevity zinezinto zokufundisa ezingakuthumela zona. Ungabe usuhambisa lawa ma-pamphlets kumahhovisi e-oncologist, amaqembu okusekela, izinkundla zempilo, noma ngabe ikuphi lapho ucabanga ukuthi kuzoba usizo.
• Yiya emncintiswaneni noma olunye uhlobo lomcimbi wokuqwashisa ngomdlavuza wamaphaphu obhalwe enye yezinhlangano zomdlavuza wamaphaphu.

• Yiya eSifundweni sesifunda noma se-National HOPE ukuze uhlangane nabantu ongabambisana nabo ngandlela-thile.
• Bhala kumhlangano wakho we-congressman noma abesifazane.
• Uhileleke kuMnyango Wezokuvikela.
• Joyina enye yezinhlangano zomdlavuza wamaphaphu futhi uphephe i-capitol.

Izinhlangano Zokulwela I-Cancer Acvocacy Organizations

Kunezinhlangano eziningana ezehlukene ezizinikele ekwenzeni umehluko kulabo abanomdlavuza wamaphaphu. Ngokuthakazelisayo, futhi ngokungafani nezinhlangano ezithile ezisuselwa esimweni, akukho mncintiswano omkhulu phakathi kwala maqembu. Eqinisweni, abantu abaningi bahlanganyela ezingaphezu kweyodwa yalezi zinhlangano njengommeli. Ngeke "uhambe ngezinzwani" noma uphukise inhlangano eyodwa uma ukhetha ukusebenza nezinye iqembu ngesikhathi esifanayo.

Izinhlangano ze-Cancer ezidinga usizo

Ezinye zezinhlangano ezinesidingo sabameli zibalwe ngezansi.

• I-LUNGevity - LUNGevity yinhlangano enkulu kakhulu egxile ngokuphelele kumdlavuza wamaphaphu. Besekela abantu abanomdlavuza wamaphaphu ngokusebenzisa ucwaningo, imfundo, nokusekela. Uma ufisa "ukuxhuma" neqembu labanye abasindile yomdlavuza wamaphaphu, ukuya emaphethelweni abo esifundazweni noma iNgqungquthela ye-HOPE yaminyaka yonke eWashington DC inikeza abasindile ithuba lokuhlangana namakhulu (yebo, amakhulu, akuyona typi) yezinye abantu abanomdlavuza wamaphaphu babhekana ubuso nobuso.
• I-Lung Cancer Alliance nayo inhlangano enkulu ezinikezele ekuthuthukiseni izimpilo zabantu abanomdlavuza wamaphaphu ngokusebenzisa ucwaningo, ukuqwashisa nokusekelwa kwalabo abaphila nalesi sifo. I-Lung Cancer Alliance iyinhlangano ekhuthele kakhulu uma kuziwa enkulumweni yomphakathi, futhi ikhanyisa imicimbi ye-Light on Lung Cancer manje isakaza izwe. Uma unesithakazelo kwezombusazwe noma wenza izinguquko ezingeni likahulumeni, i-LCA ingahle ifaneleke kuwe.
• I-American Lung Association - I-American Lung Association enye inhlangano eshintsha ubuso bomdlavuza wamaphaphu. Uma usuzwile "ukuthatha inhlanhla" edolobheni lakho, uzwile nge-ALA. Abameli bemdlavuza wamaphaphu, okuthiwa i-LUNG FORCE basakaza ukuqwashisa ngezindlela eziningi. Nakuba kusekela ngokulinganayo abantu bobulili bomdlavuza wamaphaphu, i-ALA iye yaba usizo ekufundiseni umphakathi ngomdlavuza wamaphaphu kwabesifazane nokuthi abesifazane basengozini yokufa ngomdlavuza wamaphaphu kunomdlavuza webele.
• I-Bonnie J. Addario Lung Cancer Foundation - Njengabanye izinhlangano ezibalulwe lapha, i-Lung Cancer Foundation inikeza ukukhuthaza ngezindlela eziningi, kusukela emfundweni ekukhuliseni imali yokucwaninga. Kubonakala njengenhlangano lapho abantu abasha abanomdlavuza wamaphaphu babonakala khona. Ngokucwaninga kwabo, sifunda ukuthi umdlavuza wamaphaphu kubantu abadala asehlukile kubantu abaningi, futhi ukufunda ngalezi zindlela kungabalulekile ekutholeni ukunakekelwa okungcono uma ungumuntu omusha onomdlavuza wamaphaphu.
• Abanye - Kunezinye izinhlangano eziningi ezigxile ekuqwashweni komdlavuza wamaphaphu. Kusukela e-Upstage Cancer Lung to LiveLung, ku-Team Draft, ku-Citizens for Radioactive Radon Reduction, thatha isikhathi sokuba wazi ezinye zalezi zinhlangano zomdlavuza wamaphaphu ukuze ubone ukuthi yiziphi ezifanelana namakhono akho kanye nezifiso zokugqugquzela.

Ingabe Kufanele Ngibe Ummeli Uma Ngisinda?

Njengoba kuphawuliwe ngaso leso sikhathi, ukukhathazeka kwakho kokuqala njengomuntu osindile kufanele kube nempilo yakho. Kungakhathaliseki ukuthi uyakwazisa noma yikuphi ukusekelwa okutholile, akukho lutho oluthi kufanele "ubuyisele emuva." Kuyinto ehlukumezayo enecala ukuthi kumelwe uqale ukugqoka i-Ribbon ukuze uqaphele ngosuku otholakala ngayo. Ungacabangi ukuthi kufanele uhambe lapho. Eqinisweni, kuwumthwalo walebo abangasinda-kodwa banakekele abasindile-ukuba babe yizwi kulabo abaphila nalesi sifo.

Lokho kusho, indaba yakho ingenza umehluko. Umphakathi udinga ukubona ubuso bomdlavuza wamaphaphu, ikakhulukazi unikezwa inhlamba. Umphakathi udinga ukuqonda ukuthi amanye omama, odadewethu namadodakazi ethu alahlekile ngenxa yomdlavuza wamaphaphu kunomdlavuza wesifuba. Ukuthi silahlekelwa abanyebaba, abafowethu namadodana ngenxa yomdlavuza wamaphaphu kunomdlavuza wesifo sofuba. Uma umphakathi ubona abantu bangempela abaphila nesifo okungekho ozobhekana nakho, bavula amehlo abo. Umdlavuza we-Lung awusekho ingxenye yesibili yezokuhweba okuxhunyanisiwe kodwa ke isimo esiyigugu esithinta umuntu okufanele siqalane nayo.

Inani labasindile

Esinye sezizathu zokuthi izwi lakho liyadingeka ukuthi kunamathuba ambalwa omdlavuza womdlavuza wamaphaphu ngaphandle kwalokhu ukuqwashisa njengoba kwenziwe namanye ama-cancer. Sizwile kusuka ekusindisweni komdlavuza wamabele ukuthi abasindile bomdlavuza wamaphaphu kudingeka "baphume lapho" ukuze bathole ukwesekwa okufanayo. Kodwa ukuze uphume lapho, kudingeka ube namaphaphu futhi uphume lapho, udinga ukuhlala.

Kusukela ngoJanuwari ka-2016, kwakunabantu abangu-3,560,570 ababelethwe umdlavuza wamabele e-US uma kuqhathaniswa nabasindile abangu-288.210 abanomdlavuza wesifo samaphaphu. Ngesikhathi esifanayo, kwakukhona abahlengikazi abangu-3,306,760 ababelethwe umdlavuza we-prostate, uma kuqhathaniswa nabasindile abangu-238,300 emdlavuza wesilisa wamaphaphu. Ngisho noma kukhona abasindile abambalwa, akusho ukuthi umdlavuza wamaphaphu awunzima kakhulu. Cishe kaningi kabomama, odadewethu namadodakazi ethu bazofa ngomdlavuza wamaphaphu kunokuba basuke kumdlavuza wesifuba, futhi obaba, abafowethu namadodana ethu abaphindwe kathathu ababulawa umdlavuza wamaphaphu kunomdlavuza wesibeletho.

Kuthiwani Ngokuqeda Ukubhema?

Kunezinhlangano ezithile ezigxila ekuqedeni ukubhema, futhi lokho kuyanconywa. Kodwa okudingekayo kulabo abaphila nalesi sifo namuhla akuyona inkulumo yokuyeka ukubhema. Iningi labantu abatholwa ukuthi banomdlavuza wamaphaphu ngo-2016 ababhemayo (bayeka ukubhema noma ababheki) nezinyanga ezimbalwa ngemva kokuxilongwa, amaphesenti angu-14 kuphela alabo abanomdlavuza wamaphaphu bayaqhubeka bebhema.

Ngokuqinisekile, labo abafuna ukwenza umehluko ngale ndlela bayamukelekile. Kodwa-ke, iphuzu lokuthi abantu abaphila nalesi sifo badinga ukwesekwa namhlanje, futhi kunezizathu eziningi zokuyeka ukubhema ngeke kupheliswe ukufa komdlavuza wamaphaphu .

Ngokuvamile, izinhlangano eziningi zomdlavuza wamaphaphu zigxile emdlalweni wamaphaphu kunokubhema. Abantu abaningi bayazi ukuthi ukubhema kubangelwa umdlavuza wamaphaphu, kodwa bambalwa abaqaphela umbala webhebhoni yomdlavuza wamaphaphu .

Ukucatshangelwa Kwezezimali Kwezokugqugquzela

Nguwe kuphela owazi isikhathi esingakanani ongasindisa ngazo ukuze ukhulume. Kulabo abahlala nalesi sifo, izimali zingaba nzima kakhulu. Nakuba ukugqugquzela ngenhloso enkulu isikhundla sokuzithandela, khumbula ukuthi izindleko zakho eziningi ezihlobene nokugqugquzela-njenge-mileage lapho uhamba ngemoto nokuningi-zikhokhiswa intela. Uma ungumdlavuza womdlavuza wamaphaphu qinisekisa ukuthi uhlola izinkokhelo zentela kubantu abanomdlavuza ukuze uqiniseke ukuthi awulahleki noma yikuphi kwalokhu.

I-Cancer Facts Facts for Advocates

Ukuthola uhlu lwezinombolo ezimbalwa (izibalo) kuyasiza uma ukhuluma nabantu ngomdlavuza wamaphaphu. Umbuzo owodwa ovame ukuvela ezingxoxweni zokukhuthaza kuyinkinga yokubhema? Kungenzeka ukuthi uzwe abantu bekhuluma ngabantu ababhemayo nabangewona abhema umdlavuza wamaphaphu . Ngokujabulisayo, phakathi kwezinhlangano zokumemezela okukhulunywe ngazo ekuqaleni, isimo sokubhema asinandaba, futhi akekho ocela. Uma sizokwenza ngempela umehluko ngomdlavuza wamaphaphu, wonke umuntu kudingeka ahlangane. Kunomugqa omuhle phakathi kokusebenzisa iqiniso lokuthi ababhemayo abakha umdlavuza wamaphaphu ukuqwashisa nokubamba umphakathi, nokwandisa ukucwasa komdlavuza wamaphaphu . Eziningi zalezi zinhlangano zenza umsebenzi omuhle kakhulu wokuvula amehlo abantu ngokubhekisela engozini yomdlavuza wamaphaphu kwabangewona abokubhema ngaphandle kokufakazela ukuthi labo ababhemayo bangaphansi kokunakekelwa okuhle kakhulu.

10 Amayelana Ne-Cancer Lung:

1. Umdlavuza we-Lung iyimbangela ehamba phambili yokufa komdlavuza kokubili amadoda nabesifazane e-United States. Umdlavuza we-Lung ubulala cishe abesifazane ababili abafana nomdlavuza wesifuba kanye namadoda amaningi njengomdlavuza wesifo sofuba.
2. Iningi labantu abahlakulela umdlavuza wamaphaphu namuhla ababhemayo abangasebenzi. Abazange baphuze noma bayeke ukubhema.
3. Abantu ababhemayo basengcupheni iminyaka namashumi eminyaka kamuva. Ukuhlolwa okuphansi kwe-CT ukuhlolwa kungaphawula ukwelashwa kwamaphaphu ekuqaleni kwezinyathelo futhi kuthuthukise ukusinda.
4. Umdlavuza wegciwane lingase linciphise ngokujwayelekile, kodwa landa kubantu abasha, ikakhulukazi abasebancane, abangabhemi ukubhema.
5. Akuwona wonke umdlavuza wamaphaphu obangelwa ukubhema. Isizathu sesibili esibangelwa umdlavuza wamaphaphu i-radon igesi amakhaya ethu. I-Radon iyi-gesi engenambala, engenambala ekhishwa ngesikhathi sokubola okuvamile kwe-uranium emhlabathini. Amazinga akhula wegesi ka-radon atholakale emakhaya kuwo wonke amazwe angu-50, futhi njengoba kwenzeka ekhaya, ngokweqile abesifazane nabantwana basengozini enkulu. Ukuhlolwa okulula kwe-radon yilokho okudingekayo ukwazi ukuthi usesengozini.
6. Ngisho noma ubhema (noma uma ungabhemi) unganciphisa ingozi yomdlavuza wamaphaphu. Funda ngezinto ezibeka ingozi emdlalweni wamaphaphu . Gwema ukutholakala kwamakhemikhali asekhaya kanye nokusebenza okungabangela ingozi. Ngisho nokuzivocavoca okuncane kunciphisa ingozi, futhi ukudla okucebile ekudleni okuthile kunganciphisa ingozi yakho .
7. Izinga lokusinda iminyaka engu-5 zonke izigaba zomdlavuza wamaphaphu zihlangene zizungeze amaphesenti angu-18. Ngomdlavuza webele, ingamaphesenti angu-89 futhi umdlavuza wesifo sofuba cishe amaphesenti angu-99. Sidinga izindlela ezingcono zokuthola umdlavuza wamaphaphu ezinyathelweni zokuphulukiswa ezingaphambilini kuwo wonke umuntu.
8. Noma ubani angathola umdlavuza wamaphaphu. Abesifazane bathola umdlavuza wamaphaphu. Ababhemayo abatholanga umdlavuza wamaphaphu . Abantu abadala bayithola umdlavuza wamaphaphu. Konke okudingayo ukuthola umdlavuza wamaphaphu ngamaphaphu.
9. Imithi yesifo somdlavuza wamangqamuzana kanye namanani omdlavuza we-lung wamaphaphu ayathuthuka.
10. Ukuze uthuthukise ukwelashwa okusha, imali iyadingeka. Imali yomdlavuza wamaphaphu ifundiswa ngokugcwele ngemali yomdlavuza webele.

Abagqugquzeli besineke kanye nabahambi bezimoto

Uma isipho sakho silele ekusizeni abantu abasanda kutholakala ukuthi bahamba ngandlela-thile ye-treatment yomdlavuza wamaphaphu, ungase uthande ukucabangela ukuthi ube yisiguli sesiguli noma ummeli wesiguli. Lokhu kuhluke "kummeli weziguli" ongase uzwe ngalokho okunganikezwa yinkampani yakho yomshuwalense. I-navigator yesiguli yilokho okushiwo igama. Lo muntu unolwazi kulokho okwenzekayo uma othile ehlonishwa futhi angakusiza ulandele zonke izinyathelo ezidingekayo ukuze uthole ukunakekelwa okungcono kunokwenzeka. Nansi ulwazi oluthe xaxa lokuthi ungaba kanjani ummeli wesiguli noma umkhumbi wendlela

Ngaphansi Kokuba Ummeli We-Cancer Counsel

Uma ufuna ukuba ummeli womdlavuza wamaphaphu, ungaqala namhlanje. Ungakwazi ukunikezela isikhathi esiningi noma esincane, kodwa kubalulekile ukuqinisekisa ukuthi awugcini amandla noma uthathe okungaphezu kwalokho ongakwenza-ikakhulukazi uma ulwa nomdlavuza ngokwakho.

Thatha isikhashana ukukhuluma nabanye abameli. Ungase ufune ukuqala kancane futhi wenze into efana nokujoyina isayithi lokukhuthaza umdlavuza online.

Ekugcineni, ungase uzibuze ukuthi ufanelekile yini ukuba ummeli. Njengoba kushiwo ngaphambili, okudingekayo kuqala ukuba ummeli we-cancer yomaphaphu kungenhliziyo enakekela abantu abaphila nomdlavuza wamaphaphu namuhla noma abazohlala nomdlavuza wamaphaphu esikhathini esizayo.

> Imithombo:

> I-American Cancer Society. I-Cancer Treatment kanye ne-Survivorship Facts and Figures 2016-2017. 01/01/16. http://www.cancer.org/acs/groups/content/@research/documents/document/acspc-048074.pdf

> Norris, K. Lung Lung Cancer Ummeli Ukumemezela kanye Medicine iqhaza. I-Genome Medicine . 2014. 6 (1): 7.