Ngaphambi kokuchaza ubuhlungu bakho be-MS kudokotela wakho, zibuze le mibuzo
Uma unesimo esibangela ubuhlungu obufana ne- multiple sclerosis (MS), konke okufunayo ngudokotela wakho ukukulethela impumuzo lapho uthi ubuhlungu. Kodwa udlala indima ebalulekile ekusizeni udokotela wakho ngokunembile futhi aphathe ngokushesha ubuhlungu bakho. Ngisho noma kuchaza ubuhlungu ngokuningiliziwe kungase kuzwe kunzima phakathi kwesiqephu esiyinkimbinkimbi, ulwazi (noma ukungabi nalutho) olunikezayo lungasho umehluko phakathi kokuzizwa kangcono nokuphila ngobuhlungu obungalawuleki, obukhubaza.
Ukucacisa akubalulekile nje kuphela ngezinhloso zokuxilonga, kodwa futhi ngoba odokotela abaningi bangaba yizinhloso ezithile ezibuhlungu. Phela, bayakuzwa ngeziguli zabo nsuku zonke. Futhi njengoba iningi lethu likwazi ukuthola ukwethuka kancane noma ukwesatshiswa lapho sivakashela udokotela, singakhohlwa into ebalulekile noma singacabangi ukwabelana ukuthi ubuhlungu obukhulu buyithinta kanjani ukuphila kwethu. Ukwenza konke okusemandleni akho ukuchaza ubuhlungu bakho ngokucacile nangendlela efanele kukunika ithuba elihle lokuzwa nokuphathwa ngendlela efanele.
Ubuhlungu kanye ne-Multiple Sclerosis
Ubuhlungu ku-MS bungabangelwa inqubo yesifo ngokwayo noma ngenxa yeminye impawu ze-MS , njenge- spasticity , neuralgia , noma immobility. Kukhona imithi engasiza cishe kunoma yiluphi uhlobo lobuhlungu, kodwa udokotela wakho kumele akwazi ukubona ukuthi kungani ubuhlungu bakho buba khona, futhi ukuthi kuthinta kanjani ukuphila kwakho, ngaphambi kokuba wazi ukuthi yikuphi ukuzama ukuzama nokuthi ulaka kangakanani indlela yokuphatha ubuhlungu.
Imibuzo Yokuzibuza (futhi Yilungiselele Ukuphendula)
Nazi imibuzo mayelana nobuhlungu bakho obuhlobene ne-MS okufanele ulungele ukuxoxa nodokotela wakho. Ukucabanga ngabo kusengaphambili, futhi ngokubhala phansi izimpendulo zakho, kungenza ukuqokwa kwakho kuhambe kahle. Ngenkathi lezi zicacile ukuzwa ubuhlungu, ungawasebenzisa ukuze usebenzise cishe noma yiluphi uphawu noma umphumela wezokwelapha ongase ube nakho kusuka kwesifo sakho.
Kubuhlungu kuphi?
Lokhu cishe umbuzo olula kakhulu wokuphendula. Kodwa-ke, khumbula - udinga ukuba kube ngokucacile ngangokunokwenzeka. Ungasho ukuthi, "emuva" uma iqiniso "liphansi futhi ngezinye izikhathi liwela phansi imilenze yami." Uma kunokwenzeka, phawula ubuhlungu. Uma ubuhlungu bakho buhambahamba, tshela udokotela wakho zonke izindawo ezingaba zibuhlungu kanye nezindawo ezilimazayo kakhulu.
Kuphela Kangakanani?
I-doc yakho izozama ukucacisa ukuthi ubuhlungu buyi- paroxysmal (okusho ukuthi buza ngokuzumayo nangokweqile, bese ushiya nje ngokuzumayo) noma okungapheli (okusho ukuthi kuza kancane kancane futhi kubambe isikhathi eside ngaphambi kokuba kuphele kancane noma kunciphise) . Lezi zinhlobo ezimbili zobuhlungu ngokuvamile zibangelwa izinto ezahlukene. Ngakho uthi uhlale ubuhlungu, noma ngezinye izikhathi ubuhlungu, akusho ngqo ngokwanele. Zama into efana nalokhu: "Ngihlale ngizwa ubuhlungu obukhulu kule ndawo, kodwa kunzima ekuseni kakhulu futhi okuhlala cishe ihora."
Uvame Ukuhlupheka Kanjani?
Zama ukucacisa empendulo yakho kulokhu bese ufaka ulwazi kusuka kumbuzo ongenhla mayelana nobude besikhathi. Ngokwesibonelo, ubuhlungu buyenzeka yini nsuku zonke ntambama ngesonto elidlule futhi kwaphela amahora angu-1.5 (uze ulale)? Noma ingabe ubuhlungu bubonakala buza njalo ezinyangeni ezimbili zonyaka owedlule futhi uhlale izinsuku ezingu-3 ngqo ngqo kuze kube yilapho uxazulula kancane kancane?
Noma, ubonile ubuhlungu obunzima lapho ugqoke kulokhu ekuseni owashiya emva kwemizuzu engu-10, ngakho wacabanga ukuthi kufanele uwuhlole?
Kuyini Okubi Kakhulu?
Ingabe uzizwa unzima nakakhulu lapho uqala ukuvuka futhi unzima, noma ingabe ubuhlungu bubonakala bubuhlungu njengoba usuku lugqoka? Cabanga ngobuhlungu maqondana nesikhathi semithi: Ingabe ubuhlungu buya bubi kakhulu noma buhle nakakhulu ngemuva kokuba uthathe imithi ethile, noma kubonakala sengathi akuhlobene nemithi nhlobo?
Ungachaza Kanjani Ubuhlungu?
Lapha, udokotela ufuna amagama afana nokuphoqa, ukukhalipha, ukushisa noma ukugwaza. Ungathola futhi uchaze futhi unikele izimpendulo ezinjengokuthi "uzizwa sengathi omunye unamathele ummese emlenzeni wami futhi uyisiphazamisa" noma "uzizwa sengathi ibhande liqiniswa nxazonke zami." Phendula ngemininingwane eminingi ngangokunokwenzeka , ukugwema izimpendulo ezifana "ezibuhlungu" futhi "buhlungu."
Yeka Ukukhathazeka Kakhulu Kangakanani?
Bona ukuthi ungakwazi ukukala ubuhlungu bakho ngesilinganiso se-1 kuya kwezingu-10 - "u-1" ukukhathazeka kakhulu futhi "u-10" ubuhlungu obunzima kakhulu obuke wabuzwa (noma bubi kakhulu). Uma ukwazi ukuhlala futhi ukhulume ngendlela evamile, ubuhlungu bakho abuyona neze 10. Njengoba ufuna ukuqiniseka ukuthi udokotela wakho uyazi ukuthi uzwa ubuhlungu, ufuna futhi uqaphele ngokudlulela izinga lakho lobuhlungu, njengodokotela wakho ungase ucabange ukuthi ujwayele ukunyanyisa futhi uthathe ubuhlungu bakho akuyona into embi.
Ingabe Ubuhlungu Buthinta Imisebenzi Yakho Yansuku zonke?
Ngamanye amazwi, ubuhlungu bukugcina ekhaya kusuka emsebenzini? Awuzange yini uqhubeke nemisebenzi yakho evamile eduze kwendlu ngenxa yobuhlungu? Ingabe kube khona izikhathi lapho kufanele uchithe isikhathi nabangani nomndeni wakho ukuthi ukhansele noma ungahlanganyeli ezithandweni zakho zokuzithandela ngenxa yobuhlungu? Ingabe ubuhlungu bakho bungathinta impilo yakho yobulili? Cabanga kanzima ngezikhathi lapho ubuhlungu bakho buphazamise khona impilo yakho.
Uke Waqaphela Noma yini Eyasusa noma Ethuthukisa Ubuhlungu?
Cabanga kanzima ngalokhu. Ingabe ubuhlungu buyakhudlwana ngemva kokuba useningizimu? Ingabe ubuhlungu obulethwa yi-stimulus zangaphandle (isibonelo, lapho izingubo zithinta umzimba wakho noma uma othile ekhononda) noma ingabe ivela ngaphandle? Ingabe ubuhlungu bubuhlungu ngokucindezeleka? Ukucindezeleka nosizi kungenza kube nzima nakakhulu emjikelezweni ononya, lapho ubuhlungu obuncane bubangela ukukhathazeka ukuthi kuzoba kubi kakhulu, futhi ukucindezeleka lokhu kunomthelela omubi ebuhlungu. Ngokuphathelene nokucindezeleka nobuhlungu, cabanga ngabantu empilweni yakho. Uyabona uxhumano lokuba phakathi kwabantu abahlukene kanye nobuhlungu obuzwa buhlungu noma buhle?
Imithi Yakho Yobuhlungu Isebenza Kanjani?
Cabanga ngemithi yonke nemithi oye wazama ngayo ubuhlungu bakho, kufaka phakathi izidakamizwa ezingaphezu kwemithi kanye nanoma yiziphi izidakamizwa ezingekho emthethweni ongase uzame (kubalulekile ukutshela zonke lezi zinto kudokotela, ngisho noma ungacabangi uzocabanga ukuthi kwakuwumqondo omuhle ukusebenzisa lezi zinto). Linganisa imiphumela yabo esikalini sika-1 kuya kwezingu-10 - "1" ukuthi awutholanga umphumela nhlobo futhi "10" okusho ukuthi ubuhlungu bakho buvele busheshe futhi buphele ngokuphelele. Ungakhohlwa ukukhuluma ngokusetshenziswa kotshwala, uma uphuze ukuzama ukunciphisa ubuhlungu. Futhi khuluma noma yiziphi ezinye izinto ongase uzizame, kuhlanganise nokukhwabanisa , ukusikhipha umzimba , i-biofeedback noma ezinye izindlela ezihambisanayo nezinye.
Umthombo:
UBrenda Stoelb no-M Dawn M Ehde. Ukuvama, ukuhlukaniswa nokulinganisa ubuhlungu. I-MS igxile. I-Multiple Sclerosis International Federation; Issue 10, 2007.