Ukuphila Okude Kangakanani Kusekelwe Ezicini Eziningi Kangako futhi MS Ungumunye Wabo
Uma wena noma othandekayo une- multiple sclerosis (MS) , kuvamile ukuzibuza ngomthelela we-MS ekulindeni kokuphila kanye nekhwalithi yokuphila.
Ubude obukhulu ku-Multiple Sclerosis
Ukulindeleka kokuphila komuntu onama-MS kuthiwa sekungaphansi kweminyaka eyisikhombisa kunomuntu obala, nabanye abantu ababulawa yizinkinga ezihlobene ne-MS nabanye ababulawa kwezinye izimo zezokwelapha ezifana nesifo senhliziyo.
Ngamanye amazwi, ukubikezelwa kokuphila isikhathi eside kulungile, ngaphandle kwezimo ezingavamile lapho umuntu ekhula kakhulu, eqhubeka ngokushesha MS.
Lokho okushiwo, lokhu okutholakele "kweminyaka engaphansi kwesikhombisa" kungumlando kuphela futhi akubikezeli isikhathi sokuphila kwanoma yimuphi umuntu one-MS. Uhlobo lwe-MS umuntu, kungakhathaliseki ukuthi luthatha ukwelashwa okuguqulwa isifo , nezinye izinkinga zezokwelapha, nempilo yomuntu jikelele (isibonelo, isisindo sabo, ukudla, noma ukubhema noma cha) yizici ezengeziwe ezingathinta isikhathi sokuphila komuntu.
I-Quality of Life ku-Multiple Sclerosis
Ngaphandle kwenani leminyaka ukuthi umuntu onama-MS uzophila, abantu abaningi bayazibuza ngomthelela we-MS ekhasini eliphezulu lokuphila.
Ukubikezela izinga lakho lokuphila elilodwa (noma owathandekayo wakho) kuyinselele, njengoba kunezici eziningi ezisekudlaleni, kungakhathaliseki ukuthi une-MS.
Cabanga nje, sonke siyazi abantu abaneminyaka engama-80 ubudala futhi bafaka usuku lonke lwezinkambo ezigijima, ukulima, nokuhlanza, kodwa namanje banamandla kusihlwa ukuze badle isidlo sakusihlwa nomngani, beya embuthanweni wezenhlalakahle, noma bahambe hamba.
Ngaphesheya kokuphambene kwe-spectrum, ingabe abantu abaneminyaka engama-60 ubudala abanenkinga yokuhamba esitolo sokuthenga ngaphandle kokuhlala phansi ukuze baphumule izikhathi ezimbalwa.
Ukuhluka okukhulu ngokuhambisana nekhwalithi yokuphila kuyafana kubantu abane-MS-abanye abantu bazokwazi ukwenza okuncane njengoba isikhathi sidlula futhi abanye bazokwazi okuningi okuningi.
Isihluthulelo sokwenza ngcono impilo yakho ye-MS kungukuthi unakekele kuphela izidingo zakho ezihlobene ne-MS kodwa futhi uhlole impilo yakho yonke. Izindaba ezinhle ukuthi ukuziphatha okunempilo kuvame ukuzuza kokubili, njengokuzivocavoca nokugcina isisindo esivamile.
Indaba Ekhuthazayo Yokuphila Ne-MS
Emhlanganweni waminyaka yonke weKomidi laseYurophu yezokwelapha kanye nocwaningo e-MS (ECTRIMS 2012), i-akhawunti yokuphila komuntu owake waphila kwaze kwaba neminyaka engu-97 ubudala nge-MS. Nakuba igama lendoda lalingakaze linikezwe, umlando wakhe wawucacisiwe kumaphosta, kanye nezithombe zakhe.
Lo mnumzane wazalwa eHungary ngo-1910 futhi wathuthela eFrance ngo-1929. Wayengumuntu olwa nokulwa eWWII nesikhonzi sempi, kodwa wasinda ngo-1941.
Umlando wakhe wezokwelapha ohlobene ne-MS waqala lapho eneminyaka engu-22 ubudala lapho ebona umbono ophindwe kabili. Ngaleso sikhathi, lapho eneminyaka engu-32 ubudala, waqala ukubuthakathaka kokubili izingalo nesifuba, esanyamalala ngemva kwamasonto amathathu. Phakathi nalesi siqephu, wayengaziwa kahle nge-mercury poisoning.
Ngemuva kokuthola izimpawu eziningi kule minyaka, ekugcineni wathola ukuthi une-MS ngo-1966. Ngo-1971 waqala ngezikhathi ezithile esebenzisa isihlalo sabakhubazekile lapho kudingeka.
Nakuba ebhekene nokukhathala kusukela ngo-1965, ngokuvamile ekhubaza, waqhubeka esebenza kulo lonke ukuphila kwakhe.
Le ndoda yachitha umsebenzi wayo njengomdwebi wezakhiwo, eya embukisweni womsebenzi wayo izinyanga ezintathu ngaphambi kokufa kwakhe ngo-2007. Wabuye wahlala ocansini kuma-80s.
Wafa eneminyaka engu-97 yobukhulu obuthakathaka kanye nokuphefumula kokuphefumula ngaphambi nje kokuzalwa kwakhe kwe-97. Wayephila iminyaka engu-75 no-MS.
I-poster emhlanganweni we-ECTRIMS yathi le ndoda yindoda endala kunazo zonke nge-MS ngenkathi efa. Kungakhathaliseki ukuthi lokho kungaqinisekiswa, indaba yalowo muntu iyathakazelisa futhi iyathandeka ngokubheka komuntu. Uma kukhona, kungakunika ithemba lokuthi ungaphila impilo ende, esebenzayo, futhi egcwalisekile nalesi sifo.
Izwi elivela
Ukuphila ne-MS kuyinselele kumazinga amaningi kangaka. Ekugcineni, ukuthuthukisa ikhwalithi yokuphila nokuqiniswa kokwakhiwa ukubheja kwakho okuhle kakhulu. Qinisekisa futhi, ngokuvela kwezinqubo ezintsha zokwelapha, impilo yabantu abahlala ne-MS iyanda.
> Umthombo:
> Marrie RA et al. Umphumela wokufiphazwa kokufa kwesifo se-multiple sclerosis. I-Neurology. 2015 Jul 21; 85 (3): 240-7.