Sandi's Survivor Indaba Yokunqoba Inflammatory Cancer Breast

Vumela izinto ezincane zihambe, ubatshele ukuthi uyabathanda!

U-Sandi Johnson waya emlonyeni we-mammogram futhi waphuma nge-diagnosis ye-Inflammatory Cancer Cancer. Wabekezelela izinhlobo eziningi zokwelapha: i-chemotherapy, ukuhlinzwa, imisebe. Unomzimba wokuzivocavoca futhi ufanelekile, futhi usebenze njengomongameli webhodi lakhe lesikole. U-Sandi kanye nenethiwekhi yakhe yokusekela yenze le nkinga, futhi manje ubambe iqhaza. Nansi indaba yomdlali webelevuza kaSandi Johnson.

Ukusinda I-Cancer Inflammatory Cancer

USandi Johnson uye wabhekana nokuxilongwa kwe-sledge-hammer ye- Inflammatory Cancer Cancer . Ngokusekelwa komndeni wakhe nabangani bakhe, amalungu ebhodi lesikoleni, kanye neqembu lezokunakekelwa kwezempilo, uye wasinda ezithombeni eziyingozi, kanye nesiqephu se-metastasis. Ngakho konke, wagcina iphephabhuku, futhi waqhubeka ephikelela futhi enhle. Indaba yakhe iqala ngophenyo lomuntu ozwela futhi okhathazekile, owakhuthaza uSandi futhi waqala ibhola.

USandi ushadile nendoda yakhe uGary enamadodana amabili, uJake noJordan. Sandi noGary futhi basebenzise i-The Asylum Gym eMachesney Park, e-Illinois, kanti uSandi ube nguMongameli weBhodi YaseKhaya yeSikole eminyakeni eyishumi edlule. Uhambo lwakhe lugcinwa kwi-intanethi kwiwebhusayithi yakhe yeCaring Bridge.

I-Sandi's Cancer Diagnosis

Isikhathi sokuxilongwa: 50
Uhlobo lomdlavuza wesifuba: Ukuvuvukala komdlavuza webele ( isibindi se- 3 "by 5" / ishidi) kanye ne- Infiltrating Ductal Carcinoma (izicubu ezintathu = 2 0 ubukhulu cishe cishe ku-3 cm)
Isimo se-lymph node: ama- 5 angama-12 angama-positive
Incazelo yesisu: Isigaba IV, iBanga lesi-3
Ukuhlinzwa: I- bilateral radical mastectomy ne- sentinel lymph node biopsy
Ukwelapha: I- Chemotherapy ne-ACT (i- Adriamycin , i- Cytoxan , i-Taxotere), injection ye-Neulasta - izinyanga ezingu-5. Ukuthungathwa kwesayithi lokuhlinzwa - amasonto angu-7.
Ukwelashwa kwamaHormone wokulandela : U- Femara .
Ukwelashwa Kamuva Kwe-Metastasis: Ukushisa - amaviki angu-5 angeziwe, isilinganiso sezinyanga zama-Zometa esinikezwe ngaphakathi (bheka isithombe).
Kuthathwe ngo: Agasti 13, 2007
Umlando Womndeni we-Cancer Breast: Akukho

Okuthile kuphukile futhi kukhona okungahambi kahle

Ngangazi ukuthi kukhona okungalungile. Ngangifake isifuba esiphukile (i-saline) esigcwele isifuba engangiyihlosile, ekugcineni lapho nginesikhathi, ngithathe indawo. Phakathi naleso sikhathi, ngangingasho ngokuqhubekayo, ukuthi into ethile yayingekho kahle ngaphandle kwekhefu. Ngeshwa, lapho odokotela bebona ukuthi i-implant ephukile, babengenaso isithakazelo ekuphenyweni okuqhubekayo. Isicelo sami se-MRI sinqatshelwe yinkampani yami yomshuwalense, ngiyakholwa, ngoba babe nomuzwa wokuthi ngingase ngizame ukugaxekisa ngokufaka implant yami ephukile esikhundleni salo. Angikwazi ukuthola usizo ngaso sonke isikhathi futhi kwakuvusa amadlingozi.

Mammogram Ethuthumelayo

Okokugcina, ngesikhathi sokuzalwa kwami ​​kweminyaka yonke, udokotela angakwazi ukutshela nje ukuthi ngigula kakhulu. Ngangakapheli amahora angu-16, ngangisetafuleni le- biopsy enegumbi eligcwele labantu ababekhona, ngokusobala, bebona into engekho omunye wabo owayeyibonile ngaphambilini. Kwakuyisikhathi esivusa amadlingozi kimi. Ukusuka lapho, ngagcwala isiphepho sezinkinga zokuhlola, odokotela, ukuxilongwa, nokuphelelwa yisikhathi. Kwakuhloswe ukuthi ngine-Inflammatory Cancer Breast kanye nezitshalo zakho ezihlukahlukene zokufakelwa kwe-Diltal Carcinoma ene-lymph node. Umdlavuza wami usuvele usakaze emgqeni wami wesi-5 nango-6 ngakwesobunxele sami, umlenze wami wesokudla kanye nesifuba, umuthi wami we-thoracic, umlomo wesibeletho kanye nomlenze wesibindi. Lokhu kwakungumdlavuza we-Stage IV.

Uphumile

Indlela yokwelashwa kwami ​​yenziwa ngomqondo wokuphuthuma okukhulu kanye nesivinini. Ngaqala ukwelashwa kwezinyanga ezinhlanu zokwelashwa okukhulu kwemithi yamakhemikhali, futhi-ke izidumbu zomhlaba ezilandelanayo, zilandelwa amaviki ayisikhombisa we-radiation therapy. Ukuhlinzwa ukukhipha amabele kanye ne-khansa kwangigcina esibhedlela izinsuku ezingu-11. Kodwa ngacishe ngilahlekelwa ukuphila kwami ​​kwezinye izikhathi ezimbili phakathi nezinyanga ezimbili. Ngangiswa esibhedlela izinsuku ezingu-6 nginesimo esibizwa ngokuthi i- neutropenia lapho inani lami legazi elimhlophe liwile ngengozi phansi ukuze ngikwazi ukubhekana nazo zonke izifo ezingacabanga. Ngangihlala endaweni esesibhedlela lapho ngangingaboni muntu ngaphandle kwalabahlengikazi nodokotela abafanelwe nalokho okwakungabonwa khona izambatho ezibonakalayo.

I-Blood Clot

Ngesinye isikhathi ngangicishe ngifile ngilapho ngakha i-clot yegazi emithanjeni yami enegundane. Ngangifakwa esibhedlela ngoDisemba 23, 24, 25, 26 no-27. UKhisimusi okwakungekho. Lokhu kwakwesabisa ... isihogo esingachazeki. Ngezikhathi eziningi ngangizwa sengathi ukufa kwakuyindlela elula. Ngichitha izinyanga ezingu-6 ngesikhatsi, isikhathi esiningi, ngingazange ngizame ukulwa nomdlavuza kanye nemiphumela yokwelapha.

Unikezwe isigwebo esifushane

Ngiyaqonda ukuthi izinga lokusindisa i-IBC ngalesi sigaba ngu-25% okwenza kube yiminyaka emihlanu. Ngangiqale ukwakha ubungane nabanye abesifazana abathathu abane-IBC abaye bafa kakade kusukela lapho ngitholwa khona. Mina, ngokwami, ngitshelwe ukuthi ngingalindela ukuhlala i-anther izinyanga ezingu-6. Izinyanga eziyisithupha! Lokhu kwakungeke kube khona! Nginamandla, nginempilo, ngifanele ... ngingagula kanjani? Ngingabheka kanjani esibukweni futhi ngibone owesifazane obukeka enempilo ... ngezinye izikhathi kunomusa ... lo wesifazane ofanayo odokotela abathi bangasakwazi ukuhamba phakathi kwabaphilayo ezinsukwini ezingu-180 kuphela. Ngeke nje kwenzeke. Angikukholelwa ...

Ukuya Ukuvakashela I-Wizard

Ngibuthela umndeni wami futhi sihamba siye eYunivesithi yaseWisconsin eMtholampilo weCanscer Cancer eMadison, eWisconsin. Ochwepheshe ... noma kunalokho ngombono wami othembekile, i-Wizard of Oz. Bazozitshela leli bhizinisi lokuba nezinyanga ezingu-6 ezisele empilweni yami kungenangqondo. Bayongilungisa. Ngemuva kwamahora amabili neqembu lochwepheshe e-UW / Madison, ngithunyelwa ekhaya ngicela uxolo ... abangeke bangenze lutho kimi. Imoto engamamitha angu-45 yokushayela ibhekene nokulimaza kakhulu njengoba ukushayela kuyo bekube nethemba lokuthembisa.

Ukuguqula Point - Isinqumo Isikhathi

Ngalolo hambo ekhaya, nganquma ukubuyela ekhaya eRedford, ngiye ku-oncologist eyodwa engcono kakhulu yokucabanga engangiyifanele. Ngeke kube khona ukufuna imibono yesibili noma yesithathu ... umoya wami wawuzophuka uma ngithola esinye isinqumo sokuxolisa. Kuyesabeka! Ngibhala, kusukela ekuqaleni kwalesi simo esibucayi, kwifomathi yedayari ku-website yami ye-Caring Bridge kakhulu kakhulu nsuku zonke ehlinzeka ngabantu abangibheka ngombono wangaphakathi empilweni yami njengesiguli somdlavuza. Ngimemezele lokho okuye kwabizwa ngokuthi "okuluhlaza, ebusweni bakho, ngokweqiniso" ekubhaliseni kwami. Ngiyaziqhenya ngaleli qiniso. Iwebhusayithi yami ye-Caring Bridge ithole cishe ama-190,000 hits ezinyangeni ezingu-16.

Network Support

Ukusekela engangikuthole kumndeni nabangane (kanye nomphakathi wonke) kuye kwahamba kakhulu futhi kukhona engingasinda kulokhu ngaphandle. Nginendoda, uGary, namadodana amabili (uJake, 21 noJordan, 17) abaye bajabule; Benze ingxenye yabo yokuhlupheka kanye. UGary futhi nginomzimba wokuzivocavoca, nakuba ngiwugijima ngenkathi esebenza ekuphathweni kweBlue Cross Blue Shield, nomhlinzeki wami womshuwalense wezempilo. (Yikes!) Kube nzima. Ngisengumongameli webhodi lesikhungo sendawo yesikole sendawo kule minyaka eyishumi edlule futhi ngenze abangane abaningi abaye bangisekela.

Yiba uMmeli Wakho Omhle

Angikwazi ukucindezela ngokwanele ukubaluleka kokuxilongwa kwangaphambili. Okubaluleke nakakhulu, yiba ngummeli wakho ongcono kakhulu. Uma unomuzwa wokuthi kukhona okungahambi kahle, udinga ukuthi uphendule indlela yakho yezimpendulo. Uma ngabe ngingabuyela emuva, bengingeke ngizilungiselele odokotela bokuqinisekisa ukuthi 'konke kuhle' ngoba nje banenhlakanipho kunami ... banemfundo eminingi - kumele bazi ukuthi bakhuluma ngani ... kumele bazi kangcono kunami yenza. Uma ungajabuli, qhubeka uqhubeka, qhubeka uqhuma. Unelungelo le-mammogram, ngisho noma kungeyona isikhathi sonyaka wakho. Uma usazizwa ukhululekile, cela i-ultrasound. Uma usenomuzwa wokuthi ungakhathazekile, cela i-MRI. Uma ukubuza kungasebenzi, THOLA. Unelungelo lokuzaneliswa izimpendulo ozithola kudokotela bakho.

IsAmbulo Semetastatic

Ezinyangeni ezine ngemva kokudlula kwami ​​kokuqala kwezokwelapha, sekutholwe ukuthi umdlavuza wami wawusakazeke emlonyeni wami nasesikhwameni sami ngakwesokudla. Umzwa wami wukuthi ngilahlekelwe ngempela. Ukusakaza? Kakade? Ngangihamba ngezinsuku ezimbalwa ngaphambi kokuba ngiqaphele, ekugcineni, ngisekulwa empilweni yami. Ngifuna ukuphila. Ngifuna ukubona umqeqeshi wami weshumi nesishiyagalombili esikoleni esiphakeme. Angikulungele ukuhlukanisa ubuhlobo enginakho nabantwana bami ababili ngenxa yomdlavuza. Yonke imicabango yami, konke amandla ami ... konke okwami ​​konke okwakungenzeka manje kuya ekubhekeni kwanoma yikuphi umzamo okwakudingeka, noma ubugovu, ukuba uphile. Kwakuyisambulo sangempela.

Ukubambelela

Ezinyangeni ezinhlanu ezedlule, ngiqede ukujikeleza kwemisebe edingekayo ukubhekana nalezi zindawo zomdlavuza omusha. Kusukela ngaleso sikhathi, izivivinyo zokuxilonga ziye zembula ngenkathi ngisenomdlavuza osebenzayo ezinhlangeni zami eziyisihlanu nesithupha ezisehlangothini lwami lwesobunxele, umlomo wami we-thoracic, lumbar nomlomo womlomo wesibeletho, iziqhenqo ezingakwesokudla nangesokunxele nesifuba, akuhambisani nesikhathi. Ngicabanga ngalokhu njengempi yezinhloso ... yini leyo mdlavuza wesibeletho ukucabanga manje? ... yini ehlelayo ngokulandelayo? Kumelwe ngiqhubeke isinyathelo ... isikhathi esiphila phambili.

Izimila ezintsha

Ngichitha izinyanga ezine ezilandelayo ngithola ama-saline injection njalo ngemva kwamasonto amathathu ngiya ezigodini zezikhukhula ezifakwe ngesikhathi sokuhlinzwa kwami ​​kwe-mastectomy. Lezi valve zinamathele "ezinhlanhleni zesikhumba" eziyocaca, zelulele isikhumba sami esibucayi esifubeni sami ukuze ngithembele, isikhala esanele singadalwa ukuze senze izimpande zebele.

Inselelo Entsha: Lymphedema

Phakathi nalesi sikhathi, nami ngathola isimo esingelapheki esibizwa ngokuthi i- lymphedema . Ngaphazamiseka uhlelo lwami lymphatic, ingalo yami kwesokunxele yalahlekelwa ikhono layo lokucubungula amanzi. Akekho ongangilungiselela ukungathí sina kwalesi sifo nokukhubazeka okuhambisana nayo. Ngezinye izikhathi, ingalo yami engakwesokunxele ingama-intshi angu-7 kuya kwangu-8 amakhulu kunengalo yami yangakwesokudla. Ngivame ukuzizwa nginjengomzimba ongokwenyama futhi ngezikhathi zokuzihawukela, ngizibheke njengomphambano phakathi kukaPapa noFrankenstein.

Ukuhlinzwa okwengeziwe, Ukwelapha okwengeziwe

Ngesonto eledlule, ngathola ukuhlinza okuhlanganisa 1) ukususa imishini elula eyayisetshenziswe ekuhlinzekeni kwangaphambili, 2) ukususa izicubu zangaphakathi zesikhumba, 3) izicubu zangaphakathi zesifuba nesifuba ngaphakathi, 4) ukufaka izimila ze-gel kanye no-5) nokususa i-2 "ngo-8" isikhumba sesikhumba empilweni yami esasiphulukile ngokungalungile kusukela ekuhlinzekeni kwangaphambili okubandakanya isikhumba sokuhlanganiswa. Ngilindele futhi umshuwalense wami ukuthi ngivumele ukukhokha u-$ 8,000 kumshini wokwelapha lymphedema ozosiza ukugcina ukuvuvukala phansi kwengalo yami.

Iseluleko Mayelana Nomshuwalense Wezempilo

I-Cancer. Kuye kwaphazamiseka phakade engokwenyama nangokwengqondo, ngaphandle kokushiwo, ngezezimali. Ukuphila kunzima nakakhulu ngokwezimali kunalokho engingakulindela ... ikakhulukazi ngomshuwalense omuhle. Ngicabanga ukuthi akulungile ukuthi iziguli zomdlavuza kufanele zihlupheke kuleso simo. Kodwa ... Ngizothatha ukuphila kunoma yisiphi isimo sezimali, kunokuba ngingabi nhlobo nhlobo. Eqinisweni, ake ngibe mpofu, ngivumele ngihlale. Iseluleko engingayinika bonke abathengisa umshwalense wezempilo ukuthi uzibuze umbuzo owodwa olula: Ingabe lo mshwalense engingathanda ukuba nawo, uma nginomdlavuza?

Namanje Lapha, Esinda

Ngilandele uhambo lweziguli ezingu-15 ze-IBC kusukela ngiqala uhambo lwami. Njengesonto eledlule, ngokudabukisayo kodwa ngokuyisimangaliso, mina ngedwa kuphela kulabo abasaphila. Ngibonga uNkulunkulu nsuku zonke ngoba ngiyazi ukuthi yilowo nalowo uyisipho ngempela. Ngiyazibuza ukuthi "kungani?" Kungani ngiqhubeka ngisaphila ngenkathi kuningi kangaka, abanye abaningi bengenzi. Ngabe ngikhunjuzwa: "Okwethu akumangalisi ukuthi kungani ..."

Ngokujabulisayo, Ukubuka Ngaphambili

Okokugcina, ngo-2008 usilandela futhi ngo-2009 usanda kuqalwa ngokusha kosuku olusha lomshini ... isikhathi sokubheka phambili izinto ezinhle okuzophila. Ngiyajabula ukuthi ngiyaphila. Ukuphila kwaguqulwa kuze kube phakade nge-diagnosis yami kodwa ngiyabonga ngendlela efanayo. Ngiyabonga uNkulunkulu, nomndeni wami nabangane ... ikakhulukazi labo bonke abanginike ukwesekwa okuningi ngale ndlela ende, eyinkimbinkimbi engangihamba ngayo ... okwenza kube lula kakhulu ukuthwala.