Kuyinto Engavamile kodwa Kungenzeka Kubantwana Nezingane
Sibutsetelo
I-Fibromyalgia (i-FMS) yisimo esibuhlungu esingapheli esitholakala kaningi kulabo besifazane abaneminyaka yobudala noma ngaphezulu. Noma kunjalo, noma ubani angayithola-futhi lokhu kuhlanganisa izingane kanye nentsha.
Ezinganeni, lokhu kugula kubizwa ngokuthi i-fibreyalgia syndrome yezingane (i-JFMS). Ungase uhlangabezane nezingane ezisencane eziyinhloko ye-fibromyalgia syndrome. "Okuyisisekelo," kuleso simo, kusho ukuthi akuhambisani nezinye izifo ze-rheumatologic ezifana ne-arthritis noma i-lupus.
Uma kuhambisana nokunye ukugula okunjalo, i-fibromyalgia ibizwa ngokuthi "eyesibili."
Asazi okuningi nge-JFMS, futhi odokotela abaningi abazi ukuthi abantu abasha bangaba nalesi simo. Kodwa-ke, sifunda kabanzi isikhathi sonke nokuqwashisa nokwamukelwa emphakathini wezokwelapha kukhula.
Kuyesabisa ukusolwa ukuthi ingane yakho i-JFMS noma ukuba ihlolwe nayo. Zama ukukhumbula amaphuzu ambalwa ebalulekile:
- I-JFMS AKUSI isifo esibulalayo
- Izinketho eziningi zokwelapha ziyatholakala
- ngokuphathwa kahle nokuphathwa, ingane yakho ingaphila impilo egcwele
Ngaphambi kokubuka imininingwane ngokuqondile ye-JFMS, kubalulekile ukuthola ukuqonda okuyisisekelo kwe-FMS.
Ku-FMS, isimiso sezinzwa siyazilimaza uma kuziwa ebuhlungu. Ikhulisa izibonakaliso zobuhlungu futhi iphendulela amasignali okumele kube yinto engathandeki ebuhlungu .
Ngenxa yokuthi ubuhlungu abuveli ekuhlanganyeleni noma kumisipha ethile, kungakhuphuka noma kuphi emzimbeni nganoma yisiphi isikhathi.
Ubuhlungu bungase buhambe ukusuka endaweni eyodwa kuya kolunye, kube njalo ezindaweni ezithile, noma kokubili. Ubunzima bungashintsha ngendlela efanayo.
Zonke izinhlobo ze- FMS zingabandakanya izinqwaba zezimpawu ezibuye zihluke kakhulu. Kwamanye abantu, izimpawu zingase zihambisane kahle, kodwa kwezinye zingase zifike zihambe.
Kuvame ukubona iphethini lamathasha (izikhathi zezimpawu ezinzima) kanye nokukhishwa (izikhathi lapho izimpawu zinciphisa noma engekho.)
Ngenkathi i-FMS isiye yaphathwa ngama-rheumatologists, njengoba abacwaningi bethola izici eziningi zezinzwa, sekuqala ukuphathwa nezinzwa ze-neurologists.
I-FMS nayo ithinta amasosha omzimba nama-hormone. Lokhu kubangela izimpawu eziningi ezingase zibonakale zingenzi lutho futhi zingenza ukugula kubonakale kuyinqaba.
Izimpawu
Izimpawu eziyinhloko ze-JFMS zihlanganisa:
- Ubuhlungu obubanzi nobubele
- Ukukhathala
- Ukulala okungaqabulayo
- Ukuqina kokusa
- Izinsizwa
- Ukukhathazeka
- Imisipha emihle
Izimpawu ezingavamile zingabandakanya:
- Izinkinga zokucabanga , kuhlanganise nobunzima bokugxila (okuthiwa "i-fibro fog")
- Ukuzivocavoca / ikhanda elikhanyayo
Amacala amaningi e-JFMS afaka phakathi izimo ezithintekayo. Ngezinye izikhathi badideka ngenxa yezimpawu ze-JFMS kepha kungadingeka ukuthi bathole futhi baphathwe ngokwehlukana. Izimo ezixubile ezivamile zihlanganisa:
- Ukucindezeleka
- I-irritable bowel syndrome (i-IBS)
- Ukuphazamiseka kokulala (ngaphandle kokulala okungapheli), ikakhulukazi i- apnea yokulala , i- syndrome engenamaphilo, nokuphazamiseka kwesikhutha
Izimbangela Nezici Zengozi
I-JFMS ayiyona evamile kakhulu. Abacwaningi balinganisela ukuthi phakathi kwamaphesenti amabili nanye amabili ezingane ezineminyaka esikoleni angaba nayo.
Siyazi ukuthi i-JFMS ivame ukutholakala eminyakeni eyintsha, kanti amantombazane angaphezu kwamantombazane okumele atholakale enayo.
Iningi labantwana abanalesi simo banamalungu omndeni oseduze nomuntu omdala we-FMS, ngokuvamile umama wabo. Ngenxa yalokhu, ochwepheshe bakholelwa ukuthi kukhona ukuxhumanisa kwezakhi zofuzo kodwa akukafaneli ukuwuphawula.
Ezinye izimo ze-JFMS zibonakala zibangelwa izifo, ukulimala ngokomzimba, noma ukulimala ngokomzwelo. Amanye (amacala angesibili) angabangelwa ingxenye ngezinye izimo ezibangela ubuhlungu obungapheli. Lokhu kukholakala ukuthi ngenxa yezinguquko ebuchosheni obungasungula kabusha izindawo ezibhekana nokucubungula ubuhlungu.
Ukuxilongwa
Awekho ukuhlolwa kwegazi noma ukuskena okungaxilonga i-JFMS, kodwa udokotela wakho kuzodingeka enze ukuhlolwa okuningiliziwe ukuze abone ezinye izimbangela ezingabangela izimpawu zezingane zakho.
Ukuxilongwa kwe-JFMS ngokuvamile kuxhomeke ekuhlolweni ngokomzimba, emlandweni wezokwelapha, kanye nangendlela yokuhlola. Ingane yakho kumele ibe nayo yonke imigomo emikhulu futhi okungenani izinqubo ezintathu ezincane ngezansi.
Izinqubo ezinkulu
- Ubuhlungu obubanzi ezindaweni ezintathu noma ngaphezulu okungenani izinyanga ezintathu
- Ukungabikho kwesinye isizathu esibangela izimpawu
- Imiphumela yokuhlola evamile yemibandela efanayo
- Ubuhlungu ezinhlanu kumaphuzu wethenda angu-18 e-FMS
Izindlela ezincane
- Ukukhathazeka okungapheli noma ukucindezeleka
- Ukukhathala
- Ukulala okubi
- Amakhanda angapheliyo
- I-IBS
- Ukuvuvukala kwezicubu ezithambile
- Ubuhlungu obubi kakhulu ngomsebenzi womzimba
- Ubuhlungu obunzima ngokushintsha kwesimo sezulu
- Ubuhlungu obunzima ngokukhathazeka nokucindezeleka
Abanye odokotela bangasebenzisa indlela yokuhlola yokudala ye-FMS , etholakala ukuthi inembile kunabantwana njenge-criteria ye-JFMS.
Uma udokotela wakho engajwayelene ne-JFMS nokuthi ihlolwe kanjani, ungase ufune ukubona ochwepheshe. I-rheumatologists yezingane zinezifundo eziningi ekuqapheliseni nasekutholeni lesi simo.
Ukwelapha
Indlela yokwelashwa enconyiwe ye-JFMS iyinhlanganisela yezokwelapha eziningana, kanti ngokuvamile ihilela ochwepheshe bezokwelapha eziningana. Ayikho ikhambi ye-JFMS, ngakho-ke ukwelashwa kuhloswe ukunciphisa izimpawu nokusebenza okuthuthukisiwe.
Ezinye zezokwelapha ziye zacutshungulwa ngokukhethekile ku-JFMS, kodwa odokotela basebenzisa futhi ukwelashwa okuye kwafundwa kuphela ku-FMS omdala.
Ngenxa yokuthi izimpawu ezithile kanye nokuqina kwazo kungashintsha kakhulu, ukwelashwa kufanele kufanelwe kumuntu ngamunye. Izinketho zokwelapha zihlanganisa:
- imithi
- izithako zokudla okunomsoco
- ukwelashwa ngokomzimba
- uhlelo olwenziwe ngokuzivocavoca oluhlelekile
- ukuphathwa kwengqondo yokuzicabangela
- amaqembu asekela
Imithi ivame ukubandakanya izidakamizwa ezingezona umlutha, izidakamizwa ze-SSRI / SNRI , i-low-dose tricyclic antidepressants, imisipha yokuphumula, anti-inflammatories kanye nezinsiza zokulala.
Ezinye izithako ezithandwayo ze-FMS zifaka:
Ezinye izithako eziningi zisetshenziselwa lesi simo futhi, kanti ezinye zisetshenziswe ngokusekelwe uphawu.
Ukwelashwa ngokomzimba kungasiza ekutheni futhi kuqiniswe imisipha futhi kuthuthukise ithoni ye-muscle, konke okungasiza ekunciphiseni ubuhlungu. Kubalulekile ukuthi ukhethe uchwepheshe wezokwelapha oqonda i-FMS.
Ukuzivocavoca kubhekwa njengesihluthulelo sokwelapha zonke izinhlobo ze-FMS. Kodwa-ke, kufanele ihambisane nesimo sokubekezela nokuzivocavoca kwengane. Ubude nokuqina kokusebenza kufanele kwandiswe kancane kancane ukuze kugweme ukudala ukuphazamisa uphawu.
Ukwelashwa kokuziphatha kwengqondo (CBT) yilona ukwelashwa kwe-JFMS okuqashwe kakhulu abacwaningi. Kuhilela ukufundisa ingane mayelana nezindlela zokubhekana nokucindezeleka ngokomzwelo kanye nezindlela zokuphatha lesi simo, njengokuhamba phambili, imikhuba emihle yokulala nokulandela imithi yokwelapha. Akuwona wonke ucwaningo ovumelanayo, kodwa ukuphazamiseka kwezifundo kubhekisela ku-CBT njengokwelashwa okuphumelelayo kwe-JFMS.
Olunye ucwaningo lubonisa ukuthi uhlelo lokuzivocavoca oluhlangene ne-CBT lungase luzuze ngokukhethekile.
Amaqembu asekela , ikakhulukazi lawo ahloswe eqenjini elifanele, angasiza ekuvimbeleni imizwa yokuzihlukanisa futhi "ehlukile." Uma ungenayo ukufinyelela kwamaqembu okusekela, ungase ukwazi ukuthola eyodwa ku-intanethi evumelekile ingane yakho.
Ukuthola isethi engcono kakhulu yokwelashwa kwengane ene-JFMS kuthatha isikhathi nokuhlolwa. Kubalulekile ukuthi bobabili abazali nezingane baqonde ukuthi akuzona zonke izindlela zokwelashwa ezizosebenza futhi kungenzeka ukuthi zizobekwa eceleni endleleni.
Isibikezelo
Isibikezelo sezingane ezineJFMS empeleni kungcono kunabantu abadala abane-FMS. Ezinye izingane zilulame kahle futhi zibe nezimpawu ezinzima kakhulu njengabantu abadala. Labo abathola futhi banamathele emasu okuphatha ukwelashwa okusebenzayo bangakwazi ngisho nokuhlangabezana ne-diagnostic criteria emva kweminyaka embalwa.
Kodwa-ke, abanye bangase baqhubeke beba nezimpawu ekukhuleni. Kungenzeka futhi ukuthi izimpawu zihambe kakhulu, kuphela ukubuya kamuva ekuphileni.
Kungakhathaliseki ukuthi kwenzekani, kubalulekile ukukhumbula kunabantu abaningi abane-FMS abahola ngokugcwele, abakhiqizayo, abajabulayo.
Izinselelo
Izingane ezineJFMS zingabhekana nezinkinga eziningi ngenxa yokugula kwazo. Bangase bazizwe "behlulekile" ngoba abafani nabangani babo nabalingani nabo. Bangase bazizwe behlukanisiwe ngoba kufanele bahoxise emisebenzini eminingi. Ucwaningo lubonisa ukuthi balahlekelwa yisikole esikhulu, okungaholela ezinkingeni zemfundo nokucindezeleka.
Ngaphezu kwalokho, bangase babe nabantu abadala empilweni yabo ababuza ukuthi empeleni bayagula. Abantu bangabheka njengabavilapha futhi bezama ukuphuma emsebenzini. Umthelela ongokomzwelo walezi zengqondo ungabonakala futhi ungaphazamisa ikhono lomntwana lokubhekana nesimo, ngokomzimba nangokomzwelo.
Uma ingane yakho ilahlekelwa isikole esikhulu , ungase ufune ukuhlola izinketho ezifana nokufundisa, isikole se-inthanethi, noma ukufundela ekhaya.
Uma ingane igula, ithazamisa wonke umndeni. Ukuphoqa lolu daba, ngoba i-FMS ijwayele ukugijima emindeni, iningi lezingane ezineJFMS zinomzali nge-FMS. Kungase kuzuze wonke umndeni ukuba ube nokweluleka ukuze ukwazi ukubhekana nezinkinga nezinkinga ezihilelekile.
I-Juvenile FMS ne-Adult FMS
Ngenxa yokuthi asinalo ulwazi oluningi ngokukhethekile mayelana ne-JFMS, wena nodokotela wakho kuzodingeka ukuthi nithembele olwazini olufomeni lobudala. Zivame ukufana ngendlela efanayo, ngezingqikithi ezimbalwa eziyinhloko. Ku-JFMS:
- Amaphoyinti amathenda ambalwa adingekayo ukuze ahlolwe
- Ukuphazamiseka kokulala kubonakala kunkulu
- Ubuhlungu buvame ukuba buncane
- Isibikezelo singcono
- Ukuvutha kungase kube ngaphezulu
- Eminye imithi ayifanele izingane, noma kungadingeka imithi ephansi
- Ukunaka okukhethekile kufanele kuhokhwe ebuhlotsheni nabangane nabamalungu omndeni
Ucwaningo lubonisa ukuthi izingane ezineJFMS ezibhekana nokukhathazeka noma ukucindezeleka kunenkathi enzima kakhulu ukusebenza.
Njengomzali, kubalulekile ukuthi ufunde ukuthi ungayinakekela kanjani ingane yakho nge-JFMS futhi futhi ubakhuthaze ngomndeni osondelene, abasebenzi besikole, kanye nabanye abantu abaseduze nabo. Ukwaziswa kwakho, ukusekelwa, nothando kungahamba isikhathi eside uma kuziwa ekusizeni ingane yakho iphile nalesi sifo.
Imithombo:
I-Goulart R, et al. Kufakiwe Revista brasileira de reumatologia. 2016 Jan-Feb; 56 (1): 69-74. Izici zengqondo ze-juvenile fibromyalgia syndrome: ukubuyekezwa kwezincwadi.
Kashikar-Zuck S, et al. Umagazini wezokwelapha wezinhlungu. 2016 Jan; 32 (1): 70-81. Ukuhlolisisa okuhlolisisayo kokungenelela okuhlangenwe nakho kokuziphatha-kokuziphatha kanye neuromuscular for the fibromyalgia yezingane.
Qaphela i-MS. Ama-annals wezingane. 2015 Jun; 44 (6): e136-41. I-fibromyalgia ye-juvenile: indlela ehlukahlukene yokuphatha ukwelashwa.
I-TV, no-al. Umbhalo wezingane zokwelapha. 2016 Feb; 169: 181-7.e1. 2010 I-American College of Rheumatology inqubo ejwayelekile ye-fibromyalgia kithi ebantwaneni besifazane abasha abane-fibromyalgia yezingane.
I-Tran ST, no-al. Ukunakekelwa kwe-Arthritis & ucwaningo. 2016 Juni 22. [I-Epub ngaphambi kokuphrinta] Imiphumela yangaphambilini ye-cross-site engqondweni yokuziphatha-yokuziphatha kanye ne-neuromuscular integration training intervention for fibromyalgia yezingane.