Ukubhekisela ekunakekelweni, ukuxhumana nobudlelwane, imali, kanye nezingane
Uma noma yini ingathinta umshado, i-multiple sclerosis (MS). Kodwa ngolwazi ngezinselelo ezithile MS ezifaka kubambiswano, nokuthi zingabhekana kanjani kangcono, ungaba nomshado owanelisayo futhi ophilile-njengoba nje wena nomlingani wakho kufanelekile.
Umsebenzi Wokunakekela
Ukukhubazeka okuhlobene ne-MS kanye nezimpawu zingamphoqa umlingani wakho ukuba abe yingxenye yokunakekelwa.
Isibonelo, ezinye izibopho ezingase ziwele emahlombe omlingani wakho zihlanganisa:
- Ukunikeza imijovo nemithi
- Ukusiza ukuvikela amandla akho
- Ukuthatha imisebenzi eminingi yasendlini
- Ukuba ngumuntu oyinhloko yokudla
- Ukuthatha imisebenzi eminingi yokubeletha
- Kukusiza ukunciphisa ukucindezeleka
Ngalokho, kubalulekile ukulinganisela izici zomshado zobuhlobo bakho nezici zokunakekelwa. Lokhu kungenxa yokuthi indima yomnakekeli ingakushintsha njengombhangqwana ebuhlotsheni bomzali nabantwana, okungesihle emndenini.
Ubulili, Ubuseduze, kanye no-MS
I-MS ingabangela inqwaba yezinkinga zocansi kumadoda nabesifazane . Eziningi zalezi zinkinga zingabhekana nemithi, izinsiza zocansi (njengezicucu) nezinye izixazululo. Isihluthulelo sokuphila kocansi okunempilo kufana nayo yonke imibhangqwana-ukuvula, ukukhulumisana okuqotho.
Ukukhulelwa kanye ne-MS
Uma ungowesifazane onama-MS, lokhu akushintshi ikhono lakho lokuba nokukhulelwa okuphephile, okuphumelelayo.
Eqinisweni, ukukhulelwa kaningi kuhlinzeka ukuphumula okwesikhashana kusuka ezimpawu ze-MS, okuvumela ukukhulelwa ngaphandle kwemithi. Ngenxa yokuthi imishanguzo ye-MS yamanje -modifying medication ayikwazi ukusetshenziswa ngenkathi ukhulelwe noma ngenkathi uzama ukukhulelwa, ukukhathazeka okuyinhloko yisikhathi osichitha uzama ukukhulelwa.
Phakathi nalesi sikhathi, awukwazi ukutholakala ngemithi ye-MS futhi ithuba lokubuyela kabusha liyakhula.
Ukubeletha kanye ne-MS
I-MS ingadala izinselelo ezingaphezulu ekuzalaneni. Uma ungumzali one-MS, kungenzeka ukuthi awunalo amandla okufeza yonke imisebenzi yakho yokubeletha njengoba ungathanda. Izikhathi zokuphindaphindiwe nokwehla kwezimpawu zingathinta izinhlelo zakho zomndeni nezindlela zansuku zonke. Ukuhlelwa kahle nokuthuthukisa inethiwekhi yabantu abangasiza ekusizeni kuzonciphisa kakhulu imiphumela emibi ye-MS ngokubeletha kwakho.
Ukukhathazeka ngokwezimali
Ukukhathazeka ngezezimali emishadweni ye-MS nakho kuvamile. Uma une-MS, kungenzeka ukuthi awukwazi ukusebenza, ngaleyo ndlela unciphisa amathuba okuthola imali jikelele. Ngaphezu kwalokho, ukunakekelwa kwezokwelapha, imithi, nezinye izidingo zingase zibekwe izindleko ezengeziwe kuwe. Ukuhlelwa kwezimali okuhle nokucela usizo uma kudingeka kuyadingeka.
Ulwazi nokuqonda
Wena nomlingani wakho kudingeka nilwazi kahle nge-MS, kanye nezimpawu, ikakhulukazi ezingabonakali (izimpawu ezinzima ukubona). Isibonelo, izimpawu zengqondo zingabangela ukuxhumana kabi, ukungaqondi kahle nokuhlukunyezwa emshadweni wakho. Ukhathala kungabangela ukufutheka nokucindezeleka.
Ngokuqaphela ukulahlekelwa kwememori, ukudideka, ukukhathala, nezinye izimpawu ezingabonakali ze-MS njengesizatfu sesifo, umlingani wakho angakwazi ukuqonda nokuvuma ngokwengeziwe.
Kufanele bobabili babe nolwazi olunzulu mayelana nemithi yokwelapha yakamuva kanye nezindlela eziwusizo ezihambisanayo / ezihlukile zokubhekana nezimpawu ze-MS futhi. Ukuba nolwazi lolu lungile kungasiza esikhathini sokuhlupheka.
Ukufundisa Imindeni, Abangane, kanye Nezisebenzi
Lapho abantu bezwa "multiple sclerosis," bavame ukucabanga ngokushesha ngezihlalo zabakhubazekile . Uma une-MS futhi u-ambulatory (hhayi esesihlalo sabakhubazekile) futhi uhlupheka ngokuyinhloko kumpawu ezingabonakali, umndeni, abangani, kanye nabasebenza nabo bangase bangaqondi ukuthi lesi sifo sithinta kanjani izimpilo zakho.
Ukufundisa abantu nge-MS kubalulekile ukudala izimpendulo ezifanele nokusekelwa.
Ngeshwa, le ndima izowa ngokuyinhloko kuwe nomlingani wakho.
Ungacabanga ukuthuthukisa incazelo emfushane ye-MS nokuthi kungani kuthinta impilo yakho. Kubalulekile ukukhumbula futhi ukuthi abantu abavame ukusho ukuthi bangenandaba, bamane nje abanolwazi oluhle.
Ukuhlela Izimpawu
Kungakhathaliseki ukuthi uhlobo luni lwe-MS unalo noma lukhulu kangakanani, kunezinto eziningi mayelana ne-MS ongayilungiselela indlela yokubhekana nayo, kufaka phakathi ukubuyela emuva kanye nokwehla kwezimpawu zakho ngezikhathi zokucindezeleka. Kukhona futhi eziningi zezimpawu ezingase zifike futhi zihambe. Ngokuhlela lezi zimo, unganciphisa kakhulu ukucindezeleka kwe-MS emshadweni wakho.
Okubalulekile ukuthi kubalulekile ukuba uhlele izikhathi lapho udinga ukuphumula kanye / noma ubuyela emuva. Qaphela ukuthi ikusasa lingashintsha futhi lishintshe futhi lilungele ngangokunokwenzeka ukuze unciphise ukucindezeleka kulesi sifo esingalindelekile.
Izwi elivela
Ngaphandle kokungabaza, i-MS ithinta imishado, kodwa hhayi njalo kabi. Emibhangqwana eminingi, ukufakwa kwesiliva sokusebenzisana ne-MS ukuthi kubanika umbono ekubaluleke kakhulu, kubakhuthaza ukuba bathathe indlela yokuphila elula, elula yokuphila.
Lokhu kusho, ngokukhulumisana okuvulekile, okuqotho nokuhlela okuhle, umshado wakho ungaqiniswa yizinselelo ze-MS.
> Umthombo:
> Tompkins SA, Roeder JA, Thomas JJ, uKoch KK. Ukuphumelela kohlelo lobudlelwane bezobudlelwane kwabashadile abaphila nge-Multiple Sclerosis. I-International Journal ye-MS Care . 2013; 15 (1): 27-34. doi: 10.7224 / 1537-2073.2012-002.