Ukuqeda Ukubhekana Nezinkinga Zokuphila Ne-MS
Ukuphindaphindiwe kusho ukubhekana kahle nokuguqula kahle lapho ubhekene nenselele yokuphila, kungakhathaliseki ukuthi kuyisenzakalo esibuhlungu, ukugula okungapheli, ubuhlobo obunzima, ukuhlupheka kwezimali, noma omunye umthombo wokucindezeleka okukhulu.
Njengesifo esingapheli, esikhubazayo, i- multiple sclerosis (MS) ngokungangabazeki kuyinkinga, ebangela ukucindezeleka ngokomzwelo nangokwenhlalo, kanye nezimpawu ezikhungathekisayo ezifana nokukhathala, izinkinga zokuhamba, nobuhlungu.
Kodwa ngokusebenzisa ukuqinisela ekuvumelaneni ne-MS, ungathuthukisa izinga lakho lokuphila, kanye nokusebenza kwakho kwansuku zonke emisebenzini nasemisebenzini yokuphila.
Izithintelo Zokulinganisela Kwe-Multiple Sclerosis
Ngokusho kocwaningi oluholwa abacwaningi eNyuvesi yaseWashington School of Medicine, kunezithiyo eziningana zokwethenjelwa ku-MS. Ezinye zalezi zithiyo zifaka:
Ukuhlukaniswa Kwezenhlalakahle Nesizungu
Ungase uzizwe uhlukaniswe nabangane kanye / noma amalungu omndeni ngoba ukholelwa ukuthi abaqondi i-MS yakho. Kulokhu, ungase uzidele ngokuyeka ukubandakanyeka komphakathi. Ehlangothini le-flip, ungase uzizwe ungabanjwanga ngenxa ye-MS yakho.
Izimpawu ze-MS ezinjengezinkinga zokuhamba noma zokulinganisela zingaphinde zinciphise ukuxhumana kwabantu. Ngaphandle kokulinganiselwa ngokomzimba, abantu abaningi abane-MS banenkinga yokucabangela kanye nokukhubazeka ngokomzwelo njengokucindezeleka nokukhathazeka, okungaqhubekisela phambili ukuhlukanisa umphakathi.
Ukungaqiniseki kwe-MS yakho kungenzeka ukuthi kudlala indima-ungase uthi "cha" ekubandakanyekeni komphakathi ngaphandle kokukhathazeka noma ukwesaba ukuthi ngeke uzizwe kahle.
I-Stigma
Naphezu kokuthi ulwazi mayelana ne-MS lubonakala kakhulu futhi lwabiwe kunanini ngaphambili (ikakhulukazi ngoba abantu bayatholakala ukuthi maduzane, futhi eminyakeni eyishumi edlule ibonile ukwanda kwemithi emisha), kusekhona okuningi okungaqondakali mayelana nalesi sifo.
Ngokwesibonelo, abantu abaningi bacabanga ukuthi uma une-MS, uzodinga ngokuzenzakalelayo idivayisi yokusiza yokuhamba . Abanye bacabanga ukuthi ukukhululwa kwe-MS kusho ukuthi uzizwa "ujwayelekile futhi ulungile." Ngokuvamile lokhu akunjalo, noma kunjalo. Kubantu abaningi abane-MS, ngisho noma bengabhekene nokuphindaphinda okukhulu, abakhuthazelela izimpawu ngokuvamile abonakali kwabanye njengezinkinga zokucabanga, ukukhathala , ukucindezeleka, nobuhlungu .
Izinkolelo Nezizwa Ezimbi
Ucwaningo lubonisa ukuthi abanye abantu abane-MS bangase babe nomuzwa ophansi wokuzibheka futhi bazigxile ekulahlekelweni kwamakhono noma impilo yabo ngaphambili. Le ndlela engafanele yokucabanga ibala umqondo wokuqina, okubandakanya ukwamukela izindima ezintsha zokuphila noma ukuguqula nokuthola imisebenzi enenzuzo lapho ubhekana nobunzima.
Ukukhathala
Nakuba noma yisiphi isibonakaliso ku-MS kungaba yisithiyo sokuqina, ukukhathala kubonakala kuyinkulu. Ngenkathi ukukhathala kuchazwa ngokukhethekile ngabantu abane-MS (isib. "Inkohlakalo yobuchopho," "ukufana noketsheziza," noma "ubuthakathaka"), isenzo esijwayelekile siwukukhubazeka okukhulu, ngokuvamile kokubili ngokwengqondo nangokomzimba. Lolu hlobo lokukhathala lokukhathala lungaba yisithiyo esikhulu ekutholeni amasu okubhekana nokubhekana kahle.
Indlela Yokuthuthukisa Ukulinganisela Kwakho
Uma unomuzwa wokuthi i-tank yakho yokuzikhandla isondela kungenalutho, kunezindlela zokuqinisa umoya wakho futhi ikusize ukubuyisela emuva kalula kusuka ezinselele ezihlobene ne-MS.
Ukulinganisela kungafundiswa noma kuthuthukiswe-akuyona nje umkhuba onayo noma ongenayo. Nazi ezinye zezindlela okufanele uzicabangele uma uqinisa ukuqina kwakho:
Thola incazelo
Isu elilodwa silula: Yenza imisebenzi ewusizo, leyo eyinikeza injongo, umuzwa wokufeza, noma ugcwalise umphefumulo wakho.
Lezi zinto zizohluka kumuntu ngamunye, kodwa ezinye izibonelo zokuthola imicabango yakho zifaka phakathi:
- Ukuthatha ikhofi noma isidlo nomngane oseduze noma othandekayo
- Ukuzithandela
- Ukuhlela ukuzitholela-ukuthola massage noma ukuyala amathikithi kumculo ozithandayo noma ukudlala
- Ukufunda ukuzilibazisa okusha njengokumiswa kwesiphambano noma izithombe
- Ukuhamba ukuhamba noma ukushayela emvelweni
- Ukusebenzisa ukuzindla kwe- yoga noma kwengqondo
- Yenza imicabango yakho nemizwelo yakho ejulile
- Ukuya esontweni noma ukuhlela ukuhambela nomeluleki ongokomoya
Funda nge-Psychology enhle
Esinye isinyathelo sokuthuthukisa ukuqinisela kwakho ukufunda nge-psychology enhle kungaba nge-intanethi noma ngeqembu lokusekela, inkambo yezifundo, ochwepheshe bezempilo yengqondo, noma incwadi.
Ungamangala uma ufunda ukuthi ucwaningo lusekela ukusebenzisa i-psychology enhle ukwenza ukwakha amandla ku-MS. Isibonelo, isifundo se-psychology esihle samasonto ayisithupha esibizwa ngokuthi "Everyday Matters," (esasungulwa yi-National MS Society) sitholakale sikhula ukuqina kubantu abane-MS ngamaphesenti angu-20.
Lezi zifundo zanikezwa yi-teleconference futhi zihlanganisa imihlangano yeqembu elisekelwe efonini njalo ngesonto, kanye namavidiyo nokufunda. Abantu abangazange babambe iqhaza kule nkomfa babengekho ushintsho ekuqineni.
Uma ukhetha ukufuna usizo lobuchwepheshe mayelana nokusebenza kwengqondo enhle, nansi izibonelo zezici ezingase zibhekiswe kuzo:
- Ukwakha ubudlelwane obuqinile, obunesihe, nokuthembela nabanye
- Ukwenza imigomo engokoqobo nokuhamba ngezinyathelo zokuzifeza
- Ukuzivumelanisa nezimo lapho kuphakama ukucindezeleka
- Ukuthuthukisa ukuzethemba nokukhomba amandla akho
- Ukwandisa ukuxhumana kwakho kanye namakhono wokuxazulula izinkinga
- Ukushintsha ukucabanga kwakho uma kuziwa ezinkingeni
- Ukufunda izindlela ezinempilo zokuphatha imizwelo yakho nokuziphatha
- Ukuzwa nethemba nokuthuthukisa umbono omuhle ngokuphila
Zama Ukwelashwa Kwezemisebenzi
Esinye isifundo esincane sasihlola indima yezokwelapha emsebenzini ekuqiniseni ukuqina kubantu abane-multiple sclerosis. Kulolu cwaningo, abahlanganyeli baqedile Isikali Sokuvuselelwa Ngaphambi Kamuva nangemva kokungenelela kwe-OT yesonto eli-8.
I-Resilience Scale yikali esingama-25 esekelwe ezintweni ezinhlanu zokuqina:
- Ukuzethemba (isb., "Uma ngisesimweni esinzima, ngiyakwazi ukuthola indlela yami yokuphuma.")
- Okushoyo (isibonelo, "Ukugcina isithakazelo ezintweni kubalulekile kimi.")
- Ukulinganisa (isb., "Ngivame ukuthatha izinto ngokuhamba.")
- Ukubekezela (isib. "Ngezinye izikhathi ngizenza ngenze izinto noma ngabe ngifuna noma cha.")
- Ukungafani okukhona (isb., "Ngingaba ngedwa uma ngifanele.")
Isilinganiso sitholwe ebangeni kusuka ku-25 kuya kwangu-175, futhi ngaphezulu kwezinga, kuphakama ukuqina.
Ucwaningo lwathola ukuthi njengeqembu, labo abaqedile ukungenelela kwe-OT babe nokuthuthuka okukhulu ekuqineni kwabo. Iqembu elincane labahlanganyeli (ngaphandle kokuzikhethela) alizange lihlanganyele ekungeneni kodwa lisaqedela iSisindo Sokubuyiselwa Kwesiqalo ekuqaleni nasekupheleni kwesifundo. Abazange babonise ukuthuthuka okukhulu ekuqineni.
Thola Ukwelapha Ukucindezeleka Nokukhathazeka
Ukwelashwa kwezinkinga zakho zemizwa kungakha ukuqina.
Ucwaningo olulodwa labantu abangaba ngu-130 abasanda kutholakala nge-MS bathola ukuxhumana phakathi kokucindezeleka nokukhathazeka nokuqina. Yiqiniso, ukuxhumanisa akusho ukuthi umuntu ubangela enye, okusho ukuthi ukucindezeleka akubangeli ukuphelelwa amandla okungahambi kahle noma ngokuphambene nalokho. Kunalokho, isixhumanisi sisho uxhumano noma ubuhlobo.
Ngalokhu okutholayo, kungenzeka ukuthi ukuphatha ukucindezeleka kanye / noma ukukhathazeka kungenza ngcono ukuqina komuntu. Ehlangothini lwe-flip, amasu okusebenzisa ukuthuthukisa ukuqina kwakho (njengalezo okushiwo ngenhla), angakusiza ukuphatha izimpawu zakho zokucindezeleka nokukhathazeka.
Ekugcineni, uma ubona izimpawu zokucindezeleka (noma ukukhathazeka), sicela ubheke udokotela wakho. Ufanelwe ukuzwa kahle futhi ungasiza ngosizo lwemithi kanye / noma ukwelashwa kokukhuluma.
Izwi elivela
Ngenkathi ukucindezeleka nokucindezeleka kwansuku zonke kokuphila kungenza noma ubani ezwe sengathi uphiswe njalo, ukuphonsa enselele eyengeziwe yokuhlala ne-MS kungenza ukuvuselela emuva (ukuqina) kube nzima kakhulu.
Ekugcineni, ukwakha ukuqina akuyona umsebenzi olula, futhi cishe uzogcwala ukukhathazeka ngokomzwelo njengoba uhlela izithiyo zakho.
Kodwa ungakwenza. Eqinisweni, ungase umangale ukubona ukuthi uqine kangakanani-ukuthi ungaphila ngokuhle futhi ujabule ebusweni be-MS.
> Imithombo:
> I-American Psychological Association. (2017). Umgwaqo Wokuya Ekuvuseleleni.
> Falk-Kessler J, uKalina JT, uMiller P. Ithonya lokwelapha emsebenzini ekuqiniseni kubantu abane-multiple sclerosis. Int J MS Care . Ukuwa kwe-2012; 14 (3): 160-8.
> Silverman AM, Verrall AM, Alschuler KN, Smith AE, Ehde DM. Ukubuyisela emuva futhi, futhi futhi: ukutadisha okunembile kokuqina kubantu abanesifo se-multiple sclerosis. Ukubuyisela kabusha ukukhubazeka . 2017 Jan; 39 (1): 14-22.
> I-Tan-Kristanto S1, i-Kiropoulos LA. Ukuvuselela, ukuzimela, ukubhekana nezindlela zokucindezeleka nokucindezeleka nokukhathazeka kulabo abasanda kuthola ukuthi bane-multiple sclerosis. I-Psychol Health Med . 2015; 20 (6): 635-45.
> Wagnild G. Isilinganiso Sokunciphisa : Abaqondisi Abasebenzisa I-English Version yesiNgisi ye-Resilience Scale kanye ne-14-Item Resilience Scale (RS-14) Worden, MT: Isikhungo Sokuvuselela; 2009.